And she's the worlds most dreadful patient - I end up having no patience with her and no sympathy with her condition.
She's looking after my very infirm old Dad too and has her 'own way' of doing everything which infuriates health professionals and me and my sister alike - this also prevents her from allowing us to find respite care for Dad whilst she gets a bit better herself
Here for a bit of a rant about it I think but is there anyone out there who has any experience of this??? is there any cure - from what I've been reading it's just something she'll have to live with as positional therapy didn't work 2 years ago and stemmetil (sp) gives her a Parkinsons like hand tremor - urgh!!
her current medication doesn't seem to be doing much good either. (and she keeps taking herself off it as she thinks it makes her worse) - double urgh!!