Cancer Support #70. Please post on this thread, not #69, If you have cancer or are undergoing tests for cancer. Rant, rave, scream, cry – whatever helps. Supportive lurkers for Leslie welcome on #69.

[TwitterQueen1]

Thread #69 is filling up with messages of support for one of our own who is very seriously ill. Leslie told me a few weeks ago that she didn’t want any such messages to get in the way of those who need support through their cancer treatment so we are starting a new thread just for those who do have cancer or who are having tests. Could we respectfully ask lurkers and supportive posters to confine their comments to thread #69? Thank you.

We normally start with a brief introduction to our cancers – I’ll kick off. Ovarian cancer dx March 2017. Now on third-line treatment with a trial providing targeted and chemo drugs taken orally.

Purple that breaks my heart. But as you say if the treatment is not working and you feel better without it I can see the logic behind it.

I've seen the geneticist and the results are likely to take up to 9 months (it's been 3). If / once confirmed the first step will be a hysterectomy.

I'm not having any treatment at the moment, having the camera up my bum week after next and currently panicking ok how many polyps they will find.

Thank you all. Better day today and feel a bit more normal. Got a ton of paperwork done at work today. Realised bits got missed because of the cancer so have umm well recreated a couple of bits. If the inspector complains I shall have no compunction in pulling the cancer card plus sad face ( got to be of some positive use, for heavens sake).

Found out that DS2 has got offer of a sports scholarship for uni so woo hoo.

Rads - I swore by the aveeno cream and medi honey. Under the nork get red. Can't comment on nipple as mine is no more.

Waves to all.

Thank you all for your warm welcome, this is most certainly a club I never in a million years imagined I would be part of.

BitOfFun – I am struggling to be honest, emotionally this has been very hard for me, but my Oncology Office have a therapist who has been a massive help. I had thought that once active treatments were done it would all be sunshine and roses. But things are getting better.

KeepCalm – they definitely flood us with information over here in the US, I get copies of every result which is posted to a website so I can log in and read everything again and again

Mrstraveller – I am happy to share my thoughts and experience re reconstruction any time – the Standard of care in the US is to place expanders at time of Mastectomy if you want to do reconstruction. So I got that done then 9 months later I did the exchange. But ask away and I will help where I can.
knickerBockerGlooooory – here they recommend 6 months, I was right on the nose – but we have the added complication of Insurance and cost so if I got mine done in the same calendar year I did not have any co insurance to pay. Anyway that aside my surgeon is wonderful and I know he would not have done it if it was too soon. My skin survived pretty well from the Rad’s and was in good shape. Everything I read and the literature the Plastic Surgeon provides says that after radiation the chance of a ‘Perfect’ outcome is reduced because of the damage to the underlying tissue and mussel that will never heal . Radiation is so tough on our bodies.

Thanks to all for your kind words

TQ I've just seen this, I don't think it's any good to you as this lady was in remission but things seem to be improving on the ovarian cancer front. That's the hospital I go to and Dr Mansy is my oncologist

New cancer drug

Dulce I'm at peace with dying, I don't think you die and that's it so I think that helps. It's just my family I worry about.
9 months is such a long time to wait without knowing! Can you ask them to sedate you and take the polyps out at the same time?

Flying I've just started using the cancer card mainly to get get people to make me endless cups of tea as my leg is aching although I'm determined to use it for something more exciting at some point.
Fantastic news about your DS! I'm literally the unsportiest person in the world

Londonhuffy the medi honey, jelly & dressings were given to me by the radio dept when needed. I was using moo goo before. My consultant said to get aloe Vera and aveeno as they are brilliant. Also advised to keep medi honey in the fridge to make it feel even better...

Thanks for the link Purple - it's great news for many.
Unfortunately I am platinum-resistant so the usual drugs didn't work for me. I am on PARP inhibitors though, but they're generally more effective for BRCA positive patients - that's what my trial is exploring.

Forgot to say that I did get my blood results. They were up to 1400 so a rise, but only by 70 instead of last month's leap of 500. Maybe that's why I have more energy - my body isn't fighting an infection (the cancer). I have no idea whether that's a good or a bad thing.

Busy weekend to look forward to! DD3 back from uni. DD1 visiting. Mother's Day

Ah, it will be lovely to have her home!

Hi everyone,
I have had an oncology massage today at the local cancer centre. I would highly recommend one if you have access to this at all. My scar tissue seems less hard (already!) And I have tips for things I can do at home too. I feel less like I have a rolled up newspaper under my arm this afternoon...
Poss other BC peeps would benefit too...

X

Glooms hopefully at bay for the weekend. Son's first choice uni have lowered the required grades because of the scholarship so even though he really hurt himself at training last night, happy dance and have firmed that choice. Off for a weekend away. Sun is shining so I hope you all manage in some way to enjoy it.

Good to hear noodles. I keep forgetting to book myself in for some me treats!!

Flying also good to hear the blooms have lifted; great news re uni

Fab news about the uni flying ... enjoy your (well needed) weekend away.

knicker deffo book in some treats. It all feels a little bit throbby now, but am glad I tried the massage. I am booked in for an acupuncture sesh on Monday which is supposed to help with the hot flushes too.

X

TQ I would take that as a positive since you have more energy. Ah that's lovely that you'll have your daughters home for Mother's Day. I've stupidly offered to cook a Sunday dinner. Thank god for microwave veg and Aunt Bessie

Glad the massage worked for you Noodles. I'm ridiculously ticklish so I've never been brave enough to have one

KBG I'm glad it's not just me who called it the blooms instead of the glooms

Evening all, I'm new to this so working out how to namecheck etc but bear with me!
Thank you so much for the lovely welcome and words of wisdom. I'm so sorry to read some of the updates here, I'm not very good with words, they can come out sounding quite patronising when I mean them in a quite a different way so I tend to be one of those strong silent types making tea in the background

Evening all!

Just popping in to say hi, aim keeping up with everyone’s news but going through a bit of ‘meh’ (as my DD would call it) so not got much to say for myself

Purple your post on #69 this evening made me cry... you are so right. I miss Leslie too and I’ve only been around a few months....

I’m going to go and make something to eat out of the Green Roasting Tin book - which will always remind me of her...

Love to you all on this beautiful spring evening

Oh don't worry too much about name-checking Waton. It becomes easier when you get to know everyone a bit better but don't feel that you have to do this. It's good that your GP has explained things, though not so good that you still have to wait...

Flying ace news about the sports scholarship (I think it was you?). That's' brilliant, though I'm sorry he got injured.

5.5 hours in the car today fetching DD3 from Exeter. It was a lovely day though and I don't mind a drive. Especially when listening to Ken.

Noodles I'll be v interested to hear about the acupuncture - my hot flushes have definitely become more frequent on the Docetaxal. I restart my tamoxifen in 3 weeks too...

Purple I had totally missed my typo - how funny! Can't go wrong with aunt Bessie's; food is food! Good Luton Sunday

Have fun with your DD's TQ this weekend. Must be lovely to have them all back. I hope that you are still feeling as energetic next week

Good luck with Aunt Bessie on Sunday purple I'm sure No one would mind whatever ends up on their plates to be fair!
I have bought the green roasting tin too Fuzzy and have made one thing so far (was delish) but think of her whenever I am browsing it.

knicker a few people have mentioned the benefits of acupuncture to me for the hot flushes and have said it really works. Will report back after trying it on Monday...

I hope the teen wranglings were successful woton !! & good luck with the GP too next week. Not too long to wait, but am sure it will feel like an eternity. Keep as busy as possible to avoid googling...

Have a good weekend Lacies x

Knicker. I have been going to my BC center for acupuncture and it’s amazing. It helped my mood. My hot flushes. My sore bones. And also my scars. I hope you get as much benefit as I do.

I always try to pop in to each new thread. I was dx with Triple Negative BC in 2006. I had WLE, Fec/Tax chemo and rads and have had no recurrence. I feel so lucky. I just want to reassure those just starting out that tnbc is not a death sentence and is Teagarden as curable ultimately.
I know Leslie irl and share in all the thoughts and prayers on her behalf.

Where the hell did Teagarden come from???
It was meant to be regarded!

I have the Green Roasting Tin book too. I said to Leslie once on here that I buy everything she recommends.

In other non cancer health news, yesterday I had a sebaceous cyst removed from my scalp. Apparently there was a lot of blood some of which is still in my hair and the Doctor said not to wash it until Sunday. I was sad it couldn’t have been filmed and put on mumsnet for the sporners. As my hair is still very thin, the wound is very noticeable at the moment but glad it’s gone as it kept flaring up and was painful.

Xx

Aimless how are you doing? We haven't heard from you for a while, if you're still reading this we're all thinking of you

Good Morning Everyone.

Diagnosed with breast cancer Nov. Stage 3 aggresive.
Had mastectomy,chemo radio....

I was taking Tamoxifen for 3 years and since Xmas changed to Letrozole.

Can anyone tell the me the side effects they have experienced since changing to LETROLZOLE please

sorry should have put diagnosed Nov 2014