Does anyone use famotidine & fexofenadine for suspected MCAS?

[KatyMac]

Does anyone use famotidine & fexofenadine for suspected MCAS?

Do they work?

How do you get the famotidine?

I'm on fexo. It mostly works. I still have symptoms some days but I'm not covered in hives from head to toe and wheezing like crazy anymore.

Do you have a formal diagnosis?

My GP laughed

I do but I had to turn up at my GP with my lips so swollen they'd split open and full body rashes and hives a fair few times. The turning point was when my arm went from completely normal to very red and swollen over the course of a routine appointment for something else because the room was too hot.

It's still only taken seriously by the youngest GP at the practice but as long as they keep prescribing the meds I don't care. I keep a few photos of it at its worst saved on my phone to pull out if they question why I'm on them.

Oh poor you!

Mine seem to be more tummy based although whole body itching and random rashes are a thing

Im not nearly as bad and could be EDS or something else

TBH the list of things I actually have been diagnosed with is rivalling the list of things i definitely dont have