Funny smell..

[deflatedbirthday]

For the last week or so I have been experiencing a smell on and off that no one else can smell.

It's a florally type smell. Not unpleasant.

At first I thought it was a new diffuser. So I moved it. It's not the same smell on investigation.

Then I thought it was daffodils. Got rid of them and I can still smell it.

I can smell it at home, at work, in the car, everywhere. But not all the same.

I can almost taste if some times.

As I say it's not unpleasant but the fact no one else can smell it I'm finding weird.

Any ideas?!

I have a really acute sense of smell and I sometimes smell things that aren't there - but it does tend to be quite briefly, and it's not the same smell twice. I think it's definitely worth seeing your Dr or getting an ENT referral (if that's even possible these days).

I experience this as part of epilepsy seizure warning. They are called auras. I have simple partial seizures (I don't 'drop or seize') but experience the smell and a strong sense of deja vu, I get trapped in a moment and can't communicate momentarily. Afterwards I'm super tired and need to sleep while my brain recovers.

I thought I was going mad for years until I told a doctor who knew instantly what it was. I didn't develop it until my mid twenties and the only thing We can attribute it too was a knock to the head when I'd had a few too many once 🤷🏽‍♀️

I get that smell of pencil sharpenings crayons and musty books.
It's unnerving. But it brings me back to a happy time.

I've got a GP appointment next week. Not had it at all today... yet!

I'll update if it's anything interesting!

deflatedbirthday how was the GP appointment?

@Mumzoo5070 it never happened 😩 they didn't call and I had to rebook for Tuesday.

I am still having the smell intermittently however it's now associated with the urge to sleep and I cannot fight it. It seems to happen in the early evening. I fall asleep for approx 20 mins and on waking I cannot speak for 2-3 minutes. I feel foggy minded and exhausted.

I've ruled out covid and pregnancy.

Well the smell is back with a vengeance today!! But I feel more awake than previous days.

Absolutely baffling!

How strange! Please do keep us posted. I hope it’s nothing serious.

How did your appointment go today deflatedbirthday ?

@Mumzoo5070 it got cancelled again!!

So the GP seemed as baffled as me. I have to go for a facial nerve assessment next weekly ad I have previously had Ramsey Hunt Syndrome.

It remains a mystery for now...

Blimey! Hope you get some answers soon. I know someone who had random strange smells and it turned out to be a large fungal sinus infection only visible on brain scan.

I had weird smells on and off for ages before Covid, they eventually went, never had them investigated. Some were quite bad, so at least yours are pleasant!

Maybe ask GP to consider epilepsy? Seizures can affect all senses including smell, it would leave you very tired too.

Have you had covid at all in the last 6 months? Just wondering as it can damage your Olfactory nerves and cause them to misfire. This can can cause Anosmia, Parosmia or phantosmia.

Hope you get seen soon OP and that all is okay. All I can think of is Covid, although if you have had it in the past and it's just a long term symptom?

Thanks all! To clarify I I've not had covid to my knowledge (I test twice weekly for work!)

Epilepsy had crossed my mind. I work in neurology (nhs) so I might consider asking one of the consultants what they think.

So I finally saw a GP

I've been referred to neurology ? Seizures.

I'm a bit and worried now. I thought they'd say stress and that'd be that.

I haven't had the smell for two days until earlier when I was stood, felt suddenly dizzy and quite unwell and then bam it hit me. I was in public so it wasn't at home or any other familiar place.

I've felt very unwell all week. Negative for covid. Negative pregnancy test.

On top of a fibromyalgia and hyper mobility diagnosis five weeks ago and endometriosis surgery last year I'm just done in.

You’ve been referred to neurology to find out if it’s seizures?

Must be scary, but great that you’ll be tested and whatnot.

Keep on keeping on, I guess. Do you write it down each time you have an episode?

@SwissCheeseRentedChildren

Yeah referral to neurology as my GP was concerned about simple partial seizures.

I'm very scared deep down but trying to put a brave face on. I've just had another episode of uncontrollable tiredness and then unable to come round/ disorientation.

I've made a note of when things happen. I had the smell earlier today. There's just no pattern to be seen.

How odd 🧐. Sending hugs.

Just a little update

No referral done yet despite my app being almost a week ago.

I had another 'sleep' episode but this time I couldn't open my eyes or speak.

The smell is intermittent and still no real pattern

Is it worth getting a urine sample tested. Just saying as I had a strange smell coming from my wee and it was a bladder infection but no other symptoms.

@HappydaysArehere

I did a urine dip at work (perks of the job 😉) mainly for pregnancy but also did for uti just in case. Nada.

I can't get through to my GP to chase the blinking referral.

My referral was received and triaged this morning. I have been referred for an MRI brain under the epilepsy protocol.

I have no idea what that actually means. Needless to say I'm getting myself into a state about it! 😔