Hi all.
I suffered from this awful condition for a long time before I realised what it was. In the end I had to treat myself because GPs, sexual health clinics and also gynaecologists I saw were clueless. The condition isn't officially recognised by the NHS which I think is appalling and I know there are other people out there that suffered like me.
I wrote to my local MP about my experiences and she has agreed to contact the Department of Heath to try and get something done. I'd like to put together a file of peoples experiences to give to them to try to strengthen the case.
If you have experienced this condition and would be willing to write a summary of what happened to you (particularly with respect to interactions with the NHS) please do contact me by personal message or post on this chat.
Thanks for reading
XXX