Cancer Support #70. Please post on this thread, not #69, If you have cancer or are undergoing tests for cancer. Rant, rave, scream, cry – whatever helps. Supportive lurkers for Leslie welcome on #69.

[TwitterQueen1]

Thread #69 is filling up with messages of support for one of our own who is very seriously ill. Leslie told me a few weeks ago that she didn’t want any such messages to get in the way of those who need support through their cancer treatment so we are starting a new thread just for those who do have cancer or who are having tests. Could we respectfully ask lurkers and supportive posters to confine their comments to thread #69? Thank you.

We normally start with a brief introduction to our cancers – I’ll kick off. Ovarian cancer dx March 2017. Now on third-line treatment with a trial providing targeted and chemo drugs taken orally.

Knicker I am stressing over this bloody prep and I hope it's not as bad as it sounds. I will be having sedation as well.

Does anyone know what happens if they find any polyps that need removing? Is it done there and then or do you have to go back a second time and go through the whole prep again?
I have the procedure on Monday and will be going on holiday on the Wednesday and I really don't want to have to stress about that as well!

Dulce - I haven’t had a colonoscopy yet (it is on my to do list!) but I had a sigmoidoscopy where they found a polyp and they removed it there and then.

My waiting and not knowing will be over tomorrow....I've decided rightly or wrongly that 'ignorance is bliss'. Been on holiday for a couple of weeks. Wishing all you lovely lacies much strength in what you are all dealing with.

Thanks toofar I hope that's the case for me too if they find something. I'm still a bit baffled as to how we need scans and colonoscopies but I guess the scans don't show polyps.

Oh I haven't recapped on this new thread...I'm one of the ones waiting to find out what is in store..... two successive abnormal cervical smears 12/18 months following Lletz and cone biopsy. I'm overseas and my Gynae phoned me two weeks ago to say she wanted me to see an Oncologist. That's all I know.

All over are you seeing the oncologist tomorrow? Hope it will be the first and last time!
Good luck x

dulce yes I am! My appointment has been moved forward a couple of hours as the consultant is operating. Does mean DH can come along rather than me on my lonesome!

Good luck for your DHs appointment today KBG, hope it's nothing to worry about and it's just a case of explaining the treatment options to him

and or maybe to whoever needs them and are waiting for results

My next appointment is on April fools day of all days, I'm going to ask my oncologist how long he thinks I have left. I was told 2-6 months by a doctor I'd never seen before and he was a kidney doctor rather than having anything to do with oncology so I'm not sure how accurate he was. I'm hoping to get a few more months but my oncologist is really straight talking so I know he won't exaggerate.

My mams still in hospital waiting for an angiogram to see if she needs a stent or a heart bypass so I won't be telling her the news until I know she's home and recovering

Allover, hope your appointment goes well, great your DH can be with you.
I saw my GP (also my next door neighbour!) on Monday and had an X-ray of my back yesterday.
I'm veering between being convinced it's recurrence and thinking I'm daft. My back is really very painful though.
I've only mentioned it to DH but really want results next week as we're going down to the Lakes with my parents for Easter!

Ok I've had enough. You posted ridiculously dramatic posts such as "goodbye cruel world" etc when two of our posters are diagnosed with terminal cancer which smacks of self pity and generally self centred and thoughtless. We have a wonderful, amazing, supportive member of our group who is nearing the end and you still on with all your drama and "woe is me"

You decided to pm one of our members with unwanted and unwelcome codswallop.

This is not an airport, you do not have to announce your departure but door is that way.

Pandora love the airport analogy!!! You've got an amazing way with words. Nothing else to be said- you've said what everyone is thinking so thank you.

Moving on to real problems - purple I do hope the kidney guy was wrong. I'm not ready to let you go especially with your beautiful pink hair 😂- when will you speak to him?

Pee'd off today because I can't get anyone to ring me about my blood results. It won't change the treatment at all but I don't think it's unreasonable to ask what my levels are. They've consistently been going in the wrong direction .

Why thank you Dulce ** I've ordered a purple one for when the pink starts to fade, I see him on Monday so I have a few more days living in ignorant bliss.

TQ that's so frustrating people on the other end of the phone don't realise that it is a big deal to you and you need to know what's what for your own peace of mind

Thank you lovelies for reporting it. What a time waster. Now she knows she's not welcome here - ever again. Love you all ❤️

Hope last chemo went smoothly KBG!
And good luck with Your DHs appointment too

Well put pandora...

Thank you MNHQ.

This is a safe place.

This is a welcome place.

We are all here hand holding. Supporting and being patient with all.

Yelling to the world that we are anything but is just not f*cking on.

These ladies have been my literal life line since this b*stard disease swanned into my life last year and I will not hear a word to the contrary.

Now. As you were girls, as you were 💜

Well said Keepcalm! If anybody did see that ridiculous post and is worried about posting please ignore it.

This IS a welcoming place and you just need to read through previous threads to see how much we all support each other

I agree guys, I've been here on and off since 2013 and these threads and the people on them got me through some tough times.
Hate the waiting...

Dear all

I've got the glooms. Can you kick me out of it. It's two year cancerversary time. I've been waiting on my mammo for a while. Phoned surgeon's sec who said she'd ask and get me put pn list. Got onc appt on Monday. Called today by nice onc secretary to change appointment to one with the registrar as someone on active treatment needs mine with consultant. Fine and had bloods done this morning. Asked about mammo. I'm not on a list. Registrar can request but she was a bit shocked that no one from surgery has seen me since after last surgery. I think I phone bc nurses for results of ladt year's mammo. Just feel a bit alone and lost. Weirdly weepy.

Work has been bonkers, I've felt crap for a while - uber tired plus stress and trying to battle fatigue returning. Friend has been diagnosed with a nasty cancer that may have spread. Lots of trying sort out frustrations of 18 year old with a prescription of some steroid tape but drs keep prescribing only enough to last two days but I cannot sort it because he is over 18.

Sorry. You all have much much more by gigantic far than me but my catastrophic mind is in overdrive and just got the glooms.

Hi Flyingarcher - It’s completely understandable if you’re weepy. It’s horrid being stuck in a system not knowing what’s going on, particularly if you’ve got lots of other things going on. Please don’t add to it by beating yourself up!

I hope you get your appointment soon. Can you find something to distract yourself with (ideally which involves spoiling yourself?!)

FlyingArcher - I’m not surprised you’ve got the glooms! When medical admin goes Kafka-esque it’s both draining and stressful (and sorry you’re going through it too TQ ).

I have a mild version - firstly my sachets/instructions did not arrive (if not here by tomorrow I suppose that’ll mean an extra trip to the hospital on Friday to pick a pack up). Secondly they’re still sorting out what sedative/pain relief cocktail it’s safe for me to have. (Fingers crossed they come up with something really really good)

I had no idea you are pink purple !

Thank you. Feel better for getting that out of my system. Warm hugs to all.

Hi,

Just to introduce myself, I have BC which had also gone to a lymph node in my armpit. Diagnosed June 2018, 7 rounds of chemo, a lumpectomy op and aux node clearance, 20 lots of rads later, I started on tamoxifen on Saturday as mine is HER2+ & hormone+ also on 3.weekly herceptin injections (10th of 18 done today)

fedup I remember you (& your good advice) as mrsP sorry you are back on here awaiting more tests. Fingers crossed it is nothing to worry about.

flyingarcher sorry you seem to have got missed in the hospital admin for your check. I hope they get organised asap for you - no wonder you are worrying. I think you have the same hospital as me & I have been fretting a fair bit as am just finishing alot of active treatment and the worry about being cast adrift from so many regular check ups etc is beginning to get to me and the fear or it returning.
I got my dog back from my parents who have had him since my op more or less and getting out in the sunshine is helping.

Purple I hope your Mam is out of hospital soon & doesn't need stents etc. That must be worrying and I bet you want to avoid hospitals as much as possible at the moment. Glad you are feeling more yourself (if tired) and hope the news from your Oncologist is much much better than you anticipate.

My mind has gone blank for who else has posted, sorry. I hope everyone is doing as well as possible. I would add that this is such a supportive thread which I would have been lost without & am glad that post was deleted upthread as it was not accurate at all and could have put new posters off posting.

Much live, will catch up & post 2mo as my eyes are shutting now (blaming radiotherapy still, this is a late night nowadays!!) Xx

Thank you @noodles44 . The anxiety does dissipate. This last month is the first time it's been back. The after effects of rads seem to linger on. Don't push yourself too much. My surgeon has left the hospital so I think that's why I got a bit forgotten.