Coeliac disease

[mummyl2013]

My son 13 is coeliac diagnosed aged 4. Since I had him I’ve had constant issues with digestion. My blood results are always negative. I had an endoscopy because of severe reflux in 2024 and I asked them to do biopsies for coeliac. It came back negative. I just looked at the report and they only took 2 biopsies from the 2nd part of my dudenum. Could it have been missed? I also have had vitamin deficiencies low ferritin and gastritis was my diagnosis from endoscopy. I also have the HLA gene.
I was eating gluten at time of all my tests and iga is always negative.
Just don’t know what else could be wrong with me

Have you eaten gluten free in the past and has it helped? I had an iron and vitamin deficiencies, awful brain fog, horrible cramps and diarrhoea was tested for coeliac by endoscopy and it came back negative. I went gluten free anyway to see if it would help and the difference is night and day.

Just because you don't have coeliac disease it doesn't necessarily mean that you don't have a sensitivity to gluten. If you haven't tried it before it might be worth trying, you don't lose anything by giving it a go.

Go gluten free and see if it helps.
Also look into eating a 'traditional' boring whole food diet, cutting out all processed foods. There is a lot of stuff in processed foods and any of it could be irritating or inflaming any part of your digestive system.

I have in the past tried, and failed. I always find the gluten free bread does sit better in my stomach and I haven’t eaten gluten containing pasta since 2013 because it was upsetting my stomach. So I could try again and take it more seriously. It should be easy because my son is coeliac. I just kept cheating. Some gluten free products still irritated my stomach too

Thankyou. I will try and give it a go. I have tried gluten free in the past but gave up too easily.

I find the same with a lot of gluten free highly processed foods so I try and eat mainly naturally gluten free food. I also have to avoid oats even gluten free ones. It's a pain sometimes and I do wish I could just tuck into a big fat pizza but I know I feel so much better without it in my diet.

Give it a proper go for a few months and see how you feel. It does get easier as time goes on.

That’s interesting I have to avoid oats too. Thanks for your reply I’ll give it a go and try and eat more natural foods

There are several deficiencies in your report which suggest that you could have been facing health issues possibly. Referring to a physician is required and after a full examination of your reports, a better assessment and treatment could be suggested.

There are several deficiencies in your report which suggest that you could have been facing health issues possibly. Referring to a physician is required and after a full examination of your reports, a better assessment and treatment could be suggested.

Hmm thankyou but have tried that. Doctors aren’t interested in finding the ‘cause’