Today we got Steves brain tumour results back

[onlyjoking9329]

had a phone call from the hospital.
Steves tumour is grade 4.

Oh Oj

I am so sorry to hear this.

Thinking of you
xx

Just want to add my support, OJ.

He is moving over to city hospital for his treatment.

had he been at the queens medical center?
that is were my dad had his op they were brill

yes he was discharged from QMC on thursday

Hi there
I don't post much normally, but wanted to say I'm so sorry to hear your news. I have worked quite a bit with people with brain tumours and it is a truly terrible thing to go through.
Have you heard of Ivan Noble? He was a BBC journalist who had an aggressive brain tumour, and fought a very brave battle, writing about his illness on the bbc website. He wrote a book called a hole in the head His writing was always inspirational.
Sending you support, and please ignore this if you think it won't help.

thankyou have had a look at the book and will make a note of it,Steve wouldn't read it but i would. he is very up and down in mood at the moment, he has been talking funerals today

So sorry to hear that and glad you're not offended at my suggestion of the book - I know people have very different ways of dealing with things.
Do you know where in his brain the tumour is? If it is near the front then mood swings might be a symptom of the disease. Sometimes people I've worked with can swing from one mood to another really quickly. Having looked back at the thread the suggestions of cancerbacup are really good ones. My mum had breast cancer (now 5 years clear) and she found that really useful. She preferred not to have too much information, but I think her phone calls to them were really helpful to her.
Wishing you strength.

Steves tumour is right temperal lobe.
he is on steriods which can affect mood, he also has MS, he has a lot to deal with and he has never been one for reading about stuff and he finds it hard to talk about stuff too

Oh OJ - only just seen this. So sorry to hear your news.
Hoping that you get some answers soon.
Wishing you much strength.

OJ so sorry. I am praying.

thinking of you and your family oj.

cx

it is a bit of a rollercoaster ride at the moment, but i am sure it will soon become our "norm"

Still thinking of you and your family OJ xxx

oj, thinking of you and your ds and so sorry you all have this to fight. I hope Wedesday's meeting goes well for you, I really do.

You/DH might like to read "It's not about the bike by Lance Armstrong" - it's autobiographical, he made a very good recovery from testicular cancer (IIRC he did have a brain tumour removed as well) after having an initial poor prognosis.

so far this month i have used up 198 hours on direct payments (respite for the kids)i have gone well over my 72 hours per month and i still have three weeks of the school holidays to get throu.

ignore the last message i cut and pasted to the wrong forum

onlyjoking- the article was in the Sydney Morning Herald.. it might get put on their site so I will watch.
not sure quite where you are in the East Midlands, but dh's mum had neurosurgery for cancer a few years ago and had the most excellent scottish surgeon- a young man at QMC if that's where you get sent.

oj, I will keep thinking of you

(just realised I put 'ds' in my last message when of course I meant 'dh')

oh sweetheart

(((((((((((((((((((((((((((((((())))))))))))))))))))))))))

steve had his op at QMC surgeon was stewart?
he has to go to city hospital for follow up treatment.

fingers crossed for you oj x

i am still looking for positive storys on grade four gliomas, but i can't find any

hope you get one of these (ray of sunshine) soon x