Misi, thank you very very much for the info. I've found a supplement but I'm waiting to speak to someone before I order etc.
Noonki, thank you for your message. I'm so sorry to hear that you feel it's coming back; I can only imagine how distressing that must be.
Ds has been ill since just before he was 3-following chickenpox. It took just over two years before we got an 'official' diagnosis and that bit was very hard; I think people thought I was a little mad and over-anxious
Ds is having a real dip at the moment and I feel so sorry for him. He had been looking forward to going to featherdown farms (for the first time) on a camping trip, with us and his grandparents, but now he doesn't want to go as he feels so tired.
His symptoms seem to be pretty much fatigue, muscle aches and pains, nosebleeds, stomach/digestive problems, noise intolerance, heat intolerance. He's started to complain of bad pains in his chest, the last weeks, after any exercise and that's really scary to be honest, but we try not to show it.
Have you heard of the foggy friends website? It's a great forum for ME sufferers, their families and carers etc.
Sorry my reply was so long!
If you ever want to mail me please do so on [email protected]. I hope you're having a good day.
Thanks to everyone for their help x