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Al Amyloidosis

2 replies

letstal · 16/07/2023 21:34

Hi, does anyone know anything about AL Amyloidosis or experienced it?

OP posts:
Runningover · 12/08/2023 22:22

Hi- sorry you've had no reply.
My mum had AL amyloidosis. There's an amyloidosis UK Facebook group which is very supportive.

FireAndHemlock · 04/12/2023 16:31

Hi, just saw this. Yes, a family member has it. Very much at the beginning of the journey, caught early. Most of the UK support outside the hospitals seems to be folded in with the myeloma groups now.

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