things going downhill fast, awaiting emergency doctor.

[onlyjoking9329]

Steve has got much worse since yesterday morning. he was sick six times and he is the same today, he has a lot of swelling around his head and eye
i phoned the docs and got thou to NHS direct.
they asked if steve would go into hospital, had to say no as he wants to stay at home.
just need to get the swelling, pain & sickness sorted out.
the doctor will be here within an hour

am ok, just very emotional and tired too the kids have an inset day tomorrow so i have sorted child care to cover hospital vist. things will be easier on tuesday once kids back at school

Will they be able to give Steve anything else to help him with the sickness and pain tomorrow?
You must be exhausted O.J have you got family around who help out?

no family to help out MIL is usually far to busy having holidays or having her hair done to offer to help

OJ just seen this.Sorry could not e-mail before,have now borrowed b-i-l harddrive as computer packed up.Have been tooing and froing to dp in hosp, so busy, but have just updated on thread.So sorry Steve has not had such a good day.Hang on in there.Best wishes to you and your family xx

Hi OJ, I have not posted up to now but have been keeping an eye on this thread. I do hope that Steve will get a good nights sleep tonight and so will you and that this week will be a good one.
I wish I was closer to give you a hug and to look after the kids for a few hours as to give you a few hours to yourself.

Hi O.J.

just to let you know I am thinking about you and Steve today, I hope the hospital goes as well as it can.x.

Hello OJ,
You must be exhausted, this halfterm seems endless, mine go back tomorrow too and I am ready for it, and I am not in your position, be brilliant if we were all nearer, we could do a rosta for you, gladly, hope Steve is feeling a little better today, love to you all, xxx

O.J How did it go?

hospital trip took longer than usual left home at 10 didn't get back until after 1pm.

How's Steve feeling now? bet hes knackered

He is snoring, he isn't sleeping very well at night i think its the steriods that keep him awake.

Such a vicious circle isn't itamd how about you? Are you getting any time to rest?

i am finding relaxing difficult as there is always somebody who needs something.
i am not sleeping very well cos worrying about stuff and i hear the slightest sound.
steve still has some swelling around his eye and head and of course i am worrying that the tumour is growing
he won't get a scan for six weeks either so it is a waiting game

oh O.J I want to say something that is going to make it a million times better for you and your family,but you leave me lost for words everytime. I wish that I could do something to help(and if there ever is in rl or on here don't hesitate to ask). Every morning I think about how you are all doing,so please believe me when I say that you are all in my thoughts You have got such an amazing strength and humour O.J.I admire you so much.x.

Triplet what you say is so true i wished i had half the strength & humour that OJ finds within herself every minute of everyday.
i for one am proud to "know" her
(((HUGS FOR OJ)))

did you follow up the reiki offered ? That might help you relax a bit.

thanks folks you made me blush
am still thinking about the reiki, i have to go to the hospice for it and i am not sure i can do that.
hospital went ok, saw the doctor who has lowered steves steriods and i am worried he will end up back how he was last weekend.

Reiki? Yes definately O.J if you can manage it. It will do you the world of good

Rekki might be good for you OJ. thou i can understand you being reluctant to vist the hospice, my Dear Mum spent some time in a hospice and i have to say it was a lovely place.
why has the doc reduced the steroyds?

Ho to the OJ camp, an early morning call as I couldn`t sleep, I hope you all have a peaceful day, love and hugs xxxx

OJ- just checking in to see how things are > I hope Steve feels a little bit better today and that the kids get off to school so that you can have a moment to have a large wine coffee and a moment to yourself. The reiki sounds a good idea if you can face going to the hospice.
Anyway thinking of you all- I'll go back to the surreal sight of kids trick or treating when it's still light.. weird.

so sorry you're going through this OJ. And Steve of course. Hope today brings you both a little something nice or special. How are the kids coping?

i have always liked roller coaster rides but i don't like this one.
Stve is either in denial mode or he has forgotten he has a terminal DX. we seem to be in such different places right now. i am trying to get my head round the fact that he is going to die that i am going to be bringing up 3 kids with autism on my own, am trying to get my head round explaining stuff to the kids and dealing with the day in day out stuff that seems at times to overwhelm me.
these are not things that i can talk to steve about, because.....
Steve on the other hand is telling people that he will be in remission very soon. he is talking about things that he is planning to do when he is 65 and stuff that he is going to do next year, he has told the kids we will all do christmas in lanzarote next year
i don't want him to give up his hopes and dreams or thinking positive but i am really struggling to do my trolley dolly smile and go along with the plans he is talking about.
when in truth the reality is crap.

that sounds so tough OJ
what would happen if you had a good talk about it with Steve? would he still try denying/ignoring it? regardless of everything else it sounds like it could be unfair on the kids to hold false hope

we have been through this before with Steve and i didn't realize at the time that he had forgotten the DX (he has bad memory loss) we were talking about stuff and i said something about the DX
it was like he had been told for the very first time. so i don't want to remind him again as he was a wreck last time.