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Geniculate neuralgia

5 replies

Hallelujah2020 · 02/12/2025 20:22

For the last three weeks I’ve been experiencing the below symptoms

All affecting left hand side and not experiencing all things at the same time

left sided headache
left sided eye pressure, only relieved by pushing eye in
Numbness/skin feeling odd specifically under left eye

A week ago I started getting sharp fleeting stabbing pains in left ear. This has progressed to my ear feeling under pressure and burning/stinging pain inside ear which is fleeting but awful

I’ve had eye test, all ok. GP referred me for urgent head MRI but now going private as NHS hospital hasn’t looked at urgent referral after two weeks and said could be another four weeks potentially before they even look at it.

GP has put me on Amytriptyline to take at night which does help but only overnight. I’m already on Codeine & Paracetamol and Gabapentin for fibromyalgia.

Some days things are better than others, today has been awful. No triggers I can see apart from perhaps weather??

Just wondering if could be above? It really does feel something nerve related as that horrible nerve burning pain.

Please if anyone can give support. Will they even see this on a scan?

Plan is to refer me to a headache person depending on scan results.

OP posts:
Hallelujah2020 · 03/12/2025 18:24

Bumping

OP posts:
whatsnewpussycat34 · 04/12/2025 18:09

Shingles? Does the skin feel like sunburn or grazed?

Hallelujah2020 · 04/12/2025 18:45

No

OP posts:
Flannelfeet · 04/12/2025 20:55

Hi there, I also have fibromyalgia and im on co codimol, paracetamol, duloxetine and amyltriptaline at night. I now have neuralgia too 😔 it is so awful, down my left side of jaw, neck and right up behind my ear and into my head and it feels like my left eye is going to pop out, bloody agony, i have tinnitus along with it that drives me up the wall. I had a brain scan a couple of years ago because of it and it came back clear. They told me that fibromyalgia can cause it so no fix apart from upping the amyltriptaline to 30mg a night. Sorry I can't help but I really feel your pain 😞

Hallelujah2020 · 05/12/2025 07:58

I suspect it’ll be a new variation of fibro stuff. In the last six years I’ve had some weird and wonderful stuff going on that’s baffled most doctors so 🤷‍♀️🤷‍♀️

OP posts:
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