Hand hold while I wait for ambulance for daughter

[StopTheQtipWhenTheresResistance]

Currently waiting for an ambulance for my daughter. Been sent as category 3. She's not been right for a few days now, not eating, not drinking, just laying slumped on her bed. This morning she collapsed in the bathroom and went really pale.

She has a learning disability and complex mental health problems so she can't tell me what is wrong as she doesn't verbally communicate when she feels unwell.

She was in hospital a couple of weeks back due to an infection (see previous threads) so I hope it's nothing to do with that.

I'm so worried, I feel sick.

OP you have my support and I am here to hold your hand. Wishing your daughter a speedy recovery, you have done the right thing by ringing 111 and your daughter is in the best place now. You sound like a wonderful mum

big hugs 💐 x

I agree. I was on a thread once where a woman was being told she didn't need to go to A&E and it could be managed at home. Turned out she had internal bleeding. She could have died if she had listened to those who told her not to bother.

I hope your daughter feels better soon. Look after yourself too xx

It was a guess, I never in a million years would have suspected a chest infection. I just knew something was wrong and she needed to be seen asap.

Exactly. If people want to start a debate about ambulance use - why not start your own thread?

Hope you have good news soon OP

Op your daughter is in the right place and hopefully they will be able to determine the cause and treat appropriately. Thinking of you both x hope tonight you get some sleep and in the morning things improve. X

As for using an ambulance, You rang 111 you explained the situation and the symptoms, the call handler made the decision over the next steps. So therefore OP you weren't the one making the decisions therefore a professional felt that your daughter needed an ambulance. You are in no way culpable for that decision.

For all you keyboard warriors out there (yes you starsparkle whatever you call yourself) you may have the freedom of free speech, but you have the responsibility to ensure what you say is not harmful, harassing, insulting, disrespectful and offensive. This forum is for support, not to knock someone when they are in a vulnerable position.

I saw that too.

I was another one who was told on mumsnet that I couldn't possibly have sepsis, when I was already in hospital.. being treat for sepsis.

I hope your daughter is OK. I understand the worry, I have a severely autistic son and it's frightening when they're ill and can't articulate how they feel.

Here for a hand hold for as long as you need one. 🙏

No it happened over a few hours, I endured it because I was petrified about having to go to hospital if I'm honest. Which sounds daft, but I'm a wuss! (Thankfully I wasn't alone in the house, so that gave me a bit of comfort, just in case an ambulance did have to be called). Then, following that, I must have sat on the loo for 3 hours, feeling like I was going to pass out. I'm hoping you've been/are there at the hospital now, I haven't read the comments beyond seeing your reply to me, so apologies if you've already updated ❤

Maybe you should start your own thread about the difficulties in the NHS? Or at the very least save your suggestions on how the OP should manage her sick child's difficulties until the sick child and her worried mother are at least home from hospital. Now isn't the time (speaking as a health care professional myself).

OP, I'm glad you're in the ED and that they aren't too busy. Wishing your daughter all the best for a swift recovery.

My partner is a paramedic, and he's said to call back and ask for your daughter to be triaged by an advanced clinical practitioner because you're concernered she's been under triaged. They'll arrange a call back.

He feels category 3 isn't right for what you've said and needs reviewing.

A handhold and a hug from me. Your daughter’s in the right place and you did the right thing.
Really hope you can both get some rest and she is feeling better soon.

Bugger off to all the ambulance critics here. Poor parent is worried and asking for support rather than a pile on. Unless you have a disabled child who won't present with 'normal' symptoms then walk away and no need to comment. (Yes it's a public forum but save it for aibu)

Anyway @StopTheQtipWhenTheresResistance you were correct in knowing your daughter and symptoms and the physical issues of taxi. So praise you for sticking to your guns and using the ambulance service. I would after all this is sorted question the attitudes of the paramedics. And the protocols. Yes I know they are so stretched and bloody exhausted (nhs worker here too) but to not even help you mover her is not right.

Hopefully she is being sorted for any infection and constipation issues. Impaction can be life threatening. You are her best advocate so don't ever back down. Obviously do not go in guns blazing but be firm and polite.

Thank you, I appreciate that. We are already in hospital now thankfully. So your DH didn't think I was wasting a paramedics time? (Been told that on this thread)

Hope your daughter gets better soon.

The OP has followed correct protocol for receiving help, if anyone has an issue with the help ( I use that term loosely given they left you to it) then maybe you'd be better directing your upset at the people who make decisions.

No matter how stressed an employee is about their work there's absolutely no need to take it out on the stressed relative of a sick person.

.

ADVOCATING FOR YOUR CHILD IS A WASTE OF NOONE'S TIME!

:)

So glad she is now receiving treatment. Hope she starts feeling better soon. Please ignore the people who don’t know how to be kind and empathetic.

Wrong place.
Start your own thread in the Education section!!

I'm sorry that people are attacking you on here, you really shouldn't have to justify yourself.

My baby had to go into hospital a few weeks ago, when she was only a few days old. The reason was that she had a fever. We had to stay a few days to rule out sepsis. Luckily it wasn't sepsis in the end, most likely just a cold she caught from her older siblings.

I remember how vulnerable I was, I was just crying and crying in the hospital.

So I want to give you a big hug, you did exactly the right thing, you're a wonderful mother looking out for your daughter and she's exactly in the right place.

Take care xx

Bloody hell, people are cruel!

So glad that your daughter is in the right place now and getting the help she needs x

Some of these answers are so annoying to read. Some people don’t have a clue. When it comes to special needs children especially, who can’t communicate well, you are the best judge of when an ambulance is needed, don’t let anyone make you doubt yourself.

I’m sorry I’ve been really horrid reading back my replies . Really hope your daughter improves soon . I don’t no what came over me and I don’t usually get involved in threads so much as this .

I’m not a paramedic - but of course you weren’t! She’s been admitted, had an X-ray, being treated for suspected chest infection… She needed to be there and you did that for her.

Hope you both get some kind of rest tonight and that she starts feeling well soon.

Well done for advocating for your daughter, we have all read horror stories of things being ignored or missed and this is especially true for those with LD.
As an adult nurse I am seeing more patients come into the hospital who have learning difficulties and they are often gaslighted and not listened to.
I was with a patient with LD and her mother the other day and I felt so helpless, the mother was at the end of her tether as no body would listen to her, her daughter was having an autistic meltdown and nobody had the time to listen to them properly. It takes time and the NHS is unable to deal with people who don't fit neatly into a category.

This thread highlights how people turn on others who access the NHS in ways they don't agree with. It is not for us to sit and decide unless you are there in person just be kind. This is exactly what the Tories want, us turning on each other when we should be turning on them.

I hope you daughter improves soon with the antibiotics. Loon after yourself too. I have witnessed how hard this situation is for parents 💐.

Hope she’s feeling better soon OP, you totally did the right thing. I don’t think people realise how hard it is with a young person with complex needs. Life expectancy of people with SEN’s is much lower, not due to the condition they were born with but because many get sick and go undiagnosed due to not being able to access medical care or communicate their needs to others. I mow of a young person who died of sepsis because 111 didn’t feel he was sick enough for an ambulance, he didn’t appear as sick as he was because he was autistic though his parents knew something was seriously wrong. Parents should always be taken seriously, we raised our dc, spent every day with them and we know when something isn’t right.