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To buy medication online?

148 replies

enoughforme · 04/08/2021 21:39

I have a thyroid issue, fron results I've been getting and an opinion from a private fertility specialist I should be 25mg if thyroxine.

I'm really depressed and this is the reason because my thyroid isn't working at optimum levels, also TTC and been told this medication will put thyroid levels in optimum category.

I've asked my gp to give me the meds they keep refusing,

What should I do? Barge into the surgery and make a real fuss or just find an online chemist?

DH keeps telling me I'm silly and should just buy online but I'm worried it could be dodgy. Anyone bought from ab online chemist before? An authorised one?

Please can you provide details of so.

OP posts:
Berkeys · 05/08/2021 09:17

I am on 25mcg - prescribed by private fertility consultant for TSH of 3.3. Multiple miscarriages etc.

It has changed my life! I have had chronic fatigue, body aches, depression, no energy, cold all over no matter what. All gone! I managed to do a long walk yesterday and feel like a new woman. Almost normal, healthwise.

I think the NHS is crap at thyroid stuff and it’s a huge issue! They refused to treat me when I was 5.5 tsh and I suffered for years as a result, barely functioning. Optimum is much lower than the normal range.

Couldhavebeenme2 · 05/08/2021 09:18

Christ on a bike OP, if I was any one of your hcp I'd be seeing HUGE red flags here - self-diagnosing against 2 highly qualified doctors' advice, ordering regulated drugs online without being sure of the dosage, and lying about it?

You're ttc, and want your body to be in the best shape it can be, I get it.

But for your sake, and for the sake of any yet-to-be conceived children, please get a proper medical diagnosis, with regular monitoring etc. This could genuinely affect the health of your baby if not managed properly - and going off-radar will mean anomalies are not picked up.

Berkeys · 05/08/2021 09:19

A lot of people self-treat for thyroid issues, because the treatment is so bad in this country.

gunnersgold · 05/08/2021 09:20

Pay for a private endocrinologist appointment and they will do a proper check .. I did this after being told for 5 years my thyroid was fine .. I actually have autoimmune thyroid disease but the nhs don't overly watch this or check it ! 🙄

enoughforme · 05/08/2021 09:21

@Couldhavebeenme2 please read my posts - 2 said no medication needed one said medication needed. That is conflicting information and one saying not needed is nhs they don't give a shit nhs DO not care about thyroid

OP posts:
enoughforme · 05/08/2021 09:27

@gunnersgold yes exactly one of these doctors that told me I don't need medication I asked her what my antibodies are and do I have autoimmune she said that information is useless and will not change anything??! Can you believe this???

And then why is it other private ones I have seen ask me if I have hashimotos or graves and I need to find this out.

I've asked my gp three weeks ago I still have nothing.

Honestly thanks for replies but this this has made me more depressed I just feel like giving up 😞

OP posts:
MintyGreenDream · 05/08/2021 09:30

Do you mean mg or mcg?
I'm on thyroxine and I'm on 125mcg.

enoughforme · 05/08/2021 09:30

I feel like some people aren't reading my posts properly to understand truly the situation

Also @gunnersgold I paid for one he completely ripped me off. Had a 20 minute phone call charged me £200.

Sent him a. Whole email back story and most of the twenty minutes he spent asking information I had emailed him prior.

Complete rip off, so unless you know anyone to recommend I do not know where to turn

OP posts:
MintyGreenDream · 05/08/2021 09:30

Sorry just read that you know its mcg now

enoughforme · 05/08/2021 09:30

@MintyGreenDream mcg

OP posts:
enoughforme · 05/08/2021 09:32

@Berkeys

A lot of people self-treat for thyroid issues, because the treatment is so bad in this country.
It's disgraceful isn't it
OP posts:
MintyGreenDream · 05/08/2021 09:34

Also my thyroid is only slightly under and I'm on 125mcg.I doubt 25mcg would do anything significant tbh.Ive been on it for over 10 years.

gunnersgold · 05/08/2021 09:38

Mine is amazing but in West Sussex at a private hospital .

gunnersgold · 05/08/2021 09:39

I actually don't take thyroxine as it made me super anxious . I pay for a medication called ldn which works for me

enoughforme · 05/08/2021 09:41

@gunnersgold would you please Let me know their name? I would travel at this point I'm desperate, also now with Covid they mull probably agree to phone or video consultations so I don't mind. Thank you x

OP posts:
Theunamedcat · 05/08/2021 09:42

[quote enoughforme]@gunnersgold yes exactly one of these doctors that told me I don't need medication I asked her what my antibodies are and do I have autoimmune she said that information is useless and will not change anything??! Can you believe this???

And then why is it other private ones I have seen ask me if I have hashimotos or graves and I need to find this out.

I've asked my gp three weeks ago I still have nothing.

Honestly thanks for replies but this this has made me more depressed I just feel like giving up 😞[/quote]
Graves is overactive your buying treatment for underactive thyroid why would they be asking you this

You would know if you had graves disease

gunnersgold · 05/08/2021 09:42

His name is doctor Sunil Zachariah. He works out of Gatwick spire in West Sussex but I presume works other places instead

gunnersgold · 05/08/2021 09:48

As well

enoughforme · 05/08/2021 09:50

@Theunamedcat summer 2019 when I miscarried I was severely overactive - tsh was in the forties. I have gone from this to medication for overactive carbimazole which has now left levels low.

OP posts:
enoughforme · 05/08/2021 09:50

I seem to be going from under to over - graves was suggested before I knew this

OP posts:
Theunamedcat · 05/08/2021 09:52

If your swinging from one to the other why has surgery or RAI not been discussed

enoughforme · 05/08/2021 10:02

@Theunamedcat your guess is as good as mine - but as my levels are 'normal' sometimes they wouldn't consider it swinging but it is not normal - the nhs normal range is not fir everyone I've read this countless times.

OP posts:
Theunamedcat · 05/08/2021 11:09

You need to ask for a referral ive had three kids and ive got graves so I know its important to keep things steady but my doctors always consulted with a consultant

Siepie · 05/08/2021 11:13

If one doctor thinks you need it, why can’t they write you a prescription?

Lying to pharmacists in order to get medication is dangerous - especially since you don’t realise the difference between mg and mcg.

Your levels are switching between under active and overactive, but you want to take this medication without proper monitoring? You’re taking a massive risk here.

Gardentiger · 05/08/2021 11:18

[quote enoughforme]@Theunamedcat summer 2019 when I miscarried I was severely overactive - tsh was in the forties. I have gone from this to medication for overactive carbimazole which has now left levels low. [/quote]
A TSH of 40 would be indicative of an underactive thyroid, are you sure it wasnt T4 that was 40?

I think you really need to go back to your GP or a different GP and push for a refferal to an endocrinologist. I understand your frustration completely as I currengly have untreated subclinical hypothyroidism, but I think it would be risky to self medicate as it sounds like your thyroid levels are all over the place. If they won't refer, would it be possible to see an endocrinologist privately?

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