It's not summer yet, but we are on cancer support thread 69. Join us if you've got cancer or are having cancer-related tests.

[WhatWouldLeslieKnopeDo]

Good evening lacies and welcome to another thread. We filled the previous one rather quickly with dog stories

Hello to any new posters. Feel free to join us if you've got any sort of cancer, or if you're waiting to find out if you have it. We are always happy to share our experience and hold hands, and even happier when we get to wave goodbye to people who have had the all clear :) (please do come back and let us know either way - sometimes people just disappear into the sunset, leaving us wondering whether they were OK or not!)

It's helpful if you can post a quick (re)introduction, even if you're a regular on the thread, to save people having to remember or to refer back to previous threads. There's no need to "catch up" - just join in whenever you want to.

Well done for telling your brother. That must've been a tough conversation. How was he? good luck with your mum and son.

You must be absolutely reeling so I'm not going to waffle on about pain meds now. But there are plenty of options they can try. Please don't think it will always be this bad

I'm so sorry purple it really is shit! Sending you a hug and strength for when you tell your Mam and son.

@purpleunicorns . No words. How utterly crap. Sending virtual best wishes. Puts my annoyance in creating a book themed cake for World book Day this evening into perspective.

Oh purple I don't know what to say, it is totally shit & so bloody unfair. I hope they get your pain under control better moving forwards. Lots and lots of love

Apologies for the lack of posts, my iPad has been in a state of constant refresh and I have been to tired from radio to faff about with it. I have managed to reset my password so I can use my phone to post. I've missed loads of posts, waves to everyone, but am especially sad to see your recent updates purple & am glad the bubbly feeling has been sorted for you Leslie

I hope radio is going ok cazy mine has finished now (Mon) & am just quite sore & tired. I have mainly been in bed by 7pm this last week...
[Glitterball]

purple so sorry to hear this. Thinking of you telling your family i hope they get on top of your pain meds as soon as possible.

purple You must feel crap. I do on your behalf. Nobody wants to be in this club but with such an un level playing field it really is unfair 😔
Much love to everyone, whatever we are facing x x

Purple so sorry to hear your news, life is shit. You've more than likely spoken to you Mum and Son by now, such devastating news to deliver. Love and strength xx

purple so sorry to read about that. I hope the rest of the telling went as well as something like that can. And that your family will be a stay and support to you.

tahiti - that sounds horrible! Are you still on the alphabet-soup/throw everything at chemo regime?

Waves to everyone else!

So sorry everyone I’ve been accidentally awol as the thread disappeared from my “I’m on” list. Sending Purple so much love

Hello Lacies. I've been away for quite some time now trying to live life and focus on my family, but I am always thinking of everyone here and cancer is never far from my mind.
purple I'm sorry for the news. Damn cancer. I hope they manage to relieve your pain. My thoughts are with you.
Leslie I only read back a little, so I'm not sure how you've been. I hope you're carrying on as well as can be.
I'm having another dip, but that's becoming the new norm. I've found a small rubbery "round" thing on my collarbone and won't know if it's serious or not till I've been seen next week. Incredibly, I feel resigned! Not panicking..yet.
DS2 had a serious injury to his knee last week and was away from school all week due to stiches. That kept my mind somewhat occupied.
I hope all those awaiting test results have the support they could do with and that thise going through treatment are being supported as well. Being here will definitely provide much such support especially as we've all been through pretty much the same stuff.
Wishing you all as good a day as possible ahead

Another here delurking to add useless words like oh fuck purple .

My worst nightmare is the effect of a return on my family .And now you have awful pain as well ! Is oramorph a no go because of your kidneys ?

It's a priority that they deal with your pain ,I hope they are aware of how distressed you are .I hope you're not being too stoic for your own good .

Much love and know that so many of us out here in the ether are holding you in our thoughts and love .

                      <img loading="lazy" class="inline-flex mumsnet-emoji" alt="Flowers" src="https://www.mumsnet.com/build/assets/flowers-Cn99NuJ3.png"><img loading="lazy" class="inline-flex mumsnet-emoji" alt="Flowers" src="https://www.mumsnet.com/build/assets/flowers-Cn99NuJ3.png"><img loading="lazy" class="inline-flex mumsnet-emoji" alt="Flowers" src="https://www.mumsnet.com/build/assets/flowers-Cn99NuJ3.png">

purple I am so sorry to hear your news. I hope that you and your family are dealing with it as best as you can. Sending you the gentlest of hugs

I remember the day my brother was told there was no point in further treatment. I came home and everyone was just chatting and drinking tea.

I thought it should be more dramatic than that. We have so many rituals for life events but this was so huge and there was no way to mark it.

I hope you don’t mind me sharing that - I have been thinking of you and your family a lot, and send love to you all xx

I've seen my mam, brother and son today. I chickened out telling them face to face as I can't cry and talk at the same time plus I thought it would give them space to get their heads round it so I sent them a message, my son was at my brothers so I knew he'd have someone to talk to if needed.

Not much was mentioned when they came to the hospital. I'm not sure if they were waiting for me to bring it up or they just didn't want to talk about it either way they seemed ok which I'm pleased about

I've had my tubes changed, no general anaesthetic but plenty of gas and air so it was painless. They've also changed my antibiotics to oral so if the palliative team come round early enough tomorrow to change my pain medication then I might be able to go home

Peridito I can take oramorph but I can't have it regularly so I'm having oxycodone instead which isn't quite as good
*
Toofar* its so tough but once it's done you wonder what you were worrying about and life seems to go on as normal

purple well done for telling them I expect it will take a while to sink in so they might ask questions in a few days when they've had a chance to try and process it. It might not be that much of a surprise to them. Good news about your tubes and antibiotics. Fingers crossed for the palliative team being with you first thing in the morning :)

Toofar sorry about your brother like you, I expected it all to be a bit more dramatic. I think some things are just too big.

noodles I hope your energy levels and discomfort improve soon. Keep resting as much as you can

royal sorry that you have yet another hiccup. Hopefully that's all it is! poor DS. That sounds horrible. I hope he heals up quickly. I'm alright thanks. I don't know how up to date you are, but I'm now having hospice care at home and declining gradually. I now sleep much of the time! But I'm generally comfortable and peaceful.

Waving to everyone from under my blanket. I've been quite drowsy today. I think partly because they increased my morphine again. I had to have an extra injection for breakthrough pain, so then they automatically increase how much they put in the syringe pump the next time.

We had some excitement as the parking warden tried to give the nurse a parking ticket during her visit.

Thinking of you purple - and also you Leslie.

Fuck cancer

You Lacies are a lovely lot! Hoping everyone gets some rest and is comfy tonight x

Good morning to each and every one of you ladies. Happy international women's day💕
purple good thing your closest know. I can only imagine how awkward it was to be together and not know what to say...but sometimes that helps for the time being until everyone can get their heads around this. I sometimes visualize the day I would have to tell my family something like that and the mere thought hurts. I really hope you continue to be comfortable and pain free. Sending you warm cuddly wishes.
Leslie I'm sorry for not being up to date with your situation. I would think being pain free and comfortable are the most important thing for you. I hope you find interesting things to do. Did that poor nurse actually get the ticket by the way?
Thanks for your kind words and for taking time, as you always do, to ask and care about us. You are always in my thoughts. We have lots to look up to when it comes to you

Thanks noodles, I hope you start to feel better soon. I had my 14th session today, my skin is a bit red and itchy but not too bad, and I am getting some pain on and off. I'm sick of going to the hospital though, glad it's the weekend

addle fuck cancer, indeed

Caz I hope you have a relaxing weekend. It must be a drag going every day

royal no need to apologise. Sorry, I didn't mean to sound snotty! I just didn't want to provide too much unnecessary detail if you already knew.

No, thankfully she didn't get the ticket. My mum went out and explained it was a nurse and why she was there, but the warden still insisted she had to come and move her car immediately. Luckily there was space on my neighbour's drive. But it was added stress for everyone! I'm not sure what the rules are. She was on a single yellow line, but not causing any risk to anyone (people are allowed to park there on a Sunday, so the lines aren't for safety).

Hello all. Just nipping in to offer hugs all round.

purple I was sorry to see your update. It must seem strange to give your family such news, for it not then to be discussed. I know that I would find it hard to know just what to say. It is such massive news to take in.

Leslie I'm pleased to see that you are mostly comfortable. Is your coughing now under control?

Wombat yes, my cough is much better thank you. The Buscopan has almost completely stopped the mucus/post-nasal drip, which is what was making me cough a lot of the time. I still get a tickly cough when I exert myself too much, but I can take Oramorph to try and pre-empt that.

Just got home from hospital with bags of medication to sort out, the palliative nurse has increased my patches and my oxycodone so hopefully that will help. The family is coming round tomorrow so they may bring it up then now that they've had a bit of time for it to sink in

Just opened my piles of post - mainly boring bills and then I opened this from Leslie! I love it! Thankyou so much

Oh my! How lovely is that?

Wow they are lovely purple and Leslie
I'm so glad the cough has eased. Does that mean you can drink milk again. Good news indeed.

purple - you are in my thoughts and prayers these days. It is not my place to say, but I wonder if, in a certain sense, it may be a relief for a family to know something for sure at last? Hence the casual chatter round the table that toofar recalls. Before I came to this thread, I never realised how full cancer is of unknowns; how much time is spent waiting and wondering- and then, suddenly, you just know. Forgive me if that’s a stupid thought.

Hugs to everyone. And what a cool cake from leslie!

Morning all 

purple just echoing everything that's already been said. This cancer bollox really is an absolute pile of wank indeed 

That's an ace cake leslie I mean who doesn't love a unicorn?!? Happy to 'tool up' and come visit that warden btw, just say the word!

Hello all else! I managed not to shit myself taking DH to work OR whilst having rads so I'm having that as my 'win' of the week 

Unfortunately not much else on the winning front. We've had a rather large electrical issue at the work which will be expensive to fix and leaves us rather under pressure over the wkend. Sparky was in last night but hasn't finished the 'fix' so wkend staff will be delighted 

I've also had my radiotherapy stopped for now after only 4 doses. I went in yesterday morning as usual and was asked to take a seat. Two other people with appts later than mine went in before me which was unusual and then a lady I hadn't met before cake through. Naturally I just thought 'oh here we go.....'

She explained in a whole lot of ways that whilst they weren't stopping my treatment, I wasn't responding to within their 'required parameters' therefore there was no point carrying on. so they needed to do more scans and try to adjust it and they'll come up with a new plan and let me know next week what's happening.

So much for a weekend 'off' relaxing away from hospital visits 

I hope you're is more straight forward and going well @Mrstraveller.

I'm going to try to get out for a walk with the pups this morning but true Scottish weather has been threatened by the forecast.....