TAMOXIFEN -the third thread ***

[MaryAnnSingleton]

here we are- will put a link on the old thread.

The (Whisper it) discharge is not nice and am not sure if it is normal, I don't want to discuss it with my oncologist either [ blush]

but for today I am not going to worry because MY MAMMOGRAM WAS NORMAL!!! Sorry to be repetitious, but i just need to keep saying it!!! I am so bloody relieved!!

Cakes that is wonderful - hooray for you

I am too old and crusty to answer the 'ladees' questions - had all my bits and pieces removed 10 years ago! I force my GP to listen to womens stuff, - he is easily embarrassed for a GP - refers to 'ladies private parts' etc. (apart from that he is a great GP).

I have weeded a flower border and planted some night scented stock seed. (shows off) DD is now making me some rarebit (now I know why I miss her so much when she's not here)

Thanks KK

Night scented stocks - now that's what I call summery! Am very jealous, I may have to go outside soon and see if i can work out where my flowerbeds were are.

Still grinning!!!

Yay for normal mammogram Cakes.

Struggling a bit here. Slept badly due to follicle pain. IS this a normal sensation at hair loss time? It feels like I've had my hair in a pony tail and it has been pulling at the roots and it is really getting to me. Someone tells me it doesn't last.

Low energy, big time here. Got a sore throat as well which worries me and I hope to god I don't end up back in hospital because it was a cold that floored me last week.

DD2 not coping with all the changes and a lethargic Mummy. Lots of tantrums.

Thanks Pennies.

Sorry you are struggling. From memory the head is a bit sensitive during hair fall, and then again when it just starting to regrow , but it definitely does not last long.

Little kids don't cope well with it all, I can remember dd (6) telling me that my treatment was no fun for her and if you feel tired and unwell it can be hard to care what they think, really (or is that just unmaternal me?)

Really all you can do is give yourself as much rest as you are able, and take help when it is offered. I am sure you are doing that, but you know what I mean. I seem to remember that you are on a fortnightly cycle rather than three weekly, and if I am right, that is likely (I should think) to make you feel worse, although the upside is it will take less time.

Don't expect too much of yourself, because the whole process is a bit crap I am afraid. But your dd will come through it all just fine, unless you murder her first, which might be a temptation.

xx

Sorry you're feeling bad Pennies, I got a certain amount of hair pain - similar to what you describe, but it didn't last. I also found that I always got a sore throat about four days after treatment - I think it is the cells in the lining of your throat being affected. It lasted a couple of days. Also meant to say to you that around the same time I felt awful in terms of mood, snappy and miserable - the effect of the steroids.

what I'm trying (rather incoherently) to say is that at the time you start feeling physical SE, you also get whammed with mood SE -when you least need it. So don't be down on yourself if you feel fed up -its nothing to do with your coping ability. I was floored by it, and I didn't have little ones. So you are doing brilliantly.

Hooray for Cakes's mammogram. I'm a bit worried I might have one tomorrow as I have to go to breast clinic - it feels tender and as tho it might fall apart in the machine.

Pennies - my scalp is very tender too, and hurts a bit on the pillow. I'm holding off shaving but will need to do it pretty soon. A freind has advised only shaving down an inch as if you go shorter the little spikes stick into the follicles and it feels even worse

I don't have any periods (or anything remotely similar!) but I don't think you should hold back discussing this with any medics - they'll have dealt with all sorts of much more yukky or embarressing stuff. At least you won't be on TB like in Embarressing Boadies - or I suppose you could track dwon that blond Dr and go onTV is you wanted

Pennies - I think a fortnightly treatment cycles must be really tough. If its too awful could you move to 3 weekly if it gave you a better interval of feeling ok to restore a bit of normality to family life ??

KK - my DD also cooked a couple of meals last week for us, but she only stayed 4 days and has gone back to her student chums now So I need to go and cook now.

Good luck to SR for tomorrow at the clinic.

You'll find they are really gentle if you tell them it is tender (or at least they'll go double quick so it doesn't take long)

hooray hooray hooray for Cakes' mammogram
So sorry you are feeling bad Pennies - hope things improve v quickly and throat is ok.
Night scented stocks are lovely - I can't resist buying the cut white ones -they make the house smell heavenly.

I was given a lovely bouquet yesterday, hyacinths, tulips and some little white ones. Unfrotunately the little white ones smell strongly like mouse poo, so I've had to separate them and banish into our utility room!

at mouse poo - some one gave me some Narcissi a little while ago - lovely but they were real stinkers - I kept looking accusingly at the dog!

arf !

I love the smell of Narcissi

I do too cakes normally, but these must have been some kind of odd variety, they reeked of wee. (to put it bluntly)

Congrats on the mammo cakes! fabulous news! Sorry I've been quiet, head is feeling a touch pickled at the mo and having to deal with the will stuff, dh, sil and treatment has resulted in a blubbering mess a few times!

On the plus side I went to brum today to do the flash workshop with a load of other mn'ers, me and dd had a great day out and no-one noticed (or if they did they didn't make it obvious) that I was wearing my wig. We made a scrummy perfume that dh has taken a shine to

Thanks so much for all the suggestions of what to get my friend. Am hoping to see her this evening, so off to the shops now .

Also, I just wanted to say - I hope it's you don't think I'm rude if I don't refer to stuff you mention in your posts about what you're all going through. It doesn't feel right somehow - I'm not experiencing any of it myself and it feels too glib to talk about things I know nothing about. But please know that my thoughts are with you all whatever stage of treatment you are at.

don't worry about that tkband3

hello RWU- sorry about your pickled head...what did you put in your perfume ?

ooh a bit of everything lol! we had an hours talk on the origins and history of perfume, then had a chat about chanel no5, then got let loose with some ethanol and fragrance oils and got told do do our worst was fab and our group produced a sort of warm vanillary yummy thing, it does in fact smell like something i would drink if absolutly hammered

i am all of a sudden not well, felt ok-ish at 6am this morning, but has got progressivly worse i'm waiting for the doctor to come out, have developed an odd rash which goes round one boob and round the back to my spine (a bit like a stripe just on one half of my body- as i said ODD!) also feel all shaky, weird and keep bursting into tears, am sitting in bed in pj's covered by 3 duvets watching daytime tv, playing on my iPod with coffe and a

Hi RWU

Thanks for the good wishes, sorry you are feeling crap, let us know what doc says. Maybe you just did a bit too much in Brum? Hope that's all it is. In any case, keep us posted!

perfume sounds yummy, I love a nice smelly. We went to the Cotswolds at the weekend, and I visited the Cotsowld Perfumery willing to part with cash - but they all made me gag

Have just seen a friend who had a well woman check up and was told her BMI means she is officially obese. That makes me think these tests aren't worth much - she is what i would call a little well-covered, but definitely nowhere near obese. Not even fat. 'Tis a bad joke. Needless to say I won't be going for a check-up myself, I'd also come out obese on that scoring, and frankly, i don't need the hassle.

oh RWU -sounds horrible for you - you probably have over exerted yourself.
Cakes - was that at Bourton-on-the Water ? not that I've been to the perfumery. When I lived in London I'd try to go past Jo Malone's shop at Sloane Sq on the way back from appointments/dropping work off and would try all the lovely scents there - mmmmm !

Bollocks, tis shingles............ apparently the 'achy back' i've had for the last week or so wasn't a result of over-exuberant cleaning (as if !!) was the first symptoms, but i shouldn't have been contagious to anyone until this morning when the rash appeared (literally before my eyes!) so all the ds's have had chicken pox, i'm guessing the school dinner ladies have so hopefully other than dd (who i would quite like to have chicken pox before she gets too much bigger!) i haven't been a risk to anyone.

oh dear -shingles isn't very nice

i'm getting that impression mas!

a friend had it recently and was pretty poorly - is it very itchy ?

O RWU that really is crap and bollocks, I'm so sorry about your shingles - on top of everything else. My DH got it just when our first DC was born - I think you are susceptible when stressed (which he was due to doing exams in same week as having 1st baby) and you have had a lot on, recently, to say the least. Does your DH get to paint iodine on you with a very soft brush? I remember doing this for my DH! Anyway, virtual hugs to you, defineitely without touching.

Pennies - I had my hair cut to a number 7 with clippers this morning, ie about half an inch all over. I had a bad night like you, and this feels better - as if I've taken control! My hair was even hurting yesterday in the breeze when I went for a walk, and it was coming out rather copiously when I ran fingers through it, so I feel better now that I've gone for the shorn look, with a little hat. I am not going to even try my wig until this horrid tenderness has gone.

Saw surgeon this morning about next op. I repeated my worry about infection after last time, and he says he'll give me pre-emptive antibiotucs this time. I didn't have to have a mammogram which was a bit of a relief.

I am officially obese too, but don't think I'm that huge really - I know I should lose a stone though. Thought chemo was helping but I've put the 6lb I lost in the 1st week, back on.

Aha, yes the white flowers must be small narcissi - obviously best left in the garden I think.