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Heart issues since the Phizer Jab

103 replies

namechange301 · 30/01/2024 10:08

Hi guys,

I am at my wits end and wondered if anyone had similar experiences.

I just want to start by saying I am not ant vaccine. I appreciate it has saved a lot of people. I don’t even know if my symptoms were caused by this (I suspect yes though).

At the time of the rollouts, I had the AstraZeneca 1 and 2 jabs and had no symptoms at all. By the time of the 3rd booster jab, the Government were now saying (despite previously saying not to) that people could mix vaccines and the only vaccine offered was the Pfizer jab.

The night I received the Pfizer I experienced a feeling in my heart I have never felt before, like a deep whooshing sensation jolting me awake. It would only happen when I was seconds from falling asleep. Very scary feeling and I was unable to sleep as it kept happening. This went on for weeks and often would be awake until 4-5am. Then sometimes the feeling would go but always return after a few weeks.

I went to the doctor, and they referred me to cardiology. I have been with cardiology for 2 years now and had different tests all apparently fine. The Cardiology waiting lists are long so it is 3-4 months between appointments.

I have had 48 hour monitor fitted, ECG, echo scan, stress test, blood tests, CT stress scan. No Sign of scarring of the heart, infections etc. Only issue they diagnosed was ectopic beats and have recently been prescribed a low dose of bisoprolol.

In the 2 years the issue first happened I feel like the symptoms have evolved. The whooshing feeling in my chest is now a rush of warmth that can even be felt in my throat and face, always fleeting. My feet are burning. I wake up with a jolt and body is shaking involuntarily. I get pins and needles a lot and frequently wake up and my left hand feels so numb it almost feels disjointed. I get chest pain on my worst nights. I cant sleep when it happens. I have shoulder pain but when I told my GP about that they didn’t do any tests and just sent me for physio that hasn’t helped. I do find that if something scares me, that makes me worried or causes me to jump, I know I will have a particularly bad night and the symptoms will be worse for weeks. I have lived with this for over two years with everyone telling me I am fine and nothing wrong with me. I just wish they could feel what I feel in my heart.

Last week I had an online appointment and they basically told me they don’t think any of the issues are caused by my heart so to speak to my doctor so in over two years we have gone full circle. Doctors were the ones who referred me to cardiology in the first place. I understand from their point of view they can only go by the tests which all seem fine. And I have logged a call with my GP so waiting for them to call. But its been so horrible living like this and hey make me feel like I’m lying and I’m not feeling what I am feeling.

Has anyone had anything like this?

Not saying this was caused by the phizer jab and no evidence has been found to suggest this, I know Covid causes heart issues too, but it is a fact the issue began the first night of receiving the jab.

I just don’t know what to do, I cant afford to go private but it is affecting the quality of my life.

Sorry its so long!

OP posts:
SuperDopper · 31/01/2024 14:56

TinkerTiger · 31/01/2024 00:01

Sounds like anxiety.

I agree with this. My mum has very similar episodes in the middle of the night and it’s very much anxiety.

namechange301 · 31/01/2024 14:56

Motnight · 31/01/2024 12:36

And me, Op. I used to wake up at 3 am in the morning with my heart thumping.

I hope that you get to the bottom of it, it sounds awful.

Thank you, Its awful. In the ealy stages it was obviously scary and I ended up in A&E. Now Im used to it but its still scary and what I hate the most is it really affects my sleep.

OP posts:
HangingOver · 31/01/2024 14:57

I have had every single one of your symptoms and they were all caused by stress and anxiety. It's such a vicious cycle as the symptoms make you worry about your health, which in turn makes you more anxious and so on it continues

Same 😔 I've been utterly convinced that my symptoms were hormonal/thyroid/Vitamin deficiency over the years and it's always bloody anxiety which is a relief but also hard to treat! I've had the feet thing and the pins and needles too... You start breathing weirdly without realising. I also used to get a random "falling" sensation that terrified me. All fecking anxiety.

namechange301 · 31/01/2024 15:00

Just to clarify, once I am asleep I tend to be OK. I feel the sensations when my body is at its most relaxed and I am a milli second away from falling asleep. It shudders me awake and repeat the process. I get hot feet with it too especially my left.

OP posts:
CrazyCatLady42 · 31/01/2024 15:01

I had the exact same symptoms after the Pfizer vaccine - went to A&E the palpitations and ectopic beats got so bad.
Referred to cardiologist and diagnosed with a right bundle branch block. I didn't have this pre vaccine as I've had many ECGs pre operatively, including one immediately pre Covid.

Of course it could be unlinked, but I haven't had any more vaccines (this was my second), and won't accept any more.

namechange301 · 31/01/2024 15:03

Gangshow · 31/01/2024 12:44

I feel similar OP, but for me it was after/during lockdown. Ive been diagnosed with high BP and had 48 heart monitoring which found nothing. I've put it down to one/a combination of these things:

  • the vaccine (I had 3 Pfizer)
  • having covid 3-4 times
  • my fitness decreasing (we were clinically extremely vulnerable so afraid to go out for the first 6 months) and never really recovering
  • perimenopause (although HRT hasn't really helped)

Similar to you im not sure what to do.

Thank you, yes I have had Covid twice but the 1st one after my vaccines. The cardiologist i saw last did say he has seen patients experiencing similar brought on by the vaccine but its more common in those who had Covid before which I hadnt to my knowlede. (but then who knows if i had it before!).

OP posts:
namechange301 · 31/01/2024 15:08

Chocolatecoveredshitpig · 31/01/2024 13:28

Hi OP, my story is absolutely identical to yours. I too had 2 AZ vax with no problems at all. Then had a Pfizer booster 2 years ago now. The palpitations started within a couple of days. I have had numerous ECGs, a Holter monitor, (twice) and am waiting for an echo. I've tried HRT, (I'm 49), which made my symptoms worse! The situation now is that they come and go; sometimes I'm free of them for a few weeks and think they're gone, then they come back with a vengeance. GP pretty stumped, has admitted it could be the vaccine and has given me Propranolol. I take magnesium, Vit B complex, Vit D and iron supplements every day, which have made no discernible difference. Sorry I can't be of more help, but there are others in the same boat!

Thank you so much. One of the hardest thing with this if I have it so long and tried to do so much research. Of course the first thing everyone assumes is anxiety which I understand completely but you feel a bit gas lighted. As someone already said on here, you know your body best and whats normal and also the fact in my case the symptoms happened the night of my Phizer. It could be a coicidence and it could be anxiety but i am so long into this process and based on what GPs and Cardiologists are saying I dont think it is. It could also be menapause and I will ask them about that next time I speak to them.

OP posts:
HowNice23 · 31/01/2024 15:09

I hear you op. The night after my first jab I got restless jumpy legs just as I was falling asleep. It lasted for months. Still got odd jumpy twitches. I think our immune systems in some instances were so triggered they attacked our nervous systems in some cases causing permanent damage. I'm not anti Vax either but I know what happened to me. I remember that amazing woman professor who developed the AZ mentioning shed had muscle twitches post jab! My mother had what she thought were fits post jab. Full on body shakes.

namechange301 · 31/01/2024 15:10

PossiblyPertunia · 31/01/2024 14:48

I have had every single one of your symptoms and they were all caused by stress and anxiety. It's such a vicious cycle as the symptoms make you worry about your health, which in turn makes you more anxious and so on it continues.

I recommend asking for CBT but I promise you, you are not dying! I had to tell myself that over and over and over until it sunk in and the feelings went away.

Thank you, I have no doubt that since my symtoms began i have worried about it and think thats what causes the chest pain. But i dont believe it is what causes the inital or main symptoms. If I were months into this I would be more inclined to think that (as I did) but so far down the line, I know what I feel is not normal and I just hope i get answers soon :(

OP posts:
CheshireCat1 · 31/01/2024 15:10

Caffeine, electrolyte deficiencies can cause ectopic beats. I developed them during my three pregnancies, but they soon resolved once I’d given birth, so perhaps they can be related to hormonal changes. I’m immunosuppressed and so far have had 7 Pfizer vaccines with no issues. I hope they resolve soon for you or you get to the bottom of it.

namechange301 · 31/01/2024 15:12

BlindurErBóklausMaður · 31/01/2024 15:00

If you've read up on Malhotra, you'll have read how he's been widely discredited for spreading lies about vaccines.

https://www.theguardian.com/world/2023/jan/13/bbc-cardiologist-aseem-malhotra-links-covid-jabs-to-heart-disease-deaths

Im aware of this as well and i understand the controversy behind what he has said but given my experiences if i was rich i would still be keen to meet him lol!
You turn to desperate measures when youve dealt with something with no end sight for a long time

OP posts:
namechange301 · 31/01/2024 15:15

CrazyCatLady42 · 31/01/2024 15:01

I had the exact same symptoms after the Pfizer vaccine - went to A&E the palpitations and ectopic beats got so bad.
Referred to cardiologist and diagnosed with a right bundle branch block. I didn't have this pre vaccine as I've had many ECGs pre operatively, including one immediately pre Covid.

Of course it could be unlinked, but I haven't had any more vaccines (this was my second), and won't accept any more.

I have never heard of that! I did have a lot of tests though so I think in my case i dont have it. Its a sad situation for many though because vaccines can in rare cases mess your heart but so can having Covid! Like, I am not personally anti vaccine still. I appreciate it saved a lot of people's lives and I am glad my parents had it who are vulnerable. But for me personally, I agree with you, I dont want another one.

OP posts:
Norugratsatall · 31/01/2024 15:15

Trust your instincts OP. It's good news that all the tests have showed your heart is fine but this could well be ANS dysfunction. Very common in people suffering from Long Covid. As a pp said, look into the link between the gut microbiome and the vagus nerve. Also look into stimulation of the parasympathetic nervous system. Your ANS could be stuck in 'fight or flight' at night and you want to be in 'rest and digest'. Breathing exercises can help as can humming and chanting. Similar things have been happening to me at night since March 2020. I absolutely fee your pain and your sense of isolation and 'gas lighting' from the medical professionals. Ive learned to live with my symptoms but they come and go.

namechange301 · 31/01/2024 15:16

HowNice23 · 31/01/2024 15:09

I hear you op. The night after my first jab I got restless jumpy legs just as I was falling asleep. It lasted for months. Still got odd jumpy twitches. I think our immune systems in some instances were so triggered they attacked our nervous systems in some cases causing permanent damage. I'm not anti Vax either but I know what happened to me. I remember that amazing woman professor who developed the AZ mentioning shed had muscle twitches post jab! My mother had what she thought were fits post jab. Full on body shakes.

Its scary isnt it! The weird thing with me is that that was not my initial symptom. During this whole time it began, my symptoms seem to have evolved slightly and the shaking only has started recently.

OP posts:
namechange301 · 31/01/2024 15:19

Norugratsatall · 31/01/2024 15:15

Trust your instincts OP. It's good news that all the tests have showed your heart is fine but this could well be ANS dysfunction. Very common in people suffering from Long Covid. As a pp said, look into the link between the gut microbiome and the vagus nerve. Also look into stimulation of the parasympathetic nervous system. Your ANS could be stuck in 'fight or flight' at night and you want to be in 'rest and digest'. Breathing exercises can help as can humming and chanting. Similar things have been happening to me at night since March 2020. I absolutely fee your pain and your sense of isolation and 'gas lighting' from the medical professionals. Ive learned to live with my symptoms but they come and go.

Thank you for this. I trust my instincts that something happened since the vaccine and I appreciate it is hard to diagnose. I do feel relief in that all my tests have so far been fine. Ive had stress test (i knew that would be fine as I play a sport and never get any symptoms when I play), CT scan, echo, ECR, heart monitors, blood tests! Not heard of ANS dysfunction, i'll have a read.

OP posts:
OMirrorBall · 31/01/2024 15:20

I had two AZs for my first two jabs, then Pfizer for the third and had something similar. My heart rate shot up for a week to over 100 all the time (from 60s), and was especially bad when I was trying to sleep. By the time i saw a GP two weeks later it was measuring normal in the day time, but when I rest or go to sleep it was shooting up again. I have an apple watch now, so can see the changes in heart rate. It happens less and less often, and doctors have been dismissive, so I haven't chased it any further, but every now and then I still have my heart rate double 10 120 for a few minutes just as I'm falling asleep or if I'm sitting watching TV. Too young for peri. I find it so frustrating that people are so eager to shout down anyone who has experienced side-effects as 'anti-vax' and to deny there's any possibility it could be related! Hope you manage to get answers, or that your symptoms improve.

MrsPelligrinoPetrichor · 31/01/2024 15:37

My friends daughter was affected by the jab and couldn't have a booster, kicked off heart issues and when she saw a consultant he said they were seeing lots of people who were in the same boat. My father's heart consultant told him not to have his last booster even though he's CV.

I am very pro vaccine but it's ridiculous to dismiss issues as anxiety. I hope you find a solution OP.

Sunnnybunny72 · 31/01/2024 15:55

I was asked what I was anxious about with palpitations and intermittent tachycardia, then I went into fast AF at 180bpm and ended up in resus. I was reasonably stabilised, then within 48 hours of a Covid booster back in A&E with heart racing uncontrollably.
I ended up having a cardiac ablation.
I'm also perimenopausal, HRT made no difference, neither did cutting our alcohol or caffeine. Nor was I anxious!

Trufflenose · 31/01/2024 15:55

I have nearly every one of your symptoms, down to the numbness (mine is right side) and shaking. I'm also on bisoprolol. Mine started after getting covid in March 2020. I have had loads of tests, seem cardiology etc and they can't find anything wrong.

I think it is ANS dysfunction and anxiety. Trying to problem solve my symptoms all the time makes it so much worse. I feel a lot better if I manage to distract myself and stop worrying. I listen to a guy on YouTube called Dan Buglio, his channel is called Pain Free You. He talks about the brain falsely perceiving danger and therefore creating all of these physical symptoms. He has a lot of success stories of people who had all sorts of physical symptoms recovering.

I get that you're resistant to it being "just" anxiety as the physical symptoms are so clear. But I truly believe it is - it is your body stuck in fight or flight - whether from the vaccine or not - and your brain believes that you're in danger so it keeps giving you the symptoms as a warning signal. It's hard to get your head around but the mind/body connection is so powerful.

Zaranj · 31/01/2024 15:55

Check the symptoms of pericarditis, myocarditis and any other cardiac side effects documented in journal articles. There seems to be a lot of resistance to fully diagnose cardiac c-19 vaccine side effects. Yours is hopefully just a coincidence, as the cardiac issues are a nightmare. Though the general hesitancy to fully diagnose and investigate serious side effects does not instill confidence. I had acute myocarditis and the symptoms were strong (bad heartburn type pain, then into the neck and arms) and the diagnosis clear as I was in hospital. The mild cases were common. See the Basel study.

it is worth getting copies of all your tests and seeing if there are any readings that are not good, by passable (e.g. showing signs of cardiac injury, but not a heart attack).

HowNice23 · 31/01/2024 15:59

namechange301 · 31/01/2024 15:00

Just to clarify, once I am asleep I tend to be OK. I feel the sensations when my body is at its most relaxed and I am a milli second away from falling asleep. It shudders me awake and repeat the process. I get hot feet with it too especially my left.

Yes exactly that! Juuuust as I was about to fall asleep - BOOM! my legs would jerk so much I kicked my partner on more than one occasion. He saw me twitching in my sleep and said I was dripping with sweat, I remember waking up with the sheets absolutely soaking. I also got spasms in my torso. Thankfully they've mostly subsided but the timing was so specific to the jab. Interesting that it seems to be triggered by that deep relaxation - I wonder why that would be?

namechange301 · 31/01/2024 16:02

OMirrorBall · 31/01/2024 15:20

I had two AZs for my first two jabs, then Pfizer for the third and had something similar. My heart rate shot up for a week to over 100 all the time (from 60s), and was especially bad when I was trying to sleep. By the time i saw a GP two weeks later it was measuring normal in the day time, but when I rest or go to sleep it was shooting up again. I have an apple watch now, so can see the changes in heart rate. It happens less and less often, and doctors have been dismissive, so I haven't chased it any further, but every now and then I still have my heart rate double 10 120 for a few minutes just as I'm falling asleep or if I'm sitting watching TV. Too young for peri. I find it so frustrating that people are so eager to shout down anyone who has experienced side-effects as 'anti-vax' and to deny there's any possibility it could be related! Hope you manage to get answers, or that your symptoms improve.

Thank you. Its how I have been feeling. In the past few months I have definitely noticed doctors/cardiologists are less dismissive of it being linked to the vaccine. The first year this just wasnt entertained by them. Now, without me even saying that much about it, they seem a bit more interested.

OP posts:
namechange301 · 31/01/2024 16:06

Trufflenose · 31/01/2024 15:55

I have nearly every one of your symptoms, down to the numbness (mine is right side) and shaking. I'm also on bisoprolol. Mine started after getting covid in March 2020. I have had loads of tests, seem cardiology etc and they can't find anything wrong.

I think it is ANS dysfunction and anxiety. Trying to problem solve my symptoms all the time makes it so much worse. I feel a lot better if I manage to distract myself and stop worrying. I listen to a guy on YouTube called Dan Buglio, his channel is called Pain Free You. He talks about the brain falsely perceiving danger and therefore creating all of these physical symptoms. He has a lot of success stories of people who had all sorts of physical symptoms recovering.

I get that you're resistant to it being "just" anxiety as the physical symptoms are so clear. But I truly believe it is - it is your body stuck in fight or flight - whether from the vaccine or not - and your brain believes that you're in danger so it keeps giving you the symptoms as a warning signal. It's hard to get your head around but the mind/body connection is so powerful.

Thank you, I just dont thnk its anxiety because I wasn't anxious, I was happy, happy to have the booster as had a holiday planned, generally in an ok place. Then the fact it happened the 1st night of my Phizer vaccine (first two Astazeneca when previously we were told we coudnt mix them!) I totally see why people assume it though because of similar symptoms.

OP posts:
Trufflenose · 31/01/2024 16:09

It may not have been caused by anxiety originally - the vaccine could have affected your ANS - but the brain keeps the symptoms going due to ongoing worry about the symptoms.

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