Can i just scream/rant/cry here for a while have just posted Steves DLA forms off and feeling sad & crap about it all

[onlyjoking9329]

i have just posted steves DLA forms and think it is very unfair that after years of doing the Farkin forms for three kids with Autism that i have had to do one for Steve, the lovely macmillan nurse came yesterday to help with the form and as we are applying under the
farking special rules it did mean that we didn't have to fill the whole forms out but it does say quite clearly that it is for people who have less than 6 months to live and that has made me sad
Steves consultant had to fill in a form to say that he could apply under the special rules and his report made difficult reading.
the bit where he put " very poor prognosis" has hit me very badly.
Steve is blissfully unaware of any of this which is hard as i can't talk to him about it.
sorry for the long waffley self pitying thread but i just needed to let it out
to be honest i am not bothered about the money side of the DLA but do need a blue badge for steve as mobility is an issue.

I don't know what to say - so sorry

Big hugs to you OJ. No doubt seeing the forms makes it all seem so real, and almost like admiting defeat.

I have seen your posts here many times, and can't tell you how much I admire your strength of character and spirit.

Enjoy your chocs xx

Oh OJ
xxx

yes that has made things much brighter, plus a had a parcel this morning M&S choc brownies and i have no clue who it was from, so thankyou if it was from a mumsnetter.

and a parcel! - there are lots of people thinking of you ((((Hugs))))
xxx

So glad Steve is having a good day.

Oh bless you OJ that must have been hard to fill in the forms, i find it hard to see how one person can be so strong but you are babe.
do not for one second think that your post is self pitying

oh OJ I'm sorry

Oh I think I know who the brownies were from (not a mumsnetter - from the other place - her name begins with a D has a dd whose name begins with an S- will talk to her later and ask)

Cxxx

Can think of chuff all to say. Life's a b*tch

OJ - big hugs
not very useful i know but can't really add much

how lovely tho' - a mystery parcel and chocs from Steve ... i hope they were a little bit of sunshine for you

for you

I'm so sorry. You must be such an outstandingly brave person.

Oh Sweetie that must have been heartbreaking

to see it all written down, i am guessing

however you dress it up it's going to be

crap. (((hugs)))

good to see that steve is feeling good

enough to get out and it shows how much he

loves you to go get you chocs & a card.

hope you can keep on finding things to make

you smile.

M
XXX

I only know a little of whats been going on, Im sorry I havent posted before, but just felt I had to send you thoughts of strength and love , as this is a very difficult time for you.

Im sorry you are in this place, its something no one wants to be in. I know words from others whilst they dont change things, can give some comfort. A feeling that you are never alone in some way.

((((((((((((((only joking and family)))))))))))

melsy

You go ahead and wallow in as much self pity as you want, Sweetheart.

We are all here when you need us {{{Hugs}}}

So sorry for all you are going through, those forms must have been so hard. Glad Steve has had a good day today.

Enjoy your chocs xx

thats Yurt! say thank to DW if the now
all eaten cake was from her.
i am feeling much brighter than i was earlier, so Thanks folks for helping me throu it.things are gonna be rocky for a while but we will continue to find some bits of sunshine where ever/whenever we can.
Christie is it ok if i contact you you might be able to help me with something?

OJ

Big hugs to you sweet heart. I remember how that felt, when I did the same for dh.

But remember darling, that was a year ago.

I'm not daft enough to be a Pollyanna about this, but in the end none of us knows what will happen to us next.

Lets hope that Steve does as well, and that next year you can celebrate the Aniversary of sending off the forms.

But it is crapola, isn't it?

OJ- have spoken to her and it was her..... and the brownies were from her.....

it's weird how you can think you've got your head around it and can talk about it without blubbing sometimes, then something comes along and knocks you sideways.
still it takes a while i suppose and we have only been told the terminal bit a couple of months.
you are right thou MB it is crappola.
sorry if my spelling is a bit crap but i do still have everything crossed for you for monday
yurt1 thanks for checking for me, i will thank her when i see her around.

hi only joking i wish i could make things better,life is so hard innit,you are so brave,thinking of you and your lovely familyxx

OJ- what you're dealing with is huge - think about how long it takes to come to terms with the A word- this is so much bigger and harder and of course you'll get knocked around. Be kind to yourself and blub/scream/cry/shout/swear whenever you want to...... ((hugs- to you too MB))

thing is i am surrounded by people who don't "get it"
i have to wonder about steves mum, she phone him up the other day to see if he fancied going out for the day with her, what a lovely idea i hear you say, she want him to travel 100 miles with her in the car to vist the crem to put down some flowers for her parents
Bless him steve told her he wasn't up to it.