Can i just scream/rant/cry here for a while have just posted Steves DLA forms off and feeling sad & crap about it all

[onlyjoking9329]

i have just posted steves DLA forms and think it is very unfair that after years of doing the Farkin forms for three kids with Autism that i have had to do one for Steve, the lovely macmillan nurse came yesterday to help with the form and as we are applying under the
farking special rules it did mean that we didn't have to fill the whole forms out but it does say quite clearly that it is for people who have less than 6 months to live and that has made me sad
Steves consultant had to fill in a form to say that he could apply under the special rules and his report made difficult reading.
the bit where he put " very poor prognosis" has hit me very badly.
Steve is blissfully unaware of any of this which is hard as i can't talk to him about it.
sorry for the long waffley self pitying thread but i just needed to let it out
to be honest i am not bothered about the money side of the DLA but do need a blue badge for steve as mobility is an issue.

I find that it washes over me in waves. Some days I cope better than others.

Dh is quite rough today, and has eaten ext to nothing as he keeps being sick.

Grim

And monday may buy us more time, but it isn't going to be a cure. Not unless we are astonisingly lucky, and after 3 different unrelated cancers I don't belive in that sort of luck any more

OJ and MB big hugs.Nothing anyone says can make any of it better,but wishing you both strength.xx

OJ- Steve's mother is an out and out lunatic. And crass beyond belief.

((OJ & MB))

OJ

I JUST DONT KNOW WHAT TO SAY mB AND pj. I WANT TO SCOOP YOU BOTH UP AND GIVE YOU A BIG HUG ABND LOTS OF CHOC. i feel crappy sometimes that i have my dh back and you two are coping in much worse situation

and the waves are all different sizes MB and you never know when the next wave will be or how big the fecker will be
it's crap when they are so poorly and you can do nothing.
talking of luck i have a range of lucky crystals and even a lucky pumpkin yours if you want them

Just wanted to send my love to both of you, oj and mb.

LVOC, i can kind of understand how you feel but i am just so pleased that you have your lovely pink peter back, so stop feeling bad or i will have to come and confiscate your pushchair/pram collection

dh get sent loads of crosses, st christophers, prayers on plaques, a candle lit at lourdes, and a coin or soemthing that had been blessed.

not sure if either of you two are religious, but it was comforting to know people were thinking of him.

i can lend a wetsuit if you want not sure it will be too big for you both, actually you could both fit in it

MB and OJ - much love to you both and your wonderful DHs x

LVOH - we all rejoice for you

we have lots of stuff like that LVOC and we always accept them with good grace cos we know that the giver means well and it also makes them feel they are doing something

exactly OJ, people feel they have to do soemthing and i always found it a great comfort as well. a lot of the people passing things on hadntactually met peter but knew of him through his mums work. we got some lovely cards and things as well.

when is next scan?

scan is on 5th dec this will be his first scan since july, results on the 11th dec chemo to restart on 11th dec and ends on my birthay

Don't know what to say puts my problems insignificant.

Enjoy your chocolates! Yummy

sorry it's all so bad for you

What chocolates?

Oh you poor thing. I am so sorry .

one thing i massively admire about you OJ (and you MB) is the way you manage to find something to smile about and that you manage (and i don't know how) to support other people, i think you two are the bravest wimmin on mumsnet.

well sometimes you just have to smile and i can always find something to smile about, mind you i do laugh and smile at some odd things.
MN is full of brave women

oj, you are one of the bravest people I know. I am so sad you are dealing with this.

thankyou, it's steve that is the brave one he is the one that is doing all the treatment.
to be honest without the support from friends MN and another online gruop i don't think i would have coped so well.

Don't sell yourself short OJ you are brave,

very brave, as you said earlier you are

the only one who is aware of the full true

facts, the kids are not able to understand

and steve doesn't remember, sounds like his

mother has some difficulties in

understanding how serious this all is.

that must be very difficult for you being

so much on your own with all the stuff that

must go round in your head.

if there were a mumsnet award for bravery

you my dear would win it.
((((Many Hugs)))

OJ, I've done DLA forms for my dh and that was hard enough just on the 'normal' basis, never mind the special one. As with you, it was for the blue badge not the money. I saw the bits you've had to fill in and it gave me pause, to remember how lucky we are in some ways.

Thinking about you tonight.

DLA foems are shit i hate them and have always hated them, but at least this time we won't have to wait around for months for the reply, we should get it back within two week (that will be a first) every cloud has a silver lining and all that
i have never been good at awards it's the speech thing that i am rubbish at, thou if there is to be a prize......

how are things today OJ?
do you have any plans for the weekend?