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Anyone had loop diathermy on the cervix more than once? Don't read if squeamish.

63 replies

MrsCarrot · 21/02/2008 09:59

I thought that was it when I had it four years ago but I was told my smear was borderline six months ago and had another recently and was called in for colposcopy (looking with microscope) yesterday.

I am told to undress and he will examine to see if a biopsy is necessary. Then he sticks his head round the curtain and says, actually I've just read the report properly and it is very severe. We will treat today. I burst into tears because last time it was really horrible and I was sure it wouldn't be that bad as it was only borderline six months ago. He just kept saying, no it is glandular. I said what is that, more likely to be cancerous, he said (crossly) no, glandular. Wtf does that mean anyway? The atmosphere in the room was a bit tense and I asked the nurse if there was a female gynocologist (sp?) and she said no, unfortunately. Then he breezes in again and I am really relishing the prospect of this irritable man sticking four needles and a hot wire up me.

Then he has a little bit of an argument with the nurse about iodene, she says we don't use iodene and he says just give me the iodene and she goes off, and then he says I will leave as there is no chaperone so they both go and I am there with my legs in the air, thinking what idiot person thought it would make this better for women if they stuck a Jack Vettriano poster on the ceiling. Then the nurse returns and says where is the doctor, and he appears again and says he left as there was no chaperone and looked at me said 'see what I have to put up with' and the nurse looks at me and rolls her eyes and we laugh briefly.

Then, the fourth needle hit some sort of nerve and I screamed and he asked my name and said look, do you want to talk to your husband about having a general and I said aren't you done now and he said no, you screamed so I took out the needle. I said, but you've put in loads of needles and he said we need four, shall I carry on?

Good lord, I wanted to kick the man in the face, I know its his job but a little compassion please and the best bit, just before he starts to cut away the abnormality, I am shaking so much he says, 'MrsCarrot, you have to relax, if you are leaping around all over the place I might burn the vagina'. That kind of statement is not condusive to relaxation in my book but I stayed still so it worked, though it took a lot of concentration when he said there might be a little smoke as he seals the area.

Then, thats it, he says give this letter to your doctor and don't have sex for a month. No explanation of what it means, why it came back, whether it is likely to happen again and why it got so bad in six months. I have asked a couple of people I know have had this and they both said there wasn't really any ddiscussion, more a quick, 'it is bad, we will cut it out'.

Of course I am grateful there is a screening programme and treatment to avoid cancer but surely a little more explanation wouldn't go amiss. I have looked it up a bit and I saw colposcopy documents from other hospitals that seemed much more sympathetic, Leeds, for eg, has a room where you get a cup of tea and
a seat for fifteen minutes. These small things make a difference I think.

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cupsoftea · 21/02/2008 10:02

how awful for you MrsC - can you go back & get answers to your questions - it's awful how you were treated.

fransmom · 21/02/2008 10:06

mrscarrot i am sorry you had such a bad experience. (((((((((((((((((((((mrscarrot)))))))))))))
i also had a loop excision with diathermy, to remove some pre-cancerous cells, about 6 years ago now i think. i had it under general anaesthetic. a cup of tea afterwards and a biscuit isn't too much to ask is it?! i didn't like the doc i saw originally so like you i asked to see someone else. i wa slucky and th elady i saw was so helpful and took the time to explain everything.

((((((((((((((mrscarrot))))))))))))))

neolara · 21/02/2008 10:06

That is absolutely shocking. Poor you. When I had colposcopy treatment, a very knowledgeable nurse practitioner met with me for about twenty minutes before the procedure to talk about what my results meant, what the treatment was and what to expect afterwards. It was also possible to ring her up afterwards and talk to her about any concerns I had.

You may not feel like it, but a letter to the hospital outlining your concerns might be a way of getting them to provide a better treatment for others in the future.

MrsCarrot · 21/02/2008 10:10

yes, I am thinking of writing a letter. It wasn't much better last time tbh and I haven't been given any contact to ask questions. I will go to my GP but obviously they are not the specialist.

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Tatties · 21/02/2008 11:01

Oh MrsC that sounds horrendous. Just shocking treatment. HTF can they think that is acceptable? I am so sorry you had to go through that

How do you feel today? Are you in any discomfort?

ladytophamhatt · 21/02/2008 11:09

Good GOD MrsC.

You poor thing....I'm amazed you didn't kick the living daylights out of him, a kick in the face would have been getting off lightly!!

I hope you complain.

MrsCarrot · 21/02/2008 11:12

I feel alright today but a bit tired, thanks. It was very painful last night when the local anesthetic wore off.

Thing is, it has to be done, they are saving lives by doing it, around 40% of severe dyskariosis turns to invasive cancer according to stats. I just think the way it is done, so quickly without explanation or any allaying of anxiety is poor really. The nurse was lovely though, really supportive so maybe they think thats enough but I wanted to understand what was happening and I don't. I am worried.

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MrsCarrot · 21/02/2008 11:13

I was tempted at points, LTH.

When he said, 'see what I have to put up with' about the lovely nurse

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Boco · 21/02/2008 11:31

Poor you MrsC, what a grim experience. I think this seems to be a general problem when you get lumbered with a doctor with poor social skills - they need some intensive re training in basic human feelings don't they. My friend has just been diagnosed with skin cancer and he was saying the same, the surgeon he saw was terrible, couldn't relate to him at all, he was dismissive and rude and just didn't want to answer any questions.

When dd2 had MRI scan we found the neurologist then pretty mad - he was so flippant about finding an abnormality on the scan and seemed put out at us wanting some kind of explanation.

Is rubbish. Write, it might help, and it'll help you feel a bit more in control of a crappy situation.

I think it must be my turn to send you chocolate xxx

wardrobemistress · 21/02/2008 12:15

I had a very similar experience a few years ago.I also ended up with an infection to add insult to injury.
The man was/is a bastard and I had a stand up row with a mw in clinic because I refused to see him (he was standing in for my ob)
Whenever his name comes up,I hear more horror stories.
Is yours Mr B I wonder?

MrsCarrot · 21/02/2008 13:18

I have worried about infection this time actually, it didn't occur to me before but I woke up feeling hot and I was a bit concerned. I feel ok now though. It wasn't a Mr B, wardrobemistress, this time or last time, but they definitely sound of an ilk.

Boco - That sounds awful with the scan. My friend was bowel cancer has just complained as she had one doctor who so coldly told her about the side effects of chemo before dropping in that there was also a nodule on the lung. Just that, no further explanation. She wasn't the first to complain about him either. Lack of empathy is rampant it seems.

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Kewcumber · 21/02/2008 13:30

sounds hideous.

No particualr need to worry - some people do need to have it done more than once. My SIl had it done twice. My cell changes were too advances even for loop diathermy and had to have cone biopsy instead under general but have eben fine since. Lack of explanation is rubbish - you might want to speak to your GP about the results to out your mind at rest.

(are you sure he didn't say "granular"?)

expatinscotland · 21/02/2008 13:37

I'd complain in writing.

You were mistreated horribly.

I've had loop treatment and there were only two needles and then I felt nothing.

FrayedKnot · 21/02/2008 14:21

MrsC how dreadful! Poor you, it really is shocking, and I would definitely write.

And make sure your GP knows how unhappy you were.

Was it definitely a consultant you saw? Could it have been Mr C? I used to see Mr W for my various problems and he was always lovely. The two women also fine. But maybe they don;t all do colposcopies.

FrannyandZooey · 21/02/2008 14:37

god almighty
very sorry to read this - what an unpleasant experience. I know many doctors are not known for their empathy, but really, it is not TOO much of a stretch to imagine that someone having sharp and hot things inserted inside their genitalia might just be feeling slightly wobbly

ffs

MAMAZON · 21/02/2008 14:41

I have had this treatment a couple of times and yes it is awful.

Your dr sounds like an arse MrsC

filthymindedvixen · 21/02/2008 15:09

MrsC, you poor thing, what an horrific experience...

There are some twuntish male gps out there. Deffo write a letter at some point to cpomplain.

Many years ago I had an abnormal smear and my male gp made no attempt to explain what my results actually meant - I was 18 and was convinced he was saying I had cancerous cells (it turned out no, nothing like) but I didn't establish this until 6 very stressful months later when they sent me for some sort of scan where the hosptial could not have been more gentle or helpful.
My gp read me a lecture about my sex life, saying it was linked to many partners at a young age (I had not had many partners or started particularly young!) then said it was my fault as I was a smoker (I was not!)

Oh if I had known then what I know now....

lullabyloo · 21/02/2008 15:18

oh you poor,poor lovely
I am so sorry you were treated so disgustingly

Mymeems · 21/02/2008 15:22

God how awful for you MrsC, I had to have this done at the end of last year and the Dr and nurse couldn't have been nicer to me. I, too, had uncontrollable shakes and actually almost blacked out at one point. They were very understanding and pointed out that it was a very vulernable position to be in..exacerbated by the fact that the last time I'd been in that postion was due to complications at DS's birth. What a shit to have told you off! I know in our hospital there are procedures and organisations to help with making complaints..a patient liaison service. Maybe something like this where you are?

MrsCarrot · 21/02/2008 16:12

Thanks for kind words. I will see my (female) gp tomorrow and talk to her about it, get advice on a letter etc.

Kewcumber - I guess it could have been granular not glandular, he didn't have an english accent but it was fairly clear and I could have sworn it was that. Neither mean anything to me though.

Myneems - the shakes are dreaful aren't they, the nurse said it was partly the local anesthetic causing it as well as my anxiety. It was such an awful feeling, trying to control it in case you moved and got burnt.

I don't suppose this can be a pleasant experience but explanations, compassion and understanding go a long towards alleviating someone's fear. I am going to be dreading the next few smears results now, I think its every six months for a while.

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UnderRated · 21/02/2008 19:04

Mrs C - please do write a letter. This is terrible. I am outraged.

I hope your GP is able to give you a bit of guidance and support as to what everything means.

Hope it feels better soon.

TooTicky · 21/02/2008 19:24

My god MrsC, what a horrid thing to happen. Wish you'd had somebody there to back you up (and kick the grotty man).

2happy · 21/02/2008 19:25

Scuse my french but fuckin 'ell MrsC!!

There's a MNer whose OH reads smear tests and can I'm sure tell you about what 'glandular' changes are. She (or at least her OH via her ) was the one who told me what I alluded to on the PN thread. That bfeeding alters the cervical cells and makes a borderline result much more likely. I'm assuming () that from the fact he said it was "very severe" (way to break the news!) this doesn't apply to you in fact. So I had a borderline result after ds1 was born, would have been recalled but got pg with ds2. Now been called for a repeat 3 () times but reluctant to go because it'll be borderline and I'll get referred for colposcopy and I wasn't keen on that before I read this thread! But I don't know when I'll stop bfeeding ds2 so was considering just biting the bullet and going.... after reading this thread, starting to have second thoughts!!

alysonpeaches · 21/02/2008 19:33

Im sorry to hear about your experience, but in a way I wish I hadnt read it.

I had mine done about 15 years ago, then had a whole lot of other gynae problems, had an ablation then all was quiet until recently. Ive been re-referred and I go for my appointment tomorrow. At my GPs, one doc said the referral was for colposcopy, they other said it was a general gynae referral. So I dont know what to expect.

I know that first appointments these days arent just for talking though. I was taken by surprise before my ablation when they sampled my womb tissue using a pipette. No warning, no anaesthesia. and it was horrid.

Can you all keep your fingers (or should it be legs?) crossed for me tomorrow?

Hope you are OK now MrsCarrot.

MrsCarrot · 21/02/2008 19:35

Oh, no, don't let me put you off, 2happy, I'm sure this isn't always the case, as some women on here have said, theirs was fine, or at least the doctor was supportive.

I am feeling a bit odd about the breastfeeding thing though. I find it strange that my result was borderline at the beginning of the appointment, and in my letter, and then while I changed it turned to severe. Not that I think he made it up obviously, he just didn't explain how that could have happened. He hadn't read it properly he said, and that the initial smear must have been wrong. Seems strange.

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