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Original poster

My lovelysteve is feeling very poorly after his first Radio & chemo treatment

132 replies

onlyjoking9329 · 27/09/2007 23:02

poor steve, he looks shattered and has been sick twice. how do i talk him into doing it all again tomorrow?

OP posts:

robinpud · 28/09/2007 02:54

OJ- so sorry to hear that Steve feels so shitty; no matter what the treatment was sending that long at QMC/City is enough to push anyone over the edge. I hope today they can get it more co-ordinated and you can be in and out sooner.
Somehow as soon as you step in a hospital you become a patient- even my friends who are doctors say how strange it is that they somehow pass control over to the medics. Don't be scared of fighting for what you think Steve should get or needs. I can appreciate how hard it is to have the strength to do it and hope you don't have to, but sometimes you need to be really assertive.
So fingers crossed that it gets easier for both of you, but sending you vibes for a better day today.

mytwopenceworth · 28/09/2007 06:42

OJ, I have typed out a million messages to you on your threads about Steve and not posted one of them because I read them back and they seem so trite. I keep searching for something to say to you, something comforting, something supportive...because I want to comfort you and I want to show my support. I am so sorry that you are going through this and I am even more sorry that Steve is. xxxxxxxxxxxxxxxxxxxxxxxxxxxxx

Budababe · 28/09/2007 06:45

It all sounds crap OJ. Hope you both got some sleep.

WaynettaVonSlob · 28/09/2007 07:33

Hope today goes better..xxx

harpsichordcarrier · 28/09/2007 07:42

sorry to read this OJ, hope things go OK today

Pruners · 28/09/2007 07:59

Message withdrawn

Original poster

onlyjoking9329 · 28/09/2007 08:55

thanks for all your kind words & good wishes.
i can type it out on here without worrying about upsetting people,so it is helpful to me.
don't worry about saying the right thing, cos as yet i don't know what the right thing to say is.(more wine & chocolate jo?seems a good thing for my mates to say at the moment)
well it was a long night Steve was sick until 4am then he slept soundly.
this morning he hasn't been sick but he feels sick so he won't eat anything.
hopefully the sickness will be sorted with different meds.
we thought he was not having treatment over the weekend but he does still have to have the chemo meds so we need to get sorted today. he is being very brave and matter of fact about it all today.

OP posts:

littlelapin · 28/09/2007 09:15

This reply has been deleted

Message withdrawn at poster's request.

anorak · 28/09/2007 09:16

I can imagine how your heart must swell with pride and love when you see him soldiering through this I'm so glad he has you to hang on to. Hope things improve xx

fryalot · 28/09/2007 09:20

oj & steve.

I have no words to make things better, but you are both in my thoughts
xx

ShinyHappyPeopleHoldingHands · 28/09/2007 09:30

OJ I am thinking of you both. You must feel so proud of Steve xxxx

Original poster

onlyjoking9329 · 28/09/2007 11:49

i am very proud of him.
i wouldn't say he is looking forward to hospital today but at least he says he is going.
hospital rang this morning to say blood test were fine so he can have his chemo.

OP posts:

KerryMum · 28/09/2007 11:49

This reply has been deleted

Message withdrawn at poster's request.

hippipotami · 28/09/2007 11:56

Big hugs oj (if you are the hugging kind)
I hope today is better for you both.

SmartArse · 28/09/2007 11:59

I'm fortunate to have no experience of what you're going through, but just wanted you to know that I'm thinking of you all.

TheMadHouse · 28/09/2007 12:04

Hello OJ, I just wanted to add my thoughts to the tread. it is really key that they sort out Steves anti-sickness drugs. There is a number out there and I am sure one will work. nausea is awful I know from experiance. I hope todays visit is better and that this treatments buys you some more time as a family.

You are in my thoughts

Original poster

onlyjoking9329 · 28/09/2007 13:43

i think with the anti sickness drugs they give you the cheapest drug to start with.
well they can get stuffed fobbing us off with less than top of the range is not gonna work. i will be telling them so at 4.25, i am not gonna let steve suffer any more than he has too.

OP posts:

phdlife · 28/09/2007 13:48

oh, OJ, sorry to hear this. will put a special plate of muffins out for you in tea-shop.

{{{{{{{{hugs}}}}}}}}}

RubyRioja · 28/09/2007 13:52

This reply has been deleted

Message withdrawn at poster's request.

Elibean · 28/09/2007 13:56

((OJ and Steve)) I'm so sorry, what a crap way to start chemo.

I think you're right about them starting with the cheaper meds. This happened to a friend of mine, and she went in kicking and screaming and demanding Zofran after the first couple of rounds of chemo - and got it. Its supposed to be one of the most effective (though according to friend, gives you hefty constipation so to be taken in conjunction with lactulose etc) so just wanted to mention it.

I've not been on MN much recently, but having skimmed the thread, sounds like you're doing a grand job of being Steve's advocate and pushing for his needs to be met - good on you, and I hope you have people pushing for you, and helping with the kids, too.

All my best wishes and a big fat hug for the next round xxx

wishingchair · 28/09/2007 14:24

Yes good luck today oj and steve. It's the start of a long 6 weeks. DH found he felt more sick at the beginning but it all settled down after a week or so. He wasn't actually sick though ... poor poor steve. I hate throwing up. Am a real wuss.

DH is due to have his 3rd round of temozolomide on monday, but he's got a cold so is feeling really shit. They do a blood test on monday so if his white blood cells are down we don't know if he'll be ok to do it or not. His memory and concentration seem to be getting worse but the consultant said it should get better now he's not havig the radiation ... don't know why. Always panic its cos tumour has suddenly had mad growth spurt. He also gets the results of his latest mri on mon. I hate this. Sorry. Not being inspirational for you ... maybe take comfort in fact that we're having shit time too!

Blandmum · 28/09/2007 14:26

They do start with cheaper anti emetics, which is crapola.

The best onces that we have found are Ondansetron, which are IIRC, about £7 a tablet. Metaclopramide does next to nothing for dh, other than make him very jittery.

Hugs to you both and hope that things get better soon

Original poster

onlyjoking9329 · 28/09/2007 14:41

WC glad your DH is not being sick, i hope he get to have his next round, do let us know how results day goes, do you have my email addy cos i have something you may be interested in.
you are right about the cheapest drugs Steve is on Metaclopramide, but nurse said they will try a different one today. steve is a bit fed up cos we were told treatment mon-fri and chemo would only be five days, chemo is for seven days and he has has have it on sat & sunday.
we have the radiology direct phone number but that is only mon-fri 8am-6pm
they said any probs out of hours to go throu our gp.

OP posts:

ggglimpopo · 28/09/2007 14:45

Hopê it gets easier OJ. What a fiasco getting it all into gear though. The last thing you both need.

WendyWeber · 28/09/2007 15:00

Ohhhhhhh - Maxolon is metaclopramide - so yes, cheapest first for me too

(Well I supposed you can understand it but when someone's really ill they should use whatever's most effective really)

Hope he gets something effective soon, oj

XXX

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