Going to go straight into summary! Tenosynovial giant cell tumour at base of little finger, first diagnosed in 2013 and had surgery early 2014 to remove. Returned (same place, as well as a second tumour further up the little finger) and had second surgery august 2016. Had since returned again in finger, at base of finger, and has now also spread to my palm, wrist and possibly forearm (scan next week to check forearm).
Anyone else had any experience of this, especially such an aggressive form? It’s quite rare so I don’t fancy my chances of finding someone else! But wanted to ask here still. Thanks