Seems to be lp, was referred to a dermo for lady bits! He was very wary to diagnose at first, and then was refusing to tell me what it was once he knew, as he said it would scare me to death!! He was right it did and does.
Yes itchy, but the main issue I have is the soreness, sex is an impossibility these days, although every now and again, its bareable.
My treatment has been trimovate, used that for 6 weeks first, then wonder of wonders it was nearly normal. but of course he then said that I was to use caneston cream, because the thinning of the skin issue, and I have years in front of me, so now use oilatum gel to wash and is a great moisturiser, that on its own has made such a difference. Have baths with no bubbles, soaps, no hair washing, just clean warm water (boring)
Use aqueous cream to moisturise, if very itchy use caneston, or trimovate sparadically if can not deal with the symptoms, and the rest of the time just live with it. But before I saw him it ws so bad, sore, absolutely beyond impossible to have any intimacy.
Of course there are extremes of this, and some women are so badly affected, with the whole of the vagina closing, or scarring, but fortunately for me I just get the odd tear, which I try to control as much as possible. I am just concerned that it will progress to this level, or does it not, and what can I do to help myself, I have read that once its there its not going to go away, dermo has said as much, and advised I learn to manage my pain, or find ways to cope.
Sorry that was rather long, I havent found anyone till now who even knows what it is, or even believes what this is like.