Bringing back 'living with cardiomyopathy' support thread

[Misdee]

JUst wondering how all the people/families affected by cardiomyopathy are doing?

any news from anyone?

Hi Misdee,I haven't had experience of cardiomyopathy but have "lurked" (in non scary way) on some of your threads re Peter.Sending your family warm wishes xxx,you are a strong lady.

Hi misdee - I'm a bit of a fraud here as dd is recovered from her dcm although she is still dysfunctional. She ain't brill though at the moment - not sure what's up - med change, hormones, growth spurt, you name it but whatever it is she's knackered.....but not sleeping.

What's going on with you and the family? I read that the LVAD has had it's second birthday. Never expected that to happen.

yes LVAD was 2years olkd yesterday. never expected it either. its quite scary.