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Today we got Steves brain tumour results back

756 replies

onlyjoking9329 · 10/08/2007 14:52

had a phone call from the hospital.
Steves tumour is grade 4.

OP posts:
sfxmum · 16/08/2007 22:50

OJ I am so sorry this is happening to you
wishing you all lots of strength and lots of love

Nemo2007 · 16/08/2007 22:51

OJ no words for you and your family
Just hugs and support
Must admit I laughed out loud about your lunch out and the woman!!

FuriousGeorge · 16/08/2007 22:51

Oh no OJ! I am so sorry.FIL had the same thing,so know a only a tiny bit of what you are going through.

Are you in Notts? I'm not far away & if I can do anything to help,I will.

Thinking of you all.

fawkeoff · 16/08/2007 22:53

i havent posted on ur thread before but i just want u to know that i am truly sorry that ur having to go through this, and u and ur family are in my thoughts.it's absolutely disgusting that they can shrug you off with "we may have made a mistake".

fransmom · 16/08/2007 22:53

oj please contact macmillan as they will be able to help you support yourself as well as your family.macmillan nurses are angels in disguise, they really are.
tried to copy and paste contact details for you but my pc wouldn't work properly (more likely me dong something wrong then!)

here's the web link
www.macmillan.org.uk
hth x

((((((((((((((((((((oj and family))))))))))))))))))

Nemo2007 · 16/08/2007 22:54

Agree about macmillan they worked wonderfully with my nan and all the family. Also encountered them a couple of times when I was a mental health worker and were always a welcomed support.

fransmom · 16/08/2007 22:54

bugger sorry sweetheart. the link doesn't work. will try again tomorrow for you. hope you manage to get yourself some sleep xxxxxx

pirategirl · 16/08/2007 22:59

oj, i have been reading your thread, and I am truly sad to hear of what you are facing.
My dad's step daughter had cancer this year, and, gosh I dont want to upset you but just wanted you to know I can appreciate your anger. She wasnt diagnosed, but it had taken over very quickly.

Your partner sounds like a great man, i hope you enjoy your day out.x

onlyjoking9329 · 16/08/2007 23:07

one of the difficulties i have is that steve has only told his mum a bit, told him it is bad news but not to worry as he will be having treatment, he told me over lunch that he does not want his mum to know.

OP posts:
harpsichordcarrier · 16/08/2007 23:07

oj god I wish I had something constructive or even comforting to say.
sending love, HC xx

Nemo2007 · 16/08/2007 23:25

what a burden to carry. Although can understand itbut does make it more difficult for you now and even later.

bettythebuilder · 16/08/2007 23:28

oj, I haven't posted on your threads, although I have followed them. (Mainly because I haven't know what to say).

Your last post struck a chord, though. My MIL had a cancerous brain tumour, Fil and Mil didn't tell dh and I the prognosis.

Crikey, I think what I'm trying to say is that we had false hope, and thought that Margarets treatments (op, chemo,) would all help her recover. and get better.
Only towards the end were we told that 3 years before, she'd been given 6 months to live. I'll never forget dh's face when his Dad told us that. He just crumpled. I don't know whether to post this.

onlyjoking9329 · 16/08/2007 23:29

yes i think his mum will be angry at me if she doesn't know but i don't feel i can go againest steves wishes either

OP posts:
onlyjoking9329 · 16/08/2007 23:31

Stevs twin brother is more aware so he might tell his mum.

OP posts:
Nemo2007 · 16/08/2007 23:31

OJ thats what I was thinking, bound to create resentment later for you especially when you dont need it of course you dont really need any of this!!!

onlyjoking9329 · 16/08/2007 23:33

it is hard to know what to say, heck i don't even know what to say, but it is easier to type stuff here than say it out loud. so as long as nobody minds me wallowing/rambling then i will carry on

OP posts:
ValnBen · 16/08/2007 23:35

OJ, as I think I mentioned on the last thread we ?spoke? on, XP is in Staffs ? we have a fairly amicable relationship, so if there was anything ?vital? that needed to be done, such as shopping, towel rail fallen down, (don?t think xp?s DIY skills go much deeper than that LOL), help with transporting DC?s around or financial assistance, between the two of us I?m sure we could come up with something.

Val_anderson2 at hotmail dot com if you would rather do this offline.

fiddlemama · 16/08/2007 23:35

Haven't posted here before as "newbie" and felt intruding but feel must just say totally devastated for you and your family.
You have been in my prayers ever since I first started to read about you when I joined and will continue to be. (((((((oj & family)))))))

Nemo2007 · 16/08/2007 23:36

god wallow and ramble away, you need an outlet and if it helps in the slightest then go for it, nobody knows what to say but I think its just knowing you can say whatever that makes it a bit more bearable[sp?]

ValnBen · 16/08/2007 23:39

Here, here Nemo

hunkermunker · 16/08/2007 23:39

Oh, OJ, what a horrible situation for you to be in - what's his relationship with his mum like? He'll be cheating himself out of the opportunity to say goodbye properly, and her to, if he doesn't tell her.

But what an impossible situation

Keep posting - I've been following your thread, I'm so sorry

Novacane · 16/08/2007 23:40

HAven't posted before but read your threads, Just wanted to send my love,

You ramble away love.. we're listening.

onlyjoking9329 · 16/08/2007 23:43

Steve is not keen on accepting help, we were offered a morning helper at home for the kids but had to say no to it, we may have no choice as time goes by.

OP posts:
Nemo2007 · 16/08/2007 23:44

OJ he may not be keen on help but what about you? What do you and the DC need?

wrinklytum · 16/08/2007 23:46

It is still early days to think about things for him,too,OJ,maybe he will feel he can talk to her when it he has had time to think about it.It is so recent for you all.Hugs xx