Blood cancer

[Superseededsunshine]

i was diagnosed at the end of December 2024 with essential thrombocythaemia (ET) with jak2. Following a bmb I was told it was progressing and I have pre fibrotic myleofibrosis. I have been taking hydroxycarbamide and am under the care of the haematology team.
I have searched the topics but can’t find any threads about this so I wondered if anyone else is struggling with this as it would be great to see how it’s going for others?

@CopperOriolethanks for your post. I am so pleased they agreed to give your husband the drug. I am sure a lot of it does come down to cost, I believe the hydroxy is routine for people over 60! I have an appointment with an mpn specialist in a couple of months so will be interesting to see if I get any different answers.