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Original poster

Post appendix nightmare - anyone got any advice

196 replies

Mascarponeandwine · 26/01/2019 22:24

My 11yo son had his appendix out by keyhole surgery 10 days ago and life has been a nightmare since. In and out of hospital 3 times, now been in since Thursday. He has a wound infection (subcutaneous?) but ultrasound didn’t show a large mass, and his temperament keeps spiking. He’s been on two lots of iv antibiotics but tbh it’s not really making a difference. No preexisting conditions and the doctors can’t work out what’s happening with the temperature spikes. Feels like all this is far worse than the appendix symptoms. Anyone know anything about this - will it ever end? Sad

OP posts:
messyhousetidymind · 31/01/2019 20:59

I think you must be due some good news soon xxThanks

TheBhagwan · 31/01/2019 21:02

OP I’ve been lurking but thinking of you. Anyone in your situation would of course be terrified but you are in the right place and they will figure this out. Flowers

Dimedollar · 31/01/2019 21:05

I just came across this thread, couldn't read and not reply. I hope they soon figure it out and you all get home soon Thanks

BettieSweaty · 31/01/2019 21:19

Just read and so sorry for the terrible time your son and you all are having. Hoping some improvement imminently and sending strength for you.

MymymyLinda · 31/01/2019 21:44

Fingers crossed that the chest infection is the last hurdle and he’ll be turning a corner very soon. Take care.

BigBairyHollocks · 31/01/2019 21:58

How raised is the CRP levels?We ended up going into ICU at the stage you were at which freaked me out,but really just meant they were keeping a closer eye on my DS,not that he was getting really worse.So if that happens try not to worry unduly.Glad you’re in a children’s hospital,you’re in good hands.

GinandGingerBeer · 31/01/2019 22:28

Sending you all good vibes, strength and best wishes.
HmmThanks

Original poster
Mascarponeandwine · 31/01/2019 22:31

Not sure what current CRP level is, I’ve added it to my list of questions.

Not GOSH but a large children’s hospital in a famous uni city in the south.

It’s calmed down, propping him up properly, getting him to cough and breathe deeply. and a desk fan for our bay has really helped. He also has oxygen now (2 prongs up the nose thing)

OP posts:
flatpackbox · 31/01/2019 22:37

What an ordeal for you OP, your poor lad.

I hope that your employers are being sympathetic, it must be awful to have to worry about that when you have got this going on with your DS.

You must be exhausted Flowers, best wishes to you all.

BigBairyHollocks · 31/01/2019 22:37

That should help.Hope you manage to sleep too,take care of yourself as best you canFlowers

MerryInthechelseahotel · 31/01/2019 22:45

I hope all goes well for your DS

SouthernComforts · 31/01/2019 22:55

Poor lad! You've been through a nightmare. I really hope he is on the mend very soon.

Isadora2007 · 31/01/2019 23:02

Sorry to read your scary updates. What an ordeal for your wee boy and you all
Really hoping for a badly improved weekend Brew

BigGreenOlives · 31/01/2019 23:02

Thinking of you & your family, hope your son has a good night’s sleep. Brew

glitterbiscuits · 31/01/2019 23:38

Get well soon little Mascarpone!
CakeThanks For you OP.

OMGithurts · 01/02/2019 10:09

I really hope you see some Improvement in him today Flowers

Polkapjs · 01/02/2019 10:18

How are things this morning?

Original poster
Mascarponeandwine · 01/02/2019 11:35

Now his shoulder has swelled up and they are looking into what to do (it must be the picc line). Another thing. He looks very slightly cooler. Looked at his phone for a bit. They have moved to oral oramorph and removed the catheter to start rehabilitating him.
They think blood was where the ng line was irritating the throat.

OP posts:
Original poster
Mascarponeandwine · 01/02/2019 12:18

He might need yet another general anaesthetic op to sort out the shoulder swelling. That’ll be 3 ops

OP posts:
ichoochoochooseu · 01/02/2019 15:07

Oh that's unusual. My ds has had picc lines. He's not allergic to the dressing or anything? He once had a reaction to the tape that caused a rash and local swelling.

ichoochoochooseu · 01/02/2019 15:10

Are they thinking that a vein is blocked? I hope things start to improve op. Thanks

BigBairyHollocks · 01/02/2019 15:33

Hope you’re holding up ok OP,sounds very stressful.Whats his form like?Good that he’s on his phone a bit at least.

Original poster
Mascarponeandwine · 01/02/2019 16:20

He’s looking a lot better this afternoon. Had an ultrasound to check how much of the liquid food had dispersed into his shoulder tissues but luckily we caught it quickly and the body will hopefully absorb it. The swelling has gone down a lot already. Think the end of the picc line came out of the vein somehow.

Looking at him now, maybe we can start to hope Smile

OP posts:
OMGithurts · 01/02/2019 16:23

Oh my goodness, your poor DS has been so unlucky. Of all the things to happen. Glad he's looking a little brighter. Fingers crossed it's onwards and upwards from here.

BigGreenOlives · 01/02/2019 22:16

Thinking of you & your family - if only good wishes worked like magic. More sweet tea to keep your strength up Brew.