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Pancreatic cancer worries

97 replies

WilsonMilson · 15/05/2023 09:18

Hi everyone, I have an appointment with my GP today and I’m freaking out.

For the last couple of months I’ve had slowly increasing symptoms. Started with a muscular strain type feeling around my upper abdomen as if I had been doing lots of core work (but hadn’t). Just put it down to a muscle strain from something unknown.

That progressed in the last few weeks to clear pain in upper right quadrant, sometimes left too, sometimes middle - around stomach, gallbladder area. It can be stabbing or gnawing, or even just aching. I get indigestion symptoms of burping, inappropriate hunger and also inappropriate fullness at times. No reflux or acid though.

The pain is pretty constant but not the to the degree of a gallbladder attack - I have seen how painful that can be in a person. It’s probably a 5/10 max. It also radiates to my back, bra line and between shoulder blades. That pain can be a killer, maybe 7/10 and is only helped a little with hot water bottles. Some days are worse than others but it hasn’t gone and seems to be getting steadily worse. Doesn’t seem to matter what I eat.

Accompanying this, I’m having loose stools, yellow, much lighter than usual, fluffy with undigested food and generally extremely smelly (I’m really sorry for the tmi). Not white or grey, just lighter and looser.

I’ve lost about half a stone which I can’t afford as already slim, appetite gone but forcing myself to eat as much as possible as am scared by the weight loss. I’m also having some night sweats, but that could be my age, 46. However it is a new thing.

No jaundice or itching which is a positive I guess. Energy not awful, still managing to get up and about, although the pain is preventing me doing too much.

I had something similar, but to a very much milder degree last year which was finally diagnosed as H Pylori. That was treated and symptoms eventually went away after a few months. When I was having this problem I had a private CT and Ultrasound in Jan 2022, as well as endoscopy and colonoscopy. The CT and Ultrasound found nothing worrying, not even a gallstone, just gastritis and HP.

The thing is that I’ve absolutely convinced myself this is something awful like pancreatic cancer, and my anxiety is through the roof. I keep trying to say to myself that the CT scan and Ultrasound would have picked up anything pancreatic then, wouldn’t they?

But then I read that it’s very hard to diagnose and I spiral and wonder if this has been my silently increasing problem all along and I’ve been misdiagnosed and now I might be terminal. I’m just beside myself now, I have a husband and son who need me, aging parents who rely on me.

I don’t mean to be fear mongering or catastrophic thinking, but my pain and symptoms are really very real and I’m scared. Does anyone have any advice? Anyone gone through similar and it’s turned out to be something minor? What should I ask my doctor for? Any advice would be so gratefully received.

OP posts:
ASimpleLobsterHat · 17/05/2023 13:13

Oh no, I'm so sorry you are going through this WilsonMilson. I hope you get some more positive news about a treatment plan though Flowers Good luck for the CT.

azafata2 · 17/05/2023 13:18

Hi Honey

Is someone with you or is there someone you can call?🌻

WilsonMilson · 17/05/2023 13:21

My husband is here. We are just in shock. I’m only 45

OP posts:
Robotik · 17/05/2023 13:24

I’m sorry you’re having such a terrible time. Are you at the hospital now?

OscarsAmmonite · 17/05/2023 13:36

WilsonMilson sweetheart that must have been such a shock.

Bluemat · 17/05/2023 13:38

@WilsonMilson I am so sorry

azafata2 · 17/05/2023 13:41

Wait for the CT scan There are such advanced treatments now. Sending you massive positive energy.

Topee · 17/05/2023 14:12

I’m so sorry, what a huge & horrible shock for you.

I hope you get a treatment plan that brings you some reassurance soon. Flowers

poetryandwine · 17/05/2023 14:56

I am so sorry, OP. Words fail but I am thinking of you. Big hug

MrsSamR · 17/05/2023 15:06

I'm so sorry to hear this. Fingers crossed you meet the criteria for the Whipple Procedure as you're young and it has been caught early.

adriftabroad · 17/05/2023 15:42

I am so shocked. Sending the best wishes possible.You have been in my thoughts all day.

Winterisalmostover · 17/05/2023 17:34

What a massive shock. Wishing you the best possible outcome.

Whyisitdarkalready · 17/05/2023 17:39

I'm so sorry that you have been given this news. I hope and pray that the hospital can offer you lots of positive information and you will recover. Sending you hugs xx

Needapadlockonmyfridge · 17/05/2023 17:47

I have just read your thread

I am so sorry, it must be a heck of a shock. I hope you get a treatment plan quickly.
Sending you a virtual hug and thinking positive thoughts for you xx

Mumma2Ro · 17/05/2023 18:19

Oh gosh I am so sorry you’ve had this news sending you a big cuddle xx

Firstshoes · 17/05/2023 19:42

So sorry to hear your update. Praying for some positive news for you regarding treatment. xxx

Remaker · 17/05/2023 20:51

I’m so sorry, you must be in shock. I’m glad your husband is with you. Just breathe and try to take it in small steps. Do not google under any circumstances.

herbygarden · 17/05/2023 21:22

@WilsonMilson so sorry that you have had such difficult news. I hope treatment can start really quickly. I will be thinking of you and hope that handholds from Mumsnet will be a comfort Xxx

WilsonMilson · 17/05/2023 21:22

I’m home. I won’t get the ct scan results until after Friday when there is a multi disciplinary meeting. So far we know that my bloods are awful, my C19-9 bloods are about quadruple the max. There is a tumour on the head of my pancreas and a 7cm tumour on my liver.

I’ve gone from the off abdominal ache and pain a month ago to increasing constant pain, weight loss and here we are. I’m 45. I have a son and a husband and it’s just so shit. I feel completely and utterly numb. I’m staying away from google as I’ve already scared myself to death. My mum is flying to me on Friday and will stay for however long. I don’t know how to tell my 17 year old son, he is in the middle of exams.

OP posts:
Namechanger355 · 17/05/2023 21:29

im Sorry to hear this OP. Thinking of you whilst you wait for the ct results.

FortofPud · 17/05/2023 21:30

What an excruciating wait for you. Would it be an idea to wait until you get the results from the mdt before telling your son anything? That way it can include the next steps, treatment etc so he may have an easier time processing the news.

Crikeyalmighty · 17/05/2023 21:30

Thinking of you lovely x

Bluemat · 17/05/2023 21:34

Please do not google, rest up and try to remain positive until you know for sure what Is going on.

You have been in my thoughts today.

Izzy24 · 17/05/2023 21:42

FortofPud · 17/05/2023 21:30

What an excruciating wait for you. Would it be an idea to wait until you get the results from the mdt before telling your son anything? That way it can include the next steps, treatment etc so he may have an easier time processing the news.

This sounds like a good plan. I’m so sorry you’re going through this. Have you seen the cancer support thread? When you feel able to, that might be a helpful place to be. And I would definitely agree that Dr Google is not helpful. You are an individual, not a statistic. Thinking of you .

Remaker · 17/05/2023 21:43

My kids are 16 and 15. We told them straight away because I’d been going for drs visits and scans so they knew something was up. It was such a hard conversation but generally we’ve found they take their cues from us. We also let their schools know and they’ve been really great giving them leeway with assignments being late, not bollocking then for being late to school etc.

I’m sending all good wishes from the other side of the world.

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