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Anyone had loop diathermy on the cervix more than once? Don't read if squeamish.

63 replies

MrsCarrot · 21/02/2008 09:59

I thought that was it when I had it four years ago but I was told my smear was borderline six months ago and had another recently and was called in for colposcopy (looking with microscope) yesterday.

I am told to undress and he will examine to see if a biopsy is necessary. Then he sticks his head round the curtain and says, actually I've just read the report properly and it is very severe. We will treat today. I burst into tears because last time it was really horrible and I was sure it wouldn't be that bad as it was only borderline six months ago. He just kept saying, no it is glandular. I said what is that, more likely to be cancerous, he said (crossly) no, glandular. Wtf does that mean anyway? The atmosphere in the room was a bit tense and I asked the nurse if there was a female gynocologist (sp?) and she said no, unfortunately. Then he breezes in again and I am really relishing the prospect of this irritable man sticking four needles and a hot wire up me.

Then he has a little bit of an argument with the nurse about iodene, she says we don't use iodene and he says just give me the iodene and she goes off, and then he says I will leave as there is no chaperone so they both go and I am there with my legs in the air, thinking what idiot person thought it would make this better for women if they stuck a Jack Vettriano poster on the ceiling. Then the nurse returns and says where is the doctor, and he appears again and says he left as there was no chaperone and looked at me said 'see what I have to put up with' and the nurse looks at me and rolls her eyes and we laugh briefly.

Then, the fourth needle hit some sort of nerve and I screamed and he asked my name and said look, do you want to talk to your husband about having a general and I said aren't you done now and he said no, you screamed so I took out the needle. I said, but you've put in loads of needles and he said we need four, shall I carry on?

Good lord, I wanted to kick the man in the face, I know its his job but a little compassion please and the best bit, just before he starts to cut away the abnormality, I am shaking so much he says, 'MrsCarrot, you have to relax, if you are leaping around all over the place I might burn the vagina'. That kind of statement is not condusive to relaxation in my book but I stayed still so it worked, though it took a lot of concentration when he said there might be a little smoke as he seals the area.

Then, thats it, he says give this letter to your doctor and don't have sex for a month. No explanation of what it means, why it came back, whether it is likely to happen again and why it got so bad in six months. I have asked a couple of people I know have had this and they both said there wasn't really any ddiscussion, more a quick, 'it is bad, we will cut it out'.

Of course I am grateful there is a screening programme and treatment to avoid cancer but surely a little more explanation wouldn't go amiss. I have looked it up a bit and I saw colposcopy documents from other hospitals that seemed much more sympathetic, Leeds, for eg, has a room where you get a cup of tea and
a seat for fifteen minutes. These small things make a difference I think.

OP posts:
alysonpeaches · 21/02/2008 19:37

P>S> I thought about granular (granular tissue changes) when you said glandular just like another poster did. I cant explain what they are, but at one time I used to type in smear test results into a computer/do referral letters and remember the expression granular tissue changes.

You could google it.

MrsCarrot · 21/02/2008 19:40

Alysonpeaches - sorry to worry you, that wasn't my intention woth this thread, I hadn't really thought about people reading who are about to have this and of course, in hindsight, that is a bit thoughtless.

It is perfectly possible to just have a colposcopy and for them to say it doesn't look abnormal, initially they said that might be the case to me, and even if you have a biopsy, this is meant to be fairly painless, it's the size of a pinhead I think. The nurse said that I was the only person so far yesterday to have a 'see and treat^ and I left there at 4pm so you will probably be fine. Good luck.

OP posts:
2happy · 21/02/2008 19:56

Have done some internet surfing...

Glandular lesions; "There are cells showing cytologic changes suggestive of a dysplastic
glandular lesion that are quantitatively or qualitatively insufficient for a
definitive interpretation. Where possible, these are qualified as to whether
the abnormal cells are of endocervical or endometrial origin." Not sure how much that helps

Also some places suggest that you can use 3 weeks of topical oestrogen therapy before a smear or colposcopy to sort of negate the effects of the lack of oestrogen that breastfeeding causes.

MrsCarrot · 21/02/2008 20:08

so you can take something before a smear to avoid a 'false' abnormal result?

OP posts:
2happy · 21/02/2008 20:11

Well you know how bfeeding makes you, er, drier down below? Is because of a relative lack of oestrogen. And (if my quick internet skim read is right...) this also affects smear results. So you can put oestrogen in to reduce the chances of a falsely abnormal result, but if you actually had pre-cancerous changes it wouldn't affect that result.

MrsCarrot · 21/02/2008 20:17

well, I guess I will know when the results come back. The large pice removed will be sent off as a biopsy the same as a small punch one. If it comes back as not severely dyskariotic then maybe it was the oestrogen thing.

OP posts:
2happy · 21/02/2008 20:20

Also said you can use oestrogen cream to reduce inflammation if the rude twat kind chappy doing the colposcopy did burn you - if you're still sore when you see your GP may be worth an ask x

ara · 21/02/2008 20:32

MrsC, I had this too (not under general anaesthetic) - it was bad enough WITH a cup of tea and a sit down afterwards. It made me very wobbly - I was shaking like a leaf during the procedure and for a good while after they'd finished with me. I think if i were you I would write a note to the hospital management pointing out that a bit of consideration shouldn't be too much to ask!

deepbreath · 21/02/2008 22:01

MrsCarrot, I'm so sorry to hear of the awful way you were treated.

I used to work in the cytology lab. years ago, and we had to visit a colposcopy clinic as part of our training (even though we would only ever see and report smears/cell samples, and not patients), but I know how it should be done.

There IS such a thing as cervical glandular cell changes, you didn't mis-hear it. It is called CGIN/CIGN. This is slightly different to squamous cell dyskaryosis (CIN), as it affects a bit further up into the cervix, through the cervical os. Even though your gynaecologist wasn't very pleasant, he did the right thing by treating you straight away, as this type of cell change can progress faster than other types.

With all abnormal smears, the accuracy of the report depends on whether all of the abnormal area was sampled when the smear was taken... this is especially difficult with CGIN, as a lesion may be further into the cervix than is usually sampled.

As you know, hormones can affect how a smear looks too, as can mechanical damage to the cervix when you give birth. They will be able to get a better idea of what it is from the biopsy.

MrsCarrot · 22/02/2008 12:34

Thanks, deepbreath, that's very helpful. I saw my GP this morning and she didn't know anything about glandular at all so that wasn't much use. It also said on her screen that it was severe so maybe thats why it progressed so fast. She said I would be very unlucky to get it more than twice but we shall see!

OP posts:
VanillaPumpkin · 22/02/2008 12:43

Poor you MrsC. Sounds ghastly!

2Happy - Just to say I had an abnormal results smear and went back six month later and it was clear so it doesn't necessarily mean you will have another abnormal result and need a colposcopy even if you are breastfeeding. I have my next six month recall booked for Monday. Get it booked, go on, you know you ought to.

2happy · 22/02/2008 14:11

Thanks VP. I promise I will book it. eventually... ((And I'm cooking the first recipe out of the book you recommended as we speak ))

VanillaPumpkin · 22/02/2008 18:12

Oooh which one? Hope you like the book!

Sorry for frivolous hijack Mrs C. How are you about things at the moment? I truly think you have been 'cared for' dreadfully .

2happy · 23/02/2008 14:09

Saffron cod risotto. Was delish, though the rice needed a little longer than the recipe.

As you were, MrsC

bodiddly · 23/02/2008 14:33

I've got my first appointment for a colposcopy in April .. out of interest if they want to treat something then and there can you ask for a general or do you have to go ahead under local?

Mymeems · 23/02/2008 20:29

At my colposcopy they said I didn't have to have the treatment then and there so I would assume that if you say you want a general they re-book you for another day? I just opted for the local to get it over and done with. It's not pleasant, but it's do-able IYSWIM

glucose · 23/02/2008 20:43

Go to your GP and ask to be referred somewhere else. There are so many things wrong with everything in your OP that you need to find treatment somewhere you have confidence in the service you are getting. You must get the best treatment for this you may find
www.jotrust.co.uk/s.
helpful

meglet · 23/02/2008 20:46

mrscarrot you have had a horrid experience and a shitty doctor. I'd complain if I were you.

I have had 2 LETZ treatments but under general anaesthetic (even though they were very urgent due to CIN3, i think thats the glanduar thing?). I cannot imagine how you must feel.

hugs and chocolate. x

meglet · 23/02/2008 20:49

bodiddly I got a general as I went to pieces just having a smear, tranquilisers for the coloposcopy. The consultant told me that he was happy for me to have a general for the LETZ (probably quite relieved he'd be in peace to get on with it!). I was only out for 20 mins and perked up straight afterwards.

CoteDAzur · 23/02/2008 20:54

My leep excision was also under general anesthetic and in a hospital. My understanding was that this was because doctor did not want me to move At All.

As deepbreath said, your doctor must have sent the piece he cut out for a biopsy. The result of that biopsy is very important, because only then can the doctor see if all of the affected tissue was successfully taken out. You need to follow up with your doctor and get the results of that biopsy.

If the previous operation did not take out all the bad tissue, that may be why you needed another operation (and an urgent one) just four years later.

wiggleit · 24/02/2008 16:20

God, i'm soooo worried! I'm going for my third colposcopy on tues. Had one about 18mnths ago and had that loop wotsit treatment due to CIN3. I was shell-shocked at the time because i'd only gone for what i thought was a check-up, only to have this Dr announce i'd got some moderate changes that he was going to remove there and then. I was on my own and burst into tears! The nurse and sister were fab. Thank God for them! I also got a cuppa afterwards. The biopsy came back ok and have since had two smears at 6mnthly intervals. But recently have been having the same symptoms as before and have been referred back to the hospital as a matter of urgency, which i am scared about. I've had myself dead and buried several times!! I keep thinking that they must have missed something on the last tests and that the pre-cancerous cells have now turned cancerous! SOOOO scared! I go on Tuesday. My husband is coming with me this time for support. He wanted to come last time but i said i'd be ok as it was only a check-up, little did i know what was in store for me! Also, the actual needles made me go really peculiar, did anyone else go funny? Thought i was going to pass out. Awful! Think i will be worse this time because i know what to expect. But i do agree that the Dr's could do with a crash course in tact and empathy!

VanillaPumpkin · 24/02/2008 17:18

Oh wiggleit, poor you . It is all so personal and invasive isn't it? I am really not looking forward to my smear from the revealing all pov so you must be so very anxious . This is why we have screening though! Wishing you lots of luck. Be brave .

How are you MrsC?

wiggleit · 24/02/2008 18:29

Thanx VanillaPumpkin. xx

MrsCarrot · 25/02/2008 11:15

Sorry - missed these messages as I've been away for the weekend.

vanilla pumpkin- I am feeling better physically, thanks, though a bit uncomfortable still, to be expected I guess. I still feel worried though. I think I will until the biopsy results come back. I've looked so much up on the internet that its all whizzing round in my head now. Why it can't be simply explained is beyond me. My GP doesn't know what glandular means so thats helpful.

Wiggleit - good luck for tomorrow. Sorry if this thread has made you anxious. Hopefully it will be better if you know what to expect? Make sure they explain things too.

Boddilet - they said I could have a general if I was that anxious but that it was extremely rare in that hospital. Then he mentioned it again when I couldn't stop my legs shaking but I managed to somehow.
Seems like a few people have had generals on this thread then. I think I would be tempted next time. Listen to me - hopefully there won't be a next time.

OP posts:
wiggleit · 25/02/2008 19:25

Hi everyone!

MrsCarrot - This thread hasn't made me anxious, was anxious before!! Trying not to worry too much and console myself with the fact that i'm being seen quickly so hopefully if there is anything untoward then it's in it's early stages but can't help thinking they might have missed something last time. (I've always been a pessamist) (sp?) Also made the mistake of looking on the net last night and frightening myself even more! I had CIN3 last time and that is severe. didn't know that. My Dr never explained the results. Now am thinking if they did miss something then it could have spread?! Wot am i like???? Sorry to be so negative...just read the start of my msg and how i was saying i was trying not to worry too much! Yeah right!! Can't help it.
How is everyone? xx