Today we got Steves brain tumour results back

[onlyjoking9329]

had a phone call from the hospital.
Steves tumour is grade 4.

I'm so sorry.

Prayers. xxxx

OJ why was there a three month delay to his scan, did they tell you a different result to start with before Friday ? Sorry if you have said this before.
Their are people trained in helping you come to terms with this and who can help the kids. The McMillan nurses are fantastic.
Life is really unfair especially if the hospital have made a mistake

sending you all lots of love OJ

XXXXXXXXXXXX

OJ, it seems so inadequate to say this, but you and Steve and your lovely children are in my prayers, and will continue to be...

OJ, you poor things.

Do you have any evidence that if you'd had the correct diagnosis sooner that he would have had a better chance with the treatment? Can you make some kind of formal complaint about this or claim some compensation? I guess it's the last thing on your mind right now but I can't help but feel the hospital should be brought to task for a mistake like this.

OJ - I'm so sorry - what an up and down day this has been for news. Will keep hoping that there's a chance for your dh.

OJ sending you loads of love

he had been admitted to hospital by ambulance his GP twice before with severe headache & confusion, the GP requested a scan, the hospital sent steve home on the first occaision without a scan and some tablets for migraine
secomd time they sent him home saying there was nothing wrong with him, they had not done a scan still. went to a neuro apptment on the thursday was sent for a scan on the monday , tuesday they phoned up saying abnormal scan so he was taken into hospital that day had lots more tests an scans steve was DX with MS & brain tumour on his birthday 25th jan, they told us they thought he had had it for a long time so felt it must be slow growing meaning not thought to be cancer.
they said he would be rescaned in april to check for growth/change.
i hassled the secatary and the scanning deptartment who told me there was a 3 month back log, he got his scan 26th july.
sorry if its a bit jumbled but have had a few drinks.

Sorry to hear this OJ
wishing you strength.
xxxxxxxxxxxxxxxxxxx

OJ you have every right to be angry this should have been diagnosed when your gp referred him for his scan Sadly that doesn't help you now. So he has lived with this for 8 months that you know of. At least he still not ill so that must be a good sign. The consultants reaction prob answers your question though that was as good as an admittance of their mistake tbh. It makes me so bloody angry that there is a bag log, we had the same excuse, my mum even checked herself back into hospital in the hope of pushing her treatment forward. It's wrong when you are in such a desperate situation and every second counts!
There's nothing to say to console you now i can only send you (((hugs))) to get you through the next few months.

I'm so sorry to hear this news

OJ - I hope you find the strength you need right now. I hope you, Steve and dcs are surrounded by love.

I am speechless - how can there be a 3 month back log for a scan that's so important???

OJ - I'm sure you've got friends in RL and here on MN as well but if you just need to talk / rant to a total stranger feel free to CAT me. x

there was a three month wait because they thought it was slow growing and not cancer.

I think it's outrageous that he had to wait 3 months for a scan. I've got a weird neurological thing going on in which I'm suffering headaches and the partial loss of use in my left leg now and then and I've never been kept waiting as long as 3 months for a scan. And all my scans have been normal!

Do you know though if an earlier diagnosis would have made a big difference to his treatment?

x-posts with you OJ.

How could they make that kind of mistake? It's such a drastic mistake. It must be doing your head in.

I am so sorry to hear your updated news OJ. I hope the treatment really helps, for all of you.

OJ do you have people to help with your children? Do you have support etc where maybe experienced carers can help you with explainimg? How old are the dc's (sorry to be nosey) and do they need to know/will have any understanding of Daddy's illness? Obvioulsy if Steve has limited time, you need to know and help them understand but who is helping you? Please keep posting.xxxxx

(((((((OJ)))))))))))

i think it was good of the Doctor to say that a mistake may have been made, sadly it is no help to steve.
our kids are twin girls 13 and DS 10

OJ even telling dh about Steve's treatment (you forgot about him being sent home after the GP tried to refer him and being told he was only anxious and taking up a bed a sick person could have) makes me livid and so angry. It was a catalogue of errors- I think you have both 'earned' the right to pose as many difficult and uncomfortable questions as you want to the hospital.

How is Steve after the meeting? Did he get hold of his mother? She is in Plymouth btw (just watched the fireworks from ds1's window). Will she be back tomorrow?

You're right though- it was good of the doctor to say. I know it doesn't help- but holding hands up and saying they made a mistake does humanise it.

maybe its not much comfort oj but we will all help you through this nightmare ,even if its only to listen.

oh yes, you can't come here queue jumping won't get you an earlier scan, we have seriously ill people here waiting for beds
steves mum is staying for the fireworks she is coming home tomorrow steve has not told her the full truth