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Cancer Support Thread 92 - Christmas Happy Hour at the Patience Inn 7pm tonight 🎄

965 replies

LemonDrizzle10 · 24/12/2023 11:59

Old thread nearly full!

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42
NumberTheory · 03/01/2024 06:42

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EachandEveryone · 03/01/2024 10:47

I have an appointment with OH consultant tomorrow face to face now, my boss seems to think it’s irrelevant and she will put a plan in place for me

lucysmam · 03/01/2024 12:20

That would wind me up @EachandEveryone ! How on Earth will she do that, unless she's living inside you & knows you incredibly well 🤔

EachandEveryone · 03/01/2024 18:42

I have to be careful as I ultimately want to retire and return but they need to find a place for me. My fingers are really painful at the joints I wonder if it will ever go?

Tilllly · 03/01/2024 23:40

EachandEveryone · 03/01/2024 10:47

I have an appointment with OH consultant tomorrow face to face now, my boss seems to think it’s irrelevant and she will put a plan in place for me

Well she can knack

TopOfTheCliff · 04/01/2024 18:37

How did it go @EachandEveryone ? Did the OH doc listen to you?

EachandEveryone · 04/01/2024 19:15

yes but too much she doesn’t want me to go back at all!! Easier said than done when you are on your own. I’m paid up to my 95 pension and have started the 2015 so she’s happy to sign me off on tier 2 but I don’t think it will be enough to live on id soon get through it.

she has written a plan for me to go back three hours three times a week etc. I don’t think I’ll ever do a 12 1/2 hour shift again though.

shes asked my boss to get in touch with infection control re going back with a pic line

Tilllly · 04/01/2024 22:06

Isn't tier 2 just 25%?

Are you entitled to PIP?

EachandEveryone · 04/01/2024 22:34

tier 2 I believe pays you up to retirement age tier 1 pays you only as far as you’ve got but doesn’t penalise for taking it early.

i mean it’s not enough to live on in London either way. Tier 2 should take my 2015 pension up to 67 and add it on to my 95 pension. I think. I’ve been full time with no breaks which is why I want the 95 out now. If I die it won’t go to anyone no partner no children but I will have to pay someone off to take my cats 😀😀 I only went a way for a couple of nights and she’s peed all over the guest bed. God help us.

ultimately I want the 94 and to go back 22 hours.

EachandEveryone · 04/01/2024 22:34

I get PIP I was lucky with that after what I’ve been reading on here

Tilllly · 04/01/2024 23:07

What would she do if you went for a week? 🐈 💩

If you took the pension, would you be eligible for other benefits that are means assessed?

Tilllly · 04/01/2024 23:08

EachandEveryone · 04/01/2024 22:34

I get PIP I was lucky with that after what I’ve been reading on here

??

I've missed that

nappybrained · 04/01/2024 23:10

@lucysmam
I was asked to have blood tests and medical review before a repeat. They wouldn't prescribe!
This time I was just asking for vaginal moisturisers and canesten!!!!
Hmmm... No I don't think so..typed in last week's BT results, BP,O2 sats for the crack!
They rang me too say they now had my results don't worry. How kind, I sent them I know! I could have typed in any set of normal results am sure which also made me giggle!!

I suppose they wanted to check I was hydrating enough lol!!!!

EachandEveryone · 05/01/2024 00:02

Tilllly · 04/01/2024 23:08

??

I've missed that

I just meant the horrific things on here about being refused PIP and having to appeal. I got mine within weeks. Yes i think PIP is the only benefit that comes ant means tested. I wouldn’t be entitled to anything as soon as the lump sum hit my account so I’d have to live of it. Wouldn’t last that long really. It burns a hole in my pocket as my mother would say.

KentishMama · 05/01/2024 11:44

How are you all doing?

@EachandEveryone OH always puzzles me... The idea that anyone could understand how you're feeling well enough to make a plan is just... odd. It should be self directed, with a legal right to determine a return to work flexibly for X period of time. My work just introduced yet another new parental leave benefit: when you return to work after mat/ pat leave, you only work 50% of your hours for the first 30 days, on full pay. I wish they offered the same to people returning after long term illness! (This makes me think I need to actually fire off an email to HR to complain that they have amazing parental benefits and nothing for people like me....)

@lucysmam You made me laugh too! However, I'm now looking at a list of appointments that I need to chase up, and I'm breaking out in cold sweat. Example: I know I have some sort of follow-up at a Kings College Hospital on 29 January. I've asked them to confirm what this is, and the time, 3 times now. Each time, it's "the letter should come through shortly" as an answer. That doesn't help. Depending on timing etc DH might need to take the day off to take me, and he can't just go that at zero notice!

My update: I'm feeling a bit more human. Planning holidays because the emptiness of my 2024 wall planner is getting to me. Current plan: a week on Majorca before Easter, and a couple of weeks on Northern Italy (Lake Garda & South Tyrol) in July. I also want to rent a Gîte in Normandy and stay there with my best friends and kids sometime in May, but just realised that one friend hasn't got passports for their kids, and prob can't afford to get them done... I need a UK based plan B.
Also: I left the house yesterday. Major news. Drove to the shops, picked up some stuff, came home. Almost felt normal!

EachandEveryone · 05/01/2024 12:06

Does anyone know if going to appointments counts as a day off or sick day? I don’t really want to use all my days off or sick days. My boss is ringing me at 1300 to tell me the same lan!

EachandEveryone · 05/01/2024 12:08

Plan not Ian

EachandEveryone · 05/01/2024 14:07

Not great apparently I’m paid as a clinical nurse and that’s the roll I have to go back to

tam23 · 05/01/2024 15:20

@EachandEveryone Normally medical appointments are different to sick days and annual leave. Could be paid or unpaid depending on your employer. Hope this helps.

lucysmam · 05/01/2024 16:02

@EachandEveryone my appointments are separate to sick/days off days. I do try to re-arrange for non working times though - I hate walking in later than everyone else & not knowing what's going on (not that my classroom colleagues involve me in much tbh - I feel like a spare part a lot of the time 🤷‍♀️).

NameGames · 05/01/2024 18:31

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RawBloomers · 06/01/2024 01:00

Hi all. Looking to join your chat.

I was diagnosed with breast cancer 3 weeks ago. I’m stage 1b, non-aggressive so outlook is good but my aunt died of breast cancer so there’s a niggling bit of my brain that’s convinced I will too. I’m also not looking forward to the treatment nor navigating that and the uncertainty with my teen kids.

Tilllly · 06/01/2024 06:15

@RawBloomers
Welcome - seems wrong to welcome you here so hopefully you know what I mean

I had BC caught good and early - outcomes are very good
Do you have a treatment plan yet?

Teens... hard work anyway, navigating through a cancer diagnosis on top of that! How old are they?

RawBloomers · 06/01/2024 09:54

Tilllly · 06/01/2024 06:15

@RawBloomers
Welcome - seems wrong to welcome you here so hopefully you know what I mean

I had BC caught good and early - outcomes are very good
Do you have a treatment plan yet?

Teens... hard work anyway, navigating through a cancer diagnosis on top of that! How old are they?

I have a treatment plan. I’m currently in the US so might be different than NHS. Start 5 months of Chemo next week. Lumpectomy and radiation after. Local hospital system has a comprehensive treatment program with good outcomes so I’m not jumping around looking for different providers and getting them to talk to each other. So far it’s been pretty smooth, though there’s still the insurance company to factor into everything.

Kids are 14yr old twins. They’re great kids generally, but we’ve just moved to get them into a decent state High school, so they’ve already had a lot of stress and are trying to fit in and make new friends. Now I fear I’m going to have to say no to some after-school clubs they want to do because I won’t be up for all the driving.

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