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Should I just take dh to A+E every time he gets atrial fib & tachy?

206 replies

Fluffycloudland77 · 14/09/2020 14:14

Cardio put him on 2.5mg bisoprolol, it’s made it much worse, his asthma now requires two ventolin a month not one & he gets out of breath walking up stairs now.

He’s had a gel scan late July, no results sent to gp.

He’s been arrhythmic from 12:30 last night till 13:30 today. Heart rate 160. Dr is ringing us back about upping his meds which is what’s made him worse to begin with.

What do we have to do to get treatment because we keep getting fobbed off.

OP posts:
Fluffycloudland77 · 14/09/2020 14:40

Gp wants to double the beta blockers and says if you get chest pains or dizziness to ring back.

Wtf.

If you get chest pains you ring 999 not the dr for a call back 3hrs later.

OP posts:
peachgreen · 14/09/2020 14:43

Honestly I'd take him to A&E. DH had similar symptoms and has been diagnosed with heart failure but the GP missed it for months.

Fluffycloudland77 · 14/09/2020 14:44

It’s stopped now but he’s knackered.

OP posts:
peachgreen · 14/09/2020 22:29

I'm not saying it is heart failure but DH was taking extra ventolin too and that exacerbated the issue. Its definitely worth pushing for an ECG.

Fluffycloudland77 · 15/09/2020 06:57

He’s had two 24hr ones (heart behaved for the 2nd) and a gel scan.

Now they want a 7 day bp monitor.

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AnnaMagnani · 15/09/2020 07:03

Take him to A+E. The bisoprolol doesn't suit him, it isn't working and there are other options.

Plus phone up the cardiology secretary and say you are struggling and ask to speak to consultant, say you aren't tolerating bisoprolol because upsetting asthma.

You can say no to GP increasing bisoprolol, you want to do something else, could he please ask cardiologist.

I'm a doctor and email cardiologists all the time, I've never found them less than helpful - they are doing lots of phone and email advice now too.

MissRainbowBrite · 15/09/2020 07:04

My doctor told me that Ventolin aggravate a fast heart rate so I've been put on Fostair as a preventer/reliever in one. DR says this is far less likely to accelerate the heart. I have suspected SVT/palpitations.

barkingfly · 15/09/2020 07:48

My husband was told to come in if he did not cardiovert in 12 hours. I would err on the side of caution, though.

Silvercatowner · 15/09/2020 07:55

My son has AF and medication - the advice he has is if the medication doesn't resolve things quickly then go to A&E. An irregular heart beat can cause blood to pool in the heart - this can be dangerous.

Fluffycloudland77 · 15/09/2020 08:08

He’s ringing cardiology today.

I haven’t collected the prescription for 5mg biso.

OP posts:
MutteringDarkly · 15/09/2020 08:28

Yes, back to cardiology. It's unusual to be on beta blockers when he has asthma (there are alternatives - possibly there are good reasons these have been ruled out, but it would be good for them to explain these to you).

I am presuming he is also on anticoagulants? While you don't want to stay in AF for any length of time, as long as he's on the right dose of anticoagulants, the irregular rhythm shouldn't be creating a risk of clots.

How long has he been on the beta blockers? They do make you feel exhausted until your body gets used to them, but it sounds like something the cardiologist needs to go through with you in much more detail.

If he needs two full inhalers within a month, obviously the shortness of breath is not under control. However, they need to look at whether it's caused by the lungs or by the heart, so flag this with them so they can investigate properly - just taking more ventolin at those levels is not a solution. That's 400 doses in 28 days! Your poor DH must be feeling rotten Sad

AnnaMagnani · 15/09/2020 09:12

Some people always feel exhausted on betablockers - looks at my DM who is stuck with the blighters.

Plus me who was rendered unable to walk up a flight of stairs. They are brilliant drugs but like every drug, not every drug suits everybody.

Glad you are on to cardiology.

endofthelinefinally · 15/09/2020 09:17

I would take him to A&E.
IME standards of care for anything that isn't covid have plummeted. He needs to be properly investigated and treated and definitely anticoagulated if he isn't already.

Fluffycloudland77 · 15/09/2020 11:05

Well he rang cardio & they said they haven’t had the ecg results or gel scan results & the consultant will be in touch when they have reviewed them.

No one seems to notice he’s on ventolin more.

Considering pals now. He does feel rotten.

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endofthelinefinally · 15/09/2020 11:12

Did you speak to a qualified HCP OP? I think it makes a big difference to the response, depending on whether the person answering the phone has any medical knowledge.

endofthelinefinally · 15/09/2020 11:14

A good tip is to always take the name and designation of the person you speak to. IME, they often pass you on to a qualified person at that point, IF they are an admin person.

endofthelinefinally · 15/09/2020 11:15

Also, specifically ask what his risk of stroke is.

AnnaMagnani · 15/09/2020 11:25

Honestly just go for PALS.

It doesn't take over a month to report an ECHO (the gel scan). Speaking to PALS will get you in touch with an actual clinician. Depressing but true.

Elsiebear90 · 15/09/2020 11:29

I’m a cardiac physiologist, is unusual that he is on bisoprolol when he has asthma, not sure whether it was an oversight. It’s normal to feel more tired and out of breath when you first start beta blockers or increase your dose, most people find over time that goes away. A heart rate of 160bpm is obviously very fast and it’s not safe for him to be at those kinds of rates for long periods of time as it can cause heart failure.

In terms of treatment, you have a few options for AF. You can control the rate with beta blockers and other drugs, try and cardiovert either with DC cardio version, or with drugs, however, if he has been in AF for some time these are unlikely to be successful, or you can ablate. Ablation is almost always a last resort, cardioversions are usually the first option, but are not always suitable or successful. So most people are on rate and/or rhythm control medication and they will try different drugs and dosages, if they have tried all available medications and his heart rate and symptoms are still not well controlled they will go down the ablation route.

In your situation I would attend A&E if his heart rate goes very fast and does not come down and/or he is very symptomatic. I would speak to a cardiology nurse or doctor from his team as you have done about his fast heart rate and issues with medication first as this will save you a lot of time and stress. Are they aware of the issues with his asthma? There are other medications they can try other than beta blockers like Digoxin, that may be more suitable.

Elsiebear90 · 15/09/2020 11:35

Also, the results of the ECHO should be available to the cardiologist by now, who can explain them over the phone to you. I’m not sure why if it was performed in July the results aren’t available at the hospital. As it will be the hospital that act on them not the GP, your GP having not yet received them shouldn’t impact the care your husband is receiving, and it shouldn’t take over 6 weeks for the consultant to be able to access the report, our ECHOs are reported in the same day or at the latest within a few days of when they are performed.

Fluffycloudland77 · 15/09/2020 14:38

He spoke to the secretary who he said wasn’t particularly keen to talk to him & just wanted him off the phone.

The bisoprolol was what the cardiologist told the gp to prescribe last September. It was cardiology who raised his dose from 1.25mg to 2.5mg & now Gp wants to try 5mg. I don’t think their listening wrt his asthma at all.

He’s had af since he had treatment for Hodgkins at 16. We’ve asked about it repeatedly the last 15 years I’ve been with him & they look at his hx & say oh that’s normal after radio but it’s not. It may be common but it’s not normal. Finally diagnosed at 54 when he had a breakdown with the stress of having recurrent episodes & they did a 24hr ecg & came over all shocked his heart was doing 200bpm at night.

I’m a podiatrist & if a patient sat in my chair telling me the things that I’ve witnessed clinicians saying to my dh I wouldn’t have believed them prior to this.

It is ridiculous you have to go to pals in this day and age or that pals even has to exist shows something is going wrong.

OP posts:
endofthelinefinally · 15/09/2020 16:16

I don't think secretaries should be giving medical advice. In fact I know they shouldn't.

IveSeenThings · 15/09/2020 16:31

Can the GP not change his inhaler? Ventolin is the worst thing to have with tachycardia, just makes it worse. I'm sorry he's so ill, and hope you get some action soon.

Fluffycloudland77 · 15/09/2020 16:51

I don’t know if they can change the ventolin, we can’t get through to the dr he sees most often as it’s all telephone consultation with the first available dr.

He rang the chest pain unit to chase his scan up but they’d gone home.

OP posts:
AnnaMagnani · 15/09/2020 16:58

Honestly PALS for the whole mess - lack of results of scans, meds that aren't working and are making asthma worse. And keep complaining until the issue is fixed.

He also needs to see asthma nurse urgently for an asthma review but it's cardiology that's at the root of the problem.