Today we got Steves brain tumour results back

[onlyjoking9329]

had a phone call from the hospital.
Steves tumour is grade 4.

hi sweetheart xxxxxxx hows everyone been this evening?

am not sure where you live so unable to send you a parcel, so will these chocolates do,

or would these be better?

why not both?

((((((((((((((((((((((oj))))))))))))))

thats encouraging looseleaf, mo one has said how advanced steves is so dunno if that makes any difference to outcome.
did your mum have radiotherapy and chemo at the same time?

the second one is better chocolate and wine, my favs

Yes, my MIL had both radio and chemo (though had to pay for the chemo as the doctors didn't think it would make much difference in her case. But they've been amazed at how she's doing). Did they say whether Steve's tumour is somewhere they could also operate? My MIL's was too far in or something.
Also she's just been accepted for a trial on a new drug in the US (has to travel there by boat as not allowed to fly) which hasn't been tried on her type of tumour before but has been very successful on other cancers. Don't you just wish we could fast-forward medical advances but radio and chemo really can help slow things down

steve had surgery to remove some of the tumour 2 weeks ago but they can't get it all and they know it will grow back

hope you have a better night oj. Hows Steve now? If your still worried tom give the doc a ring they would rather you did that i'm sure.
That's really good news looseleaf how is she in herself now ?
OJ there will be new drugs being developed all the time so do your research and hopefully looseleaf will be able to give you the name of the one her mil going to have.

excited about this

OJ, DH is losing lots of weight, unfortunately . He's on radiotherapy at the moment. Four sessions down, two more to go. Scan in another four or five weeks to see what it's achieved.

Kerry, I've heard something about a new treatment. A friend told me it was on This Morning a few weeks ago. Something to do with light treatment that attacks the cancerous cells but leaves the healthy cells alone. We're going to ask our oncologist about it next time we see him.

how long are his sessions?
steve is starting with 30. six weeks of monday-friday

it's good about your hols oj

last time we booked something we had to cancel and lost all the money so i don't want to tempt fate.

crossed these for you

The sessions themselves only last a few minutes. It's literally go in, get in the machine, a few minutes blast and it's done. The annoying thing is that it takes us at least an hour to get to the hospital, more if the traffic is bad (I go the same route that Misdee goes to Harefield to see her DH so we've been sharing 'isn't the M25 crap' experiences). Treatment seems to vary so much from patient to patient, though. Dad has the same type of cancer as DH but he only had one session of radiotherapy. DH is having six. Good for you planning a break away. We're thinking along the same lines. SIL has offered to have the boys so we can go away for a weekend in September. We're thinking York which is one of my favourite places.

yes the treatment doesn't last long like you say it is the traveling, it's about an hour for us too. luckily for us steves radiotherapy/chemo won't start until the kids are back at school, their school bus will pick them up at 8.15 and drops off at 4.15 so hoping that we get a slot to fit around that

When do you find out about the timeslot OJ?
Fingers crossed it fits in with school.

DH's treatments have all been in the school holidays but he was on holiday himself for most of it so we just combined hospital visits with days out. We had great days out at Legoland and Windsor! While he's having his treatment, the boys and I go to the canteen and take over a corner table. They play on the floor with toy cars and we have a drink and a snack. We have it down to a fine art! I do worry about what will happen if he needs more treatment during term time as DS1 starts primary school in September but we'll cross that bridge when we come to it.

Dunno but we have a meeting on 4th to plan the scan, so maybe we will find out then, we have a 7 week school term so might be lucky to do it whilst the kids are at school.
three kids with autism are a bit difficult to have hanging around, they don't do waiting to well

OJ, just read about your DH, send you my best wishes. I think you already realised that the more important think to do now is live a day at a time and the best you can. How are the kids doing with all this? XXX

The kids don't know what is happening and as they have autism i would like to protect them from it all as long as possible,

another sleepless night, wonder if sleeping tablets would help?

im not surprised, you could try nightol or whatever they call it, youre a brave girl

Hope you get some sleep soon, OJ.