My 11 month old has just been diagnosed with this on her neck, she has a small swelling but have read some pretty scary stuff on the internet about it and that it cant be treated very easily. We've had an intitial ultrasound and are now waiting for an mri scan to be done to give us a better picture of whats going on. She is very well in herself and is developing normally so hoping that everything will work out. Anyone else had any experiences with this?