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Good Questions to ask ref PoTS

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Verbena17 · 17/10/2023 13:43

Hi
DS 18 is seeing a cardio consultant this week and was referred by GP due to large difference in heart rate sitting to standing (he’s regularly monitored due to ARFID and low weight for height and tachycardic heart rate).

My DS, me and GP think that due to his ongoing symptoms, he might have PoTS but in her referral letter, she didn’t actually suggest that - just sent in the change in sit/stand HR.

Any good questions I can ask to get the most out of the consultation tomorrow?

I posted last week but nobody replied yet- with regards his Intraventricular Conduction Delay. Wondering if I should be asking for a cardiac MRI? He’s had a 14 day Zio Patch monitor last Xmas and short ECG just before that which showed up the conduction delay issue. Cardiologist then didn’t seem concerned. But with ongoing symptoms, it seems a cardiac MRI might be worthwhile?

Any suggestions /info would be gratefully received. Appointment is tomorrow.

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