Hello - I was on one of these threads before and dropped off... may I come back?
I'm Miri, I'm 33. Diagnosed with a high-grade uterine sarcoma in 2014 (stage 2). Had a hysterectomy and some pretty intensive chemotherapy and was well for 3 years. This time last year a scan revealed mets on my ovaries, so I had an op to remove those (causing surgical menopause) followed by pelvic radiotherapy. A routine scan in March, which was meant to give us a new baseline for monitoring, revealed a metastatic tumour in my lung, so I had an op in June to take that out. I was then feeling completely well and normal, but a PET CT in September showed that my pelvis is now filled with metastases. One tumour is >10cm; the others are smaller, but there are so many that they haven't bothered giving me the exact number. Definitely inoperable.
My oncologist says that the time I have left is best measured in months not years, but they can't put an exact figure on it. The only thing they can do is chemo to try and slow the spread a little. I was supposed to have gemcitabine and docetaxel in combination; had my first dose of gemcitabine 3.5 weeks ago and have been horrendously ill ever since. Temperatures, vomiting, diarrhoea, pelvic pain... basically, it didn't agree with me at all and cause liver toxicity. I had a week in hospital where they tried to stabilise me - am back home now, but still not well. They've had to abandon the planned chemo regime because my liver wouldn't cope. They're going to start me on Trabectedin instead. The plan is to begin this Thursday but I'm very nervous because I'm still so sick after one dose of the other drug. Ah well.
I live with my wife and our 7mo baby DS (DW is his biological mother), and our cat. We're also moving house in 3 weeks, to a city where we know no one, because DW has a new job starting in January. It's the absolute worst time in the world to move, but given my prognosis, DW's career is now more important than ever.
Basically, everything is terrifying just now. Sorry for the long post.