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Original poster

Sarcoidosis

2 replies

Dipsydoodlenoodle · 22/10/2022 22:56

Does anyone have an experience with Sarcoidosis at all? OH has just been found to have increases Angiotensin converting enzymes...

We've googled and he has the majority of the list of symptoms - he's been at the doctors for a few years seeing about them!

Obviously he's awaiting the next hospital appointment, but just wondered if anyone could shed any light on what it actually is?

OP posts:
thesparklingdiamond · 22/10/2022 23:17

It's an inflammation disease which causes lumps around your body. Sarcoidosis UK www.sarcoidosisuk.org/ is the best source of information about it.

If it turns out he has sarcoidosis, join the Sarcoidosis UK facebook site. They are great for specific questions. Sarcoidosis UK do patient information days too.

Original poster
Dipsydoodlenoodle · 22/10/2022 23:44

thesparklingdiamond · 22/10/2022 23:17

It's an inflammation disease which causes lumps around your body. Sarcoidosis UK www.sarcoidosisuk.org/ is the best source of information about it.

If it turns out he has sarcoidosis, join the Sarcoidosis UK facebook site. They are great for specific questions. Sarcoidosis UK do patient information days too.

I've had a quick look. That's really useful thank you.

Hes got lumps in his neck but literally has all the issues listed

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