Hi
I am new to this so forgive me if I don't get the acronyms right but here goes..
My daughter (first born) is now 6 months old and was diagnosed with 2 holes in her heart at aged 2 months. We were originally told she would definitely have to have open heart surgery but more than likely when she was about a year old. They have now decided to do the operation in the next 6 weeks - due to her not responding too well to the drugs she's been on.
I have been told all the ins and outs of how this operation is going to go but I would like is to 'talk' to another mum who has been through this nightmare. I am not looking for reassurance necessarily (although that would be great!) but more someone to tell me their experiences - how their baby was when they woke up, whether cuddling was painful, how long it took before the pain seemed to go away.
The hardest part of all of this is that Freya (my daughter) is just the most gorgeous (ok so I'm bias!), happy and contented little girl. You wouldn't know she was so sick apart from the fact she's a little small - 12lbs 6 at 24 weeks.
Any help or info would be greatly appreciated.
Thanks