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CANCER SUPPORT THREAD 66 for those with cancer or awaiting cancer test results. Rant, rave, laugh, cry, joke, scream - whatever gets you through the day.

981 replies

TwitterQueen1 · 03/11/2018 13:47

Welcome to the new thread, and the club that nobody wants to join. Our previous thread is here

Anyone with any type of cancer is welcome. And we will hold your hand if you're waiting to find out whether or not you have cancer at all.

If you have a loved one with cancer you can get support on a different thread here

For old and new posters it's very helpful if you (re)introduce yourself in your first post with a summary of your diagnosis (chemo brain is a real thing and my memory isn't what it used to be!).

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WhatWouldLeslieKnopeDo · 23/11/2018 19:07

Well done Caz! Star I'm glad that's over and done with. Do you know when you'll get the results?

That's great iVampire. My GP has been brilliant too. There's so many wonderful HCPs. It makes me all teary to think about them and how far beyond the call of duty they will go.

Bit worried I've got a UTI Sad why do these things always happen at the weekend?! It stings when I wee and I constantly feel the urge. I've had a cystitis sachet and hoping that calms it down. The morphine messes with my bladder so that's probably caused it.

WhatWouldLeslieKnopeDo · 23/11/2018 19:08

Yay for Maggie's Namechange but sorry you're suffering the spasms too. (Though also relieved in a way not to be the only one Blush)

CazY777 · 23/11/2018 19:28

Thanks Namechange and Leslie. I'll get the results on the 4th when I have the next appointment with the consultant, so I have over a week now without any appointments. Sorry you are suffering with a UTI Leslie. Cranberry juice is supposed to help I think.

CazY777 · 23/11/2018 19:32

Or is that a myth?!

WhatWouldLeslieKnopeDo · 23/11/2018 19:41

I think it is true. But the taste makes me sick! The sachets usually help. Fingers crossed. Enjoy your appointment-free week and good luck for 4th Flowers

CazY777 · 23/11/2018 19:53

Thank you. Flowers for you too

iVampire · 23/11/2018 20:09

lesley - if you think it’s muscular, can you find a good masseur? (Assuming you’re cleared for massage)

iVampire · 23/11/2018 20:14

That was, of course, about your back not your wee!

You could try mixing cranberry juice with raspberry (or indeed any berry) squash, And drink lots, really lots - the retention you had a few days ago will have made your bladder s more welcoming place for unwanted bacteria to congregate, getting as much flow through there as poss is likely to help

WhatWouldLeslieKnopeDo · 23/11/2018 20:42

I must drink more. I hate having to get up for the loo. But will keep flushing through! Feels like I'm drinking all the time at the moment anyway, what with the dry mouth from the oxygen etc. But obviously not enough. Stupid bacteria. My bladder is not a party venue Angry I just don't want to die from a UTI! But equally want to avoid OOH if at all possible as I'm scared they'll send me to A&E and I'll end up back in hospital Sad it just feels like my body is well and truly giving up, which I suppose it is, let's be honest.

Anyway, Mamma Mia is quite fun, though I didn't realise the storyline or might not have chosen it for tonight! :)

I am cleared for massage, but there always seems to be something else higher priority! I might try wearing my support band thingy in case that helps. Do you have a masseur for yours?

WhatWouldLeslieKnopeDo · 23/11/2018 20:43

Wait sorry I got mixed up so ignore that about the masseur, though you deserve one with all your running!

purpleunicorns · 23/11/2018 20:57

Oh Leslie it's one thing after another isn't it and weekends are always worse. I've had a google for you but other than painkillers and drinking as much as possible I can't find any miracle cures for cystitis.
If you do end up back in hospital (fingers crossed you don't!) they may be able to give you something to keep at home incase it flares up again.

Really wish I had a magic wand to make you feel better Sad

I'm loving the nails Namechange. I've just got my husband to bring me some nail varnish through to the hospital Grin

WhatWouldLeslieKnopeDo · 23/11/2018 21:13

Aw thanks for googling for me purple :) you're a sweetheart. Especially with your own problems at the moment. Hurry up and invent your magic wand so you can fix all of us Grin also loving the idea of you painting your nails in hospital!

KnickerBockerGlooooory · 23/11/2018 21:20

Ah thanks for the nail tips name good to hear I don't have to cancel this too! Love your long nails, I'm so used to keeping mine short for netball...

CANCER SUPPORT THREAD 66 for those with cancer or awaiting cancer test results. Rant, rave, laugh, cry, joke, scream - whatever gets you through the day.
WhatWouldLeslieKnopeDo · 23/11/2018 21:24

Very nice :)

TwitterQueen1 · 23/11/2018 23:11

Paralytic Ilius sounds like a Jilly Cooper nickname for a dipsomaniac erudite/Latinate vicar yes it does iVampire that is so funny!

Purple are you out yet? hope your stoma has settled down.

Leslie UTIs are such a bugger aren't they? I hope it isn't one. I'm sure the hospital is the last place you want to be. I do love Mama Mia 2 but I've cried buckets both times I've seen it.

I've been out gallivanting twice this week! Both times were lovely but I do find it hard to deal with stupid comments sometimes. On Wed there was a conversation about how many holidays people had had - quite a few as it turned out. One friend asked me if I'd been away and I said no, it was difficult because of treatment etc and she said, "Don't you miss them?" Grrr well of course I do you nitwit... I don't stay at home out of choice.... (didn't actually say this)

Second one was close friend, who knows everything, started waffling on about we didn't need to be grandmothers yet and how it would be better if we were in our 70s etc etc.

Waving to everyone else!

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iVampire · 23/11/2018 23:13

This is tempting me to paint my nails! It’s something I used to do a lot, way back when, including stripes (green and purple!). Meeting PILs for lunch tomorrow, so wondering what colour might be most (un)suitable.

I haven’t had a massage in yonks (years before diagnosis). I have been seeing an osteopath for my back though - hip quite angry for quite some time, and in ‘guarding’ that the uneven tightness in the muscles caused all sorts of kinks ip and down the spine, I think it really helped straighten me out - but it wasn’t exactly a treat more ‘I’m just going to bend you like this, then press my elbow into the tense bit’

Post-race treat was a reflexology session. I’m not sure how far I believe in all its supposed benefits, but it was very relaxing and definitely a treat for the feet after they’d taken quite a pounding.

Hope everyone has a good weekend. And lesley that you don’t have to go to hospital.

Tahitiitsamagicalplace · 24/11/2018 04:40

Leslie keeping everything crossed for you staying out of hospital! The sachets usually help me too - hope they do the trick. Flowers

KeepCalm · 24/11/2018 08:59

Morning all. Anyone know why, when am so exhausted, I've been awake since 5.30 Confused

At least I've managed some overdue admin and I have a lady coming to see me about helping me with some cleaning later on.

A tad extravagant all things considered but I keep getting told to do less. I've cut as much as possible at work so this seems the next best thing.

Anyone have any lovely plans today?!

KeepCalm · 24/11/2018 09:00

@Simmi1 hope you're okay Thanks

KnickerBockerGlooooory · 24/11/2018 10:06

It's miserable here today but DH has still headed out to the golf course! Girls are still sleeping 😴 so I've made a cuppa and tucked myself back in bed with michelle Obama's memoir book that was given to me last week. Bliss.

WhatWouldLeslieKnopeDo · 24/11/2018 10:28

Enjoy your book KBG :)

KeepCalm I hope you manage some rest today to catch up a bit Flowers a cleaner sounds like a good plan to take the pressure off.

iVampire reflexology sounds nice even without believing in the connections. It's basically a foot massage, right? I used to get a foot massage at chemo sessions - blissful. I'll miss that now that I'm having the tablets! Good luck with your in-laws. Did you paint your nails?! I'm glad the osteopath is helping, but definitely not very relaxing by the sounds of it.

Thanks for good wishes. I had to go to A&E, but thankfully I was allowed home. I had IV antibiotics and now some tablets. They did a chest x ray, which didn't show anything new. It was a long night. We got home about 7am!

I hope everyone has a good Saturday.

Simmi1 · 24/11/2018 10:29

Morning KeepCalm, thanks for checking in. All ok here. Have had a bit of a bad week post chemo - mainly fatigue - but picking up now. Last dose of AC on 7th December then will be starting the weekly Taxol with herceptin and perjeta on 28th December which I’m not looking forward to. Supposed to be spring here but cold and rainy. Glad you’re getting some help with the cleaning. Waves to everyone else BrewCake

KnickerBockerGlooooory · 24/11/2018 10:45

Glad you didn't have to stay in Leslie - hope you have a peaceful day xx

Simmi what part of the world are you in? My brother is in Wellington and he was grumbling about hail and cool temps instead of lovely spring weather.

emac80 · 24/11/2018 11:33

oops, posted on the old thread by mistake but here it goes. Take 2.

Unfortunately joining this thread too. Diagnosed with grade 3 triple negative breast cancer with lymph node spread in April this year. My second son was born prematurely and was only 2 months old when i was diagnosed. have been through chemo for 5 months with a 3yr old and a new baby, surgery and then returned to work before starting radiotherapy this month. Its only now that i think- how on earth did i get through all of that?! Having a toddler and newborn is tough enough not to mention the awful side effects of chemo, but i guess as a mum you just keep normality going and thats what we did. We have no family local so its just been me and hubby sad. Trips to soft play, the farm park, running around the parks and feeding the ducks- im grateful my children keep me grounded. Radiotherapy is much kinder so far compared to chemo aside from the sunburn and fatigue. Im sorry if other people find themselves in a similar position, but it is possible to get through this. xxx

purpleunicorns · 24/11/2018 11:43

Hi Emac but sorry you need to be here. There's lots of ladies on here with breast cancer so I'm sure someone will be along soon for a chat with you. Hats off to you for dealing with young children while having chemo! My sons 16 and I still find it tough even though he can pretty much look after himself
I also found radiotherapy much easier than chemo, there's a cream called MooGoo which is supposed to be really good for the radio burns

Leslie I'm sooo pleased you didn't end up staying in hospital! I'm still in even though I'm fine to go home they say but I have to go wait until teatime for them to sort my medication out Hmm I know the doctors and nurses do their best but surely they would rather have the bed freeing up and let me go and pick the tablets up from the pharmacy myself instead of me taking up a side room