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Pancreatic cancer worries

97 replies

WilsonMilson · 15/05/2023 09:18

Hi everyone, I have an appointment with my GP today and I’m freaking out.

For the last couple of months I’ve had slowly increasing symptoms. Started with a muscular strain type feeling around my upper abdomen as if I had been doing lots of core work (but hadn’t). Just put it down to a muscle strain from something unknown.

That progressed in the last few weeks to clear pain in upper right quadrant, sometimes left too, sometimes middle - around stomach, gallbladder area. It can be stabbing or gnawing, or even just aching. I get indigestion symptoms of burping, inappropriate hunger and also inappropriate fullness at times. No reflux or acid though.

The pain is pretty constant but not the to the degree of a gallbladder attack - I have seen how painful that can be in a person. It’s probably a 5/10 max. It also radiates to my back, bra line and between shoulder blades. That pain can be a killer, maybe 7/10 and is only helped a little with hot water bottles. Some days are worse than others but it hasn’t gone and seems to be getting steadily worse. Doesn’t seem to matter what I eat.

Accompanying this, I’m having loose stools, yellow, much lighter than usual, fluffy with undigested food and generally extremely smelly (I’m really sorry for the tmi). Not white or grey, just lighter and looser.

I’ve lost about half a stone which I can’t afford as already slim, appetite gone but forcing myself to eat as much as possible as am scared by the weight loss. I’m also having some night sweats, but that could be my age, 46. However it is a new thing.

No jaundice or itching which is a positive I guess. Energy not awful, still managing to get up and about, although the pain is preventing me doing too much.

I had something similar, but to a very much milder degree last year which was finally diagnosed as H Pylori. That was treated and symptoms eventually went away after a few months. When I was having this problem I had a private CT and Ultrasound in Jan 2022, as well as endoscopy and colonoscopy. The CT and Ultrasound found nothing worrying, not even a gallstone, just gastritis and HP.

The thing is that I’ve absolutely convinced myself this is something awful like pancreatic cancer, and my anxiety is through the roof. I keep trying to say to myself that the CT scan and Ultrasound would have picked up anything pancreatic then, wouldn’t they?

But then I read that it’s very hard to diagnose and I spiral and wonder if this has been my silently increasing problem all along and I’ve been misdiagnosed and now I might be terminal. I’m just beside myself now, I have a husband and son who need me, aging parents who rely on me.

I don’t mean to be fear mongering or catastrophic thinking, but my pain and symptoms are really very real and I’m scared. Does anyone have any advice? Anyone gone through similar and it’s turned out to be something minor? What should I ask my doctor for? Any advice would be so gratefully received.

OP posts:
Summerslimtime · 17/05/2023 21:51

This is awful. Really shocking. Thinking of you xx

MayhemMostly · 17/05/2023 21:56

I know it's not Mumsnetty, but sending (((hugs)))

BriarHare · 17/05/2023 21:59

Poor you OP. But if it’s any comfort, I have a friend who’s had pancreatic cancer with liver lesions recently and is now on the other side of treatment and doing well.

misssunshine4040 · 17/05/2023 22:00

Sending you strength to get through this. Flowers

Seenoevil33 · 17/05/2023 22:07

Such a stressful time. Please try not to catastrophise- you can’t control the outcome at this point so any energy you invest in worrying is just wasted. You will of course worry, but please try to give your mind a little rest until you know more x

FlamingoQueen · 17/05/2023 22:25

I’m so sorry. Waiting for results is the worst bit. Thinking of you Flowers

MadeInChorley · 17/05/2023 22:32

Just coming in here to add my support and say I have been thinking of you, OP. Awful, absolutely crushing news, but I’m so glad to know your husband, mum and son are with you. The treatment pathway will be much clearer from Friday, although the uncertainty and wait must be terrible. 🌻 It sounds a like your HCPs are all totally on it.

bloodywhitecat · 17/05/2023 22:40

I am so sorry OP, DH had cholangiocarcinoma and I remember our battle to get him diagnosed. The Liver Trust and Pancreatic Cancer UK were of great help to us before, during and after diagnosis. If I can help drop me a PM.

Objectrelations · 17/05/2023 22:43

My mum has bile duct cancer on top of pre-existing heart failure and is really
old - and despite a terrible prognosis is still going strong.
She has defied all predictions so definitely don't google as you can never tell in any individual case how it will go

Jellifulfruit · 17/05/2023 22:48

😔😔🧡

Silkierabbit · 17/05/2023 22:52

So sorry to hear your news. I have cancer and a then 15 year old DS and a 16 year old DD. I would wait until his exams are over before saying anything.

Tatapie · 17/05/2023 22:59

I'm so sorry to hear this. Thinking of you and hoping for positive news for you soon.

poetryandwine · 18/05/2023 01:35

Again I am so sorry. DH had a very scary cancer journey, for lack of a better word. I remember that wait for the MDT meeting was excruciating. I hope things start moving very quickly.

AGreatUsername · 18/05/2023 07:16

I’m so sorry to read your update. I have no experience with these types of tumour but I have cancer, diagnosed last year age 36 at stage 3. All I can say is the wait is the worst bit, it seems to last forever. But once you have a plan you will feel better and the NHS will swing into action immediately to help you. There is a cancer support thread within this forum which offers support to all with, or waiting for, a diagnosis. Please feel free to post for some handholds. Feeling numb right now, or angry or in shock or just disbelief is all normal. If you have a Maggies centre near you they are fantastic at offering advice and practical support, including advice on telling your son.

Yerroblemom1923 · 18/05/2023 07:25

Thinking of you, @WilsonMilson. As others have said, I'd wait until after Friday when you'll know more before speaking to your son or even after he's finished them.

Besthaveanamechange · 18/05/2023 07:57

Sending love and care. I’m so sorry you find yourself here. My Mum had pancreatic cancer. I understand a little of what you’re going through.

Gottotrysomething · 18/05/2023 09:05

Sending hope and good thoughts your way. What a shock for you. I hope you get some answers soon.

Ambertonix · 18/05/2023 09:34

So sorry to read this OP, i was so hoping that with the symptoms you described it would be your gall bladder. I had mine out in 2009 and i can still remember the constant pain until it was removed. Thankfully since then it hasnt given me any trouble. I wish you love and strength for everything you are going through.

AGreatUsername · 19/05/2023 09:13

@WilsonMilson how are you lovely?

WilsonMilson · 19/05/2023 09:32

AGreatUsername · 19/05/2023 09:13

@WilsonMilson how are you lovely?

I have made another thread on life limiting illness topic.

OP posts:
herbygarden · 28/07/2023 07:26

Kerr and Pamela, just to say I am thinking of you both and have everything crossed for you Xxx

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