dd being tested for cystic fibrosis

[Boco]

I had a call from the hospital today asking me to bring dd for sweat test and more bloods as the consultant thinks she may have cystic fibrosis. She's 4 and has had pneumonia 5 times in the past few months.

They mentioned this in passing last October, but I assumed they'd dismissed it. We saw the consultant again last week and he mentioned that he wanted to do tests quickly, but wasn't really expecting this.

Feel rather panicked by the idea know nothing about the condition but assumed it was hereditary.

Has anyone else had testing for this? I probably shouldnt' even think about this until Tuesday, but hard not to.

Arf @ lying shamelessly Boco. Tis called PAT (pre appointment tension) I have it myself at the moment so sympathise.

Good luck - DS was tested for CF amongst many other things when he had had lung infection/pneumonia/lung collapse etc. Test was very easy and results straight away which was nice

Great news about not tasting salty, and arf at the image of lots of licking!

Good luck with your PAT Saggar. (good to have a name for this!) Will update tomorrow.

Boco, hope it all goes well tomorrow.

Whenever there is a thread on CF I lick DD (!) becuase she had re-occuring problems with her chest, and a doc asked us if we were worried about cf... I wailed "well, now I am!".

Hope it all goes well

My DS was diagnosed with CF at 2 1/2 Bocco if you want some support please feel free to contact me.

[email protected]

Defianatley NEVER Google the only info you will need if from CFTRUST

Boco you are in my thoughts today - hope everything goes well

Thinking of you today Boco

Thinking of you today. x

She doesn't have CF - was within the normal range, so, very relieved. We now have specialist nurse person we can call if we're worried, she said that CF was most pressing as she had a few markers but now there are a couple of other things to rule out, like certain immune disorders, and we'll get results of bloods in a few weeks - and if it's not those things either then it's just something she'll grow out of in time. So, big relief. Thanks for thinking of us. x

Oh that's great news Boco. What a relief. Put a bottle of wine in the fridge and enjoy a well-deserved drink tonight.

That is wonderful news! Good luck with all the other tests too.

Hurrah, hurrah, hurrah, hurrah, hurrah. That is really wonderful news, boca.

Thank you
She was very pleased because they let her keep the little disk thing that had the tube inside to play with, and she marched up to an old lady on the way out who was sitting in a wheelchair and said 'would you like me to test your sweat at all?'.

So pleased to her your news Boco

hear

Oh Boco that is fab news.

Brilliant news!!

boco, that's great news you must be so relieved. Fingers crossed they can rule out everything else as well

Thank goodness for that Boco - definitely bottle of wine time .

Oh fab news Boco. Hope everything else comes back clear too.

that's fantastic news Boco

Been lurking - great news

Great news! CF is not an easy ride!

I hope they can find out the cause of you DD's troubles and ger her sorted asap.