What is this sensation all over my skin?

[tinkersfig]

For the last 3 months I have had what feels like achy pins and needles anywhere from my feet to
my arms. Today it feels like it’s all over my bum cheeks and in my bum hole!

I’ve been to the drs twice, multiple blood tests and on my last visit she just blankly looked at me and said “I don’t know what it is”.

It’s such a strange feeling, not to touch, but it feels like my nerves are on overdrive under my skin? Kind of like the skin pain when you have the flu.

any ideas?

No, nothing like that. I’m booked in for a private b12 injection next week to see if that helps

@Jellyheadbang have you had any change to your cycle? I’ve had the most painful period ever but it lasted just 2 days and stopped very abruptly.

Maybe it’s hormones that’s causing this?

I don’t really have much of a cycle, I’m on hrt and have mirena coil so I have a very vague idea of when I’m having a ‘period’

How’s your pain @Jellyheadbang

I’ve been back in the antivirals since Saturday and no change to mine so maybe it’s not shingles related. Not sure how much more I can take if this before requesting my entire arse cheek be removed!

Hey 👋 it’s been better today, funny enough I was feeling awful earlier, like all my bug was full pelt again, saw the doctor, zero interest in my weird pain from the gp, looked at me like I’m mad. and tingling but tonight it seems to have calmed a bit, don’t want to speak too soon , but I’m starting to think it’s not shingles related too

I got some magnesium spray this evening, I haven’t used it yet but it might help, depending on what it is, I’ll try it when I go to bed

@Jellyheadbang I do think it’s a lingering viral illness perhaps, because it’s just too coincidental that we both had the flu and then this has been going on for so long.

Maybe if the full virus comes out, our immune system will take more notice of it? I’m completely clutching at straws here lol.

It’s horrible i really hope it stops soon. It’s crazy the things people get post virally !

Just checking in @Jellyheadbang to see if you’re still having the nerve pain?

Yes! It went for about an evening and then came back full pelt along with all my other bug stuff, l slept all of yesterday, felt better , went to work, felt faint and dizzy and vommed then came home, its relentless!
how are you doing?

Omg jelly that’s horrible! Have you been back to the dr?

Touch wood I don’t feel ill at all, just still struggling with this sunburn pain all over my left bum cheek and down my leg. I’m still taking antivirals in the hope it’ll stop because I read it might be due to post hepatic neuropathy caused by a herpes virus (not fully convinced, but it feels like I’m doing something).

no to GP but have appt with my own doctor next week for medication review, I’m going to ask about more support for Immune System, I don’t know what exactly but I’m out of action for most of the year due to one infection or another, I have a connective tissue disorder and really struggle to keep bugs at bay and struggle to shake them off but GPs are so resistant to antibiotics so I end up really ill before they prescribe them.
i lose so much of my life to this, including time off work, it’s a worry as a single mum with a mortgage!

@Jellyheadbang yeah that is terrible. Have you had any investigations in to auto immune diseases?

That’s my next step after the nerve conduction test

No, everything has been so hands off. I had a nerve test on my feet a few years ago, apparently no problems but I read somewhere afterwards it wasn’t actually the right nerve test that I needed.
but I didn’t have the energy to keep chasing and fighting and paying where the NHS won’t support. I feel completely trapped in my body and pain and fatigue and all the new or increased symptoms!
I hope your test goes well , it will be interesting to hear your journey and if there anything else I can try to tap into

Any improvement @Jellyheadbang?

I think I’m going to knock the anti virals on the head tomorrow. They’re doing nothing at all for the paresthesia

Nope! So weird you’re going through it too! I spoke to my own gp this week and she aid she still thinks it’s shingles, despite the antivirals, she said the impact of shingles on the nerves can last way beyond the medication and any rashes, especially if run down.
i have blood tests on Monday to check overall health etc and take it from there.
I don’t think I’ll show as deficient in anything because of my poor immunity and various conditions I take so many supplements I always show as healthy in terms of vits and minerals but she’s going to check white blood cells, infection blah blah and then hopefully look at other ideas like immunology, I hope.
do you have a plan? It’s so horrible, it eased but is back full pelt again , I hate it!?

I hate it too!! It definitely feels shingley.

Mine is always there but it’ll have bursts of energy and shoot round my tailbone, buttock, back of thigh and to my foot.

My dr thinks it’s a back problem but the sensation is just below and on the skin, not muscle or deeper. I’m waiting for a nerve conduction test appointment but not sure that would show any issues?

I’ve googled the shit out of it for months and my only deduction is some sort of herpes or peri menopause. B12 is fine, no back injuries or pain, no infection markers etc.

Im really sick of it now lol.

So effing weird. I’ve been on and off ill for so long, makes me wonder if this might be another lesser known covid symptom? Or just a general rundown thing. There seems to be lots of lingering stuff with lots of people I know, my voice has been slightly robot for months 🤣

@Jellyheadbang I think it’s gone, Well at least 90% gone. I stopped taking the antivirals last Thursday and it seams to have just lessoned to the point where I just get the odd flash of the sensation.

I had a massive patch of it come up under my armpit that spread to my boob that I was sure was going to be shingles, then everything just stopped after a day or so.

Im really hoping that that’s the last of it now, ive been in agony since May!

Oh that’s fab news! I hope that is the end of it for you!
im still the same, it might have dissipated a bit, I mainly notice it in the evening when I stop and when I get into bed, it’s still an irritant. I have doctor again on Monday, hope she has some ideas! I think you’ve had it longer than me, also I was so poorly I forgot to finish my antivirals, I had maybe five left and then forgot all about them, and then lost them , wonder if that would have made a difference?!

I don’t think the antivirals did anything to be honest and it definitely dissipated before it got better. I can still feel some lingering “burning” now and again but definitely better than it was, so I’m not counting my chickens just yet.

If your doctor is anything like mine, she’ll just stare at you blankly 😂.

I think you were right all along, it was an after effect of a flu/covid that sent the nervous system haywire

lol at the blank staring, I’m glad it’s not just me, I hate it, in my head I’m thinking do I really look/ sound completely mad or have they shut down / dissociated and it’s bugged all to do with me?
the last few appointments were so frustrating with them advising me to eat his, drink that, take the other, try this and I said I do all those things all the time and they either reply ‘good/ well done’ or go back to blank stares again 🤣😶‍🌫️

@Jellyheadbang it’s back. Full throttle.

Oh fricken HECK!
im so sorry and disappointed for you 🥹
you were giving me hope too!
do you have any rash or visible signs? I’ve developed lumps and bumps on my chest.

I saw my gp today and she just agreed that its painful and uncomfortable and said it can last a really long time afterwards where the nerves have become inflamed.
no advice or guidance, zero interest in my chest, just acknowledged that its annoying.

she also said my liver something, enzymes (?) are elevated (not the first time, but I guess it explains why I’m so completely exhausted )
plus im itching loads last couple of days!

have you got any more plans to tackle it?
it is so uncomfortable, I'm finding loose clothes seems to make it worse / irritate it and it feels more pronounced at night.

I just spoke to Dr Google with a leading query and they responded thusly:

https://www.google.com/search?q=tingling+body+sensation+after+covid&rlz=1CDGOYI_enGB1103GB1103&hl=en-GB&sourceid=chrome-mobile&ie=UTF-8

👀👀👀 lumps and bumps on your chest? Yeh!! This week I started with what feel like spots on my chest, but they’re skin coloured? As in they don’t look like pimples, but are a bit rough and can pick at them if I have a good dig.

My allodynia is on my lower body though so not sure if it’s anything to do with it. But that would be so weird if we both now have spotty chests!!

I’m going for a nerve condition test on the 4th but I don’t know if that will help with a diagnosis. I’ll have a look at the link you sent