Hi,
I thought I had posted this before, towards start of the year but when I googled I don’t think I did.
Has anybody got /know someone with Intraventricular Conduction Delay (report says ‘minor’)?
DS 18 has had 14 day ziopatch last December but is still having heart pain (had it for 3 hours then other night without telling me) and breathless episodes after exertion.
His heart rate increases a lot (over 30bpm) when moving from sitting to standing and the GP has referred him (but we’re not waiting until next March so going private).
We have put together his dizzy spells, black /purple feet, heart pain, breathlessness together and thought he might have PoTS. Even the GP suggested this.
Does anyone think this could sound like PoTS and anybody have Intraventricular Conduction Defect and what have you been told about it? All the stuff I find when I google, says there’s a 2 -3 x higher chance of death from heart failure. This is worrying but the consultant who saw him last Xmas and who saw the Zio patch results seemed to think it wasn’t a concern.