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Anyone had loop diathermy on the cervix more than once? Don't read if squeamish.

63 replies

MrsCarrot · 21/02/2008 09:59

I thought that was it when I had it four years ago but I was told my smear was borderline six months ago and had another recently and was called in for colposcopy (looking with microscope) yesterday.

I am told to undress and he will examine to see if a biopsy is necessary. Then he sticks his head round the curtain and says, actually I've just read the report properly and it is very severe. We will treat today. I burst into tears because last time it was really horrible and I was sure it wouldn't be that bad as it was only borderline six months ago. He just kept saying, no it is glandular. I said what is that, more likely to be cancerous, he said (crossly) no, glandular. Wtf does that mean anyway? The atmosphere in the room was a bit tense and I asked the nurse if there was a female gynocologist (sp?) and she said no, unfortunately. Then he breezes in again and I am really relishing the prospect of this irritable man sticking four needles and a hot wire up me.

Then he has a little bit of an argument with the nurse about iodene, she says we don't use iodene and he says just give me the iodene and she goes off, and then he says I will leave as there is no chaperone so they both go and I am there with my legs in the air, thinking what idiot person thought it would make this better for women if they stuck a Jack Vettriano poster on the ceiling. Then the nurse returns and says where is the doctor, and he appears again and says he left as there was no chaperone and looked at me said 'see what I have to put up with' and the nurse looks at me and rolls her eyes and we laugh briefly.

Then, the fourth needle hit some sort of nerve and I screamed and he asked my name and said look, do you want to talk to your husband about having a general and I said aren't you done now and he said no, you screamed so I took out the needle. I said, but you've put in loads of needles and he said we need four, shall I carry on?

Good lord, I wanted to kick the man in the face, I know its his job but a little compassion please and the best bit, just before he starts to cut away the abnormality, I am shaking so much he says, 'MrsCarrot, you have to relax, if you are leaping around all over the place I might burn the vagina'. That kind of statement is not condusive to relaxation in my book but I stayed still so it worked, though it took a lot of concentration when he said there might be a little smoke as he seals the area.

Then, thats it, he says give this letter to your doctor and don't have sex for a month. No explanation of what it means, why it came back, whether it is likely to happen again and why it got so bad in six months. I have asked a couple of people I know have had this and they both said there wasn't really any ddiscussion, more a quick, 'it is bad, we will cut it out'.

Of course I am grateful there is a screening programme and treatment to avoid cancer but surely a little more explanation wouldn't go amiss. I have looked it up a bit and I saw colposcopy documents from other hospitals that seemed much more sympathetic, Leeds, for eg, has a room where you get a cup of tea and
a seat for fifteen minutes. These small things make a difference I think.

OP posts:
VanillaPumpkin · 25/02/2008 21:13

Hello ladies.
Mrs C - Hope you had a good weekend. I had a form sent from the Cytology Dept at our hospital for me to take with me for my smear today. This is because of my previous abnormal results. On the bottom there were a range of boxes to tick to say the result. They had all the 'standard' results boxes from negative through the CIN things I think and then the last box sort of separate (ie not the worst result) was glandular something. I wish I had read it properly now. Can you call the Cytology dept at the hospital? I have called our hosp a few times just about paperwork but the lady I spoke to was very helpful. I get leaflets sent with every reminder from the hospital too.
Wiggleit - Good Luck. Stay as calm and relaxed as you can. I believe CIN3 is more serious than some other results and I am bothered no-one explained that to you BUT they treated it then and CIN3 is NOT cancer.
You will be fine and will feel much better this time tomorrow when it is all over. It is scary though and your worries are natural so don't feel silly or hide them imo. All the best

bodiddly · 27/02/2008 12:31

sorry to hijack ... but when you go for a colposcopy (mine is in april) do they always give you the injection or is that only if you require treatment? do they always do a biopsy as well? ive read a few contrasting things online and just wondered ... i thought they did the whole iodene thing first to see what/where the dodgy cells and areas were and then if nec did biopsy (with or without injecting ... again people seem to say different things here) adn then treatment only if visually bad or another time after biopsy results. have i got this totally wrong?

expatinscotland · 27/02/2008 12:42

MrsC, I had a loop treatment under local as well but I can assure you my treatment was nothing like how you were treated.

I would definitely complain!

He frightened you unnecessarily and even if it were the next stage up for CIN3, which is cancer in situ - he would not have been able to tell just from colposcopy. You need a biopsy for that.

The colposcope is a camera, that's all. The cervix is stained and the practitioner uses the camera to view the area affected and, if necessary, snips samples for biopsy.

It's not pleasant, I've had biopsy as well, but it should be quick and uncomfortable at worst - I even had mien before I had any children at all.

There's no need to treat there and then, an urgent case can be rebooked for the next day.

If anything, I'd want to wait till the report was back to make sure whatever it was I got the most thorough treatment to hopefully remove everything in one go and not have to go back for further treatment.

The injections to do the loop DO hurt, but you should never be jumping about in pain. Also, anytime they do procedures where your legs will be up and out like that for more than a few minutes, they should move you to a table with sturdier stirrups that hold more of your legs.

I think you should complain.

This person shouldn't be treating people.

wiggleit · 27/02/2008 16:47

Hi everyone. How are we all? Ok i hope.

VanillaPumpkin - Thanx for the reassuring words. I can't even begin to tell you what sort of day i had yesterday! Total palava!!!! I got to the hospital all psyched up for the colposcopy...sitting in the room with the Dr's understudy as my Dr was 'busy', anyway, she asked me loads of questions etc then told me she would do some swabs and that would be it. Confused, I asked what about the colposcopy to which she replied she had no notes of that and couldn't do one today anyway because they only do them on certain days! At this point i was fuming and fit to burst into tears, and said i was extremely worried because of the symptoms I'd been having again and obviously i'd had CIN3 only 18mnths ago and that my Dr had specifically sent me for a colposcopy as she had already done loads of swabs to rule out any infection. She then tried to blame my Dr for the mess up. Don't honestly know what/who to believe but am taking the matter up with my Dr. Anyway, as they 'couldn't' do a colp today i asked for a smear, she said no as they don't like to interfere with the smear programme. I quickly pointed out that had i not pushed for a smear before when i was having the initial symptoms then i may not be here today because at that time i wasn't due for a smear for another 18mnths, and that earlier smear showed the CIN3!! Had i waited for my 'programmed' smear god only knows what they would have found! Why don't Drs get how stressful and worried we are? Anyway after having a bit of a strop (and my DH having a word with Dr) She agreed to do a smear. Why should i have to fight to keep a check on my health especially with my history? I find the way we are treated is appalling. I don't have much faith in the NHS as it is. I lost my Mum to cancer due to the hospital's negligence. It took them nearly 2yrs to find the tumour, kept telling her she was imaging her symptoms, anyway when they finally did find the tumour they removed it and she had radiotherapy and chemo and was told she'd been treated successfully, only she hadn't and because it had took them so long to find it, it had spread to other organs. She was then terminally ill and died months later. Hence why i have no trust in the system at all and get so wound up about having to fight for what really is our right. So sorry to go on! Had an awful day yesterday! Anyway we'll see what the results of the smear show. Bloody NHS!! Soz about the essay!

Is everyone else ok? xxx

MrsCarrot · 27/02/2008 18:13

Expat - thanks, it is does seem extraordinary that they give so little explanation and just bandy scary words like glandular about leaving patients to scour the internet and terrify themselves.I do want to complain, I haven't had the energy for it yet but I will. The 'see and treat' aspect is standard at my hospital it seems, they said it might happen on my letter informing me of the colposcopy appointment. I can't understand why one needle hurt so much either, it didn't last time.

Wiggleit - sorry you've had such a dreadful day. How awful to arrive expecting to be seen and be fobbed off like that. Sorry to hear about your mother. It's understandable that it would make you especially anxious to be treated promptly.

Boddily - as Expat says, the colposcopy itself us just having a look at the cervix with the iodene to see any affected areas. You would normally have a biopsy if an abnormality is visible and only in severe cases be treated there and then. The treatment involves an injected local anesthetic.

OP posts:
CoteDAzur · 27/02/2008 18:13

wiggleit - What are your "symptoms"? I had CIN3 and had no symptoms whatsoever. Curious to hear yours.

wiggleit · 27/02/2008 18:30

CoteDAzur - My symptoms are mainly bleeding after intercourse, but also have a bit of pain during too. But recently i came on my period a week early (I am on the pill) and kept bleeding for 2.5 weeks. The period thing is suppossedly not related and when i went to the hospital yesterday the doctor found a raw area on my cervix which she treated with aluminium nitrate or sulphate (can't remember now! ) Hopefully the smear i begged her to do will put my mind at rest. How are you now? Do you have to have more regular smears? Hope you are ok.

MrsCarrot - Thanx for your kind words. Hopefully i'll be fine! (that'll be the day! hehe! xx

bodiddly · 27/02/2008 19:36

thank you for your help ... its all a bit worrying isnt it when you dont know the facts and you think that they would provide you with enough information in a kind manner rather than leaving us all to our imaginations and stressing about it all!

VanillaPumpkin · 27/02/2008 19:56

Oh dear wiggleit . What a crap day!

majormoo · 27/02/2008 21:46

Mrs Carrot that treatment sounds horrible. I would definitely write and complain.

A few years ago I have severe CGIN and also had a LLETZ. However, I had been given info before the appointment that they had a 'see and treat' policy so was prepared in advance. I did not know I had a glandular abnormality though until I saw the consultant, but they were very sympathetic when I was worried, as I knew CGIN was more serious and unusual that CIN1/2/3. I also got a cup of tea afterwards!

The nurse explained to me, as Deepbreath said, that sometimes CGIN does not show on a smear so I guess you and I are lucky that it was spotted before it became invasive cancer.

MrsCarrot · 28/02/2008 10:59

I'm sure it's the tea that make the greatest improvement, majormoo!

It is worrying this glandular business, my doctor said it's very unusual and that she'd never heard of it. Might be why it progressed so quickly between smears. Very worrying, but like you say, good that it's been seen and dealt with.

OP posts:
CoteDAzur · 28/02/2008 12:45

wiggleit - In your place, I would go to a very good gynecologist and ask him to give me a good check-up. Precancerous changes in cervical tissue is not supposed to change timing and duration of periods. I am not sure about pain during intercourse but it doesn't sound normal - I had a half an inch cone cut out from the cervix and didn't feel a thing.

Sorry if this worries you, but better be safe.

wiggleit · 28/02/2008 17:55

CoteDAzur - Thanx for the advice. Think you are right. Just in the process of getting in to see my Dr again so i'll see if i can be referred to a good gynae. Will pay if i have to!

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