Cancer Support #70. Please post on this thread, not #69, If you have cancer or are undergoing tests for cancer. Rant, rave, scream, cry – whatever helps. Supportive lurkers for Leslie welcome on #69.

[TwitterQueen1]

Thread #69 is filling up with messages of support for one of our own who is very seriously ill. Leslie told me a few weeks ago that she didn’t want any such messages to get in the way of those who need support through their cancer treatment so we are starting a new thread just for those who do have cancer or who are having tests. Could we respectfully ask lurkers and supportive posters to confine their comments to thread #69? Thank you.

We normally start with a brief introduction to our cancers – I’ll kick off. Ovarian cancer dx March 2017. Now on third-line treatment with a trial providing targeted and chemo drugs taken orally.

I am so shocked to hear the news about purpleunicorns even though it was expected, it feels way too soon. She was lovely and really welcomed me on to the thread last June when I was awaiting my results. Heart breaking news. My thoughts are with her family and friends x

I’m so sorry to read the news about purple She was a lovely and thoughtful person. My thoughts are with her family who she spoke of with great fondness.

purpleunicorns has been one of the most bloody brilliant contributors to this thread. I go back to my breast cancer diagnosis in 2013 so I've seen so many fantastic women getting on with the crap that comes with cancer.
She was always so down to earth, so quick to offer support and so brave (though I'm sure she'd hate that word).
I'm thinking of her son and her dear mam, and everyone who loved her.
And all of you who are posting now, or who are lurking, we'll miss her terribly.

De lurking since the news of @purpleunicorns. She was on the thread at the same time as me last year. Nothing more to say really at the moment, just shocking news.

Gutted to hear this news, another courageous, kind, supportive lady taken far to soon.

Rest in peace Purple x

TQ - sending you a hug. Do you think there’s an element of your dream you could achieve? Could you glamp somewhere under the stars? Could you go on a hacking holiday in the UK? I’m sorry XX

So sad to Come on Here and read this tonight 😓

I haven’t really posted but I’ll miss purple and I’m desperately sorry that she is gone.

No words really. Such a very awesome lady.

purple is doing it on behalf of us all toofar
She's on a roll

So sad to hear this news about purple. She was such a wonderful support on this thread. I will miss her.

Also so very sad to hear the news about purple this evening. She was such a lovely, funny, helpful, selfless contributor to this thread. RIP purpleunicorns.

for Purple x

I’m so upset to read the news about purple, it seems very sudden even though she was so unwell and back in hospital. I wasn’t expecting this news quite yet, she was still posting just a few days ago. She will be missed.

So sorry to hear about Purple, such a lovely person. Thinking of her son. Remember her thread asking for advice as she was getting irregular bleeding and telling her it would probably be fine but make sure she got checked for cancer. It all happened so fast.

I have been avoiding this thread and the FB groups that I am on as I had a bit of a personal meltdown after my hospital admission. I am physically ok, just being a little self absorbed

I came back to the thread tonight to thank purple and others for their kind words.

I am utterly devastated that we have lost purple. I can’t find any words. I have been messaging with my lovely friend who is in the same boat as me and who posts on this thread. We are currently planing something Thelma and Louise-esque

Thank your dear purple, for your wisdom, kindness, humour, honesty and strength. You helped me to deal with a stage 4 diagnosis immeasurably. Thank you xxx

purpleunicorn thank you for all your kindness to me since I came on this thread just a few weeks ago. Your pain is over, you are in my heart.

So sad to hear the news about purple. I haven't been here long but was awed by her support for everyone and her generosity of spirit. My thoughts are with her loved ones 💐

I'm a newbie here but was so thankful for purple's immediate kind response to my first scared post. Much love to her family.

I lurk on here and am so sorry to see the news about purple She has been so supportive of everyone despite what she was coping with. I am thinking of her ‘amazing DH’ who she mentioned at the start of this thread her son and all the rest of her family and friends and hope they get to read all these messages at some point and know how much she helped so many

I read the news about purple last night and wept for the loss of yet another kind, sweet person on these boards and more generally to this vicious, horrible disease.

I joined this thread less than two months ago, so can’t claim to have ‘known’ her really (and sadly never knew Leslie who so many are still grieving for too), but in that brief time purple did shine out as a kind, supportive, generous soul who must have been going through sheer hell physically and facing death far too young, yet never really complained or even laid it on thick. In her few words about what she was enduring, you could get a sense of the devastating effect cancer had on her body and ability to enjoy life, but I bet there was so much untold that she was just too damn classy to talk about, perhaps for fear that it might look attention grabbing or self indulgent. And of course, it wouldn’t have been anything of the sort. You just felt that she wanted to spare everyone the grim details.

I am rambling but uppermost in my mind is the utter unfairness of a 35 year old woman dying in this brutal way, leaving I can only guess a devastated and loving family. And it happened so quickly - I re-read her last message last night and would guess the hospice just couldn’t be organised fast enough, so maybe she was denied even that bit of pleasantry at the end. I so so hope her passing was peaceful and in a room with the people who loved and knew her best.

Bless you purple, thank you for the many small kindnesses on this thread to me and so many others. You will be so missed. Xx

PS spideymom - I know what you mean but I took it that her ‘I only have a few months (hopefully) to live’ comment as meaning that she hoped it was as much as a few months, not that she was willing it to be over.

Me again.
I have had CT and MRI scans, and have an appointment on Tuesday after the MDT meeting on Monday.
I have now received a letter with an appointment for a PET scan on Tuesday. I have been working hard at staying calm (with varying success) but this has sent me into a flat spin again.
Does anyone know why the additional scan? Is this because the other scans have revealed more, or is it not based on results so far?
Thanks to anyone who can help.

God bless you Purple! (Another lurker, Sorry). A phenomenal, inspirational lady who brought so much comfort to others and even more admiration from non sufferers.

🦄🦄🦄🦄🦄🦄🦄🦄🦄🦄🦄🦄🦄🦄🦄🦄

I’m not sure how much we can help, because all we can say for sure is that something has shown up that they want a different look at.

But that doesn’t necessarily mean bad news. I was re-reading the old thread (where on 3 successive days purple joined, I joined and then leslie gave us all for her 5 year cancerversary, and back then I was worried because following a CT scan I was called for MRI of liver (after 5pm on a Friday, so no change of asking why until the Monday - not the best start to a weekend). It turned out it was a cyst that they thought was benign but they wanted to double check. I had repeat surveillance scans to check it was shrinking as expected, I got the news yesterday that they’ve decided no further action required.

If there is still time, you might want to ring to see if anyone can tell you what it is they want to observe. Unless you are getting better as an ostrich act, in which case leave it all to next week

Thanks iVampire, I appreciate it.
I've calmed down a little bit now, and will wait for Tuesday.
I feel bad for offloading when we're all thinking of purple.