Noddyholder, iliketomoveitmoveit, and others interested in Peters blip last week, his tacrolimus levels have come back...

[misdee]

High!

he is reducing his dose now on harefields advice, and repeat blood tests on thursday.

local surgery nurse has written him up for every blood test going in preparation for next weeks big one year check.

So it definitely wasn't a heart attack?

Oh good - well not good, but good you have a reason for his blip.

Surely it's not a year, misdee??

Amazing

phew misdee; at least they can now deal with it.

Can't believe it's a year already...are you celebrating with something nice?

not a heart attack.

but it's highly likely its the reason for his strange turn, and the ongoing unwell-ness he is feeling.

am still that it took some people from an online community to twig what was wrong with him, and not the medical staff (thank you NH and ILTMIMI), and it still took them half a day to get the right bloods drawn for it.

those levels came back high even with him missing a dose.

PHEW!

God bless mumsnet.

mumsnet is bloody fab!

mwah mwah

[hands out free chocolate]

Oh GOOD

MN is fucking fab

(shouldn't have needed MN for that though - agree with your

Ooo chocolate.....yum

...

hurray I know how he feels I had several what were suspected 'strokes' lost control of a pen and speech once v scary and had constant tingling So glad he is ok mouth ulcers will go now too!So glad you have had good news xxxxxxxx

oh he'll be happy if it clears up his mouth ulcers as well.

next time we will by-pass lcoal hospital if possible and take him straight to harefield.

thats fantastic news misdee. well you know what i mean. I am so so that some words ona screen "diagnosed" Peter when your local hospital couldn't.

Fucking ace

Well done NH and ILTMITMI

I love MN and I am so glad Peter's un-wellness is not as unwell as it might have seemed, if you see what I mean!

Well done ladies!

I'm so glad it wasn't a heart attack

Oh, I am sooo glad it was not a heart attack.
Is there any way you can write to the local hospital or get harefield to do it, and effectively get them to improve their service to transplant patients? After all, they did not appear to have a clue did they?

But happy for you and Peter and the girls that all is well

i spy iliketomoveit

You did indeed

Great (sort of ) news, am so glad you've got some answers.

I hope all goes well for the anniversary check, although I guess that may involve a biopsy?

I hope you are also taking time to look after yourself during all of this (stern finger-wagging emoticon)

can I ask..

what is the tacrolimus for?

Am so glad it was nothing too serious. but bloody hell has it been a year already?

tacrolimus, along with MMF is an immunosuppressant.

he is due at harefield later this month, overnight stay, having biopsy and angiogram.

PLeased to see the good news misdee.

Happy 1st anniversary to peter's heart!!!

oh that's great