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ex glandular fever sufferers

28 replies

tiredsville · 27/05/2009 19:27

I had glandular fever well over a year ago, and feel yet again I'm still getting mild bouts of it swollen glands, fatigue, body aching slight temperature.

Ex sufferers, does it ever flipping leave your system? I'm going insane

OP posts:
Inarush · 29/05/2009 23:17

Nickschick, I hope you read this. I hope your son is getting proper help. He should see a paediatrican that knows about CFS.
Everyone with CFS, please google the NICE guidelines for CFS and use this as way of requesting further help from your GP.

CBT may be helpful and some children def need help with associated problems such as depression, anxiety.In some areas the only help may be psychological, but I'm posting to let you know that the NHS can also offer activity and sleep management programmes which are well researched and really help.

Please research this approach.

Inarush · 29/05/2009 23:24

Lifestyle management (mainly looking at sleep restriction and activity management) is also the most evidence based approach for adults, alongside CBT.

I just feel so strongly about kids because they get worse quicker than adults but also tend to do really well with appropriate help.

THe AYME people will also talk on the phone i think.

wanttobealone · 29/05/2009 23:38

sleepydust is a really good site for ME sufferers.
I was diagnosed in Jan with PVS after a bout of a virus which displayed GF, but after blood results came back inconclusive for GF.
Diet is really important...UI eat alot of pulses and cut out on all sugars which help me.

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