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'Mass' showing on dMass showing on MRI brain scan - please help

179 replies

diege · 13/10/2018 07:47

After fruitless visits to the GP with my daughter (age 17) about her crippling headaches, we were sent to the hospital after a regular eyesight test when an optician saw swelling behind her optic lenses (Thursday). She had an MRI scan yesterday morning which showed a 6cm mass to the front right hand of the brain. DD currently in hospital having steroid treatment to reduce some of the swelling around the mass so that they can properly assess the type of mass before discussing options. Devastated and so anxious as to what might happen next. Has anyone experienced anything similar and can help me make sense of this all? I'm really struggling and feel so alone (I have 5 other children and was widowed 2 years ago). Thank you.

OP posts:
BiologyMatters · 07/11/2018 20:01

Everything crossed for good news for you Flowers

foreverblessedbee · 07/11/2018 20:05

Op, praying for a positive outcome for your daughter. Praying for God's peace for you when the circumstances around you mean everything but peace xxx please keep mn updated when you can. There Is lots support on here and its amazing how typing out your feelings and thoughts to complete strangers (albeit kind ones) can really help xx

EdInjury · 07/11/2018 20:26

Hello Diege, I've name changed.
I am so sorry for you all going through this. I had a massive meningioma removed twenty years ago now. I was misdiagnosed for years.
I'm doing ok, bit of a limp, but a different part of the brain.
I just wanted to give you this link. www.thebraintumourcharity.org/
Lovely people. They will give you lots of advice, re benefits, carers allowance if needed. All the stuff people don't tell you. They will also let you talk away to them, and give a supporting shoulder.
Take every bit of support you can.
Thinking of you and DD, all good wishes and I will keep looking in Flowers

donajimena · 07/11/2018 20:32

Oh gosh what a long night you'll have. I don't want to offer platitudes as at this stage you just don't know. What I will say I do know of people (close to me) who have had positive outcomes. I've got everything crossed your family will fall into this category Flowers

anniehm · 07/11/2018 20:54

My uncle had a brain tumour removed in 1990, he's still going strong at 80! It's scary but there's lots of specific resources to help you, ask at the hospital for what they offer. Most have teenage specific wards these days too.

NOTthepinkranger · 07/11/2018 20:58

Good luck to you and your daughter OP!

MerryInthechelseahotel · 07/11/2018 22:41

Keeping everything crossed for you and dd 💐

Ohb0llocks · 07/11/2018 22:44

Hope it's good news for you. How is DD doing?

Brenna24 · 07/11/2018 22:59

Best of luck for tomorrow.

Dermymc · 07/11/2018 23:01

Flowers all the best for your dd

Eatmycheese · 07/11/2018 23:04

Thinking of you both and hoping very much that the news is good

HalloweeninCornwall · 07/11/2018 23:08

Hope all goes well tomorrow Diege.

Sending love & hugs to you, your DD and the rest of your family. X

ItsAndTarts · 07/11/2018 23:09

My husband had a meningioma of about 8cm removed 8 years ago. Was a very scary time but recovery has been swift and uneventful. I've got everything crossed for positive news

MrBirlingsAwfulWife · 07/11/2018 23:20

Wishing you well for a difficult night and wishing for positive news tomorrow Flowers

Lumpy76 · 08/11/2018 07:22

Will be thinking of you today and 🤞🏻for best possible results!

Mrskeats · 08/11/2018 15:05

Really hoping you have had good news today, been thinking of you all day.

foreverblessedbee · 08/11/2018 17:19

Hi ok....any news? You're in my thoughts Xxxx praying it was positive news

diege · 08/11/2018 17:25

Thank you to everyone for your good wishes. Unfortunately the news isn't looking good. They need to do further tests to look at the generic makeup up the tumour but it's been diagnosed as an oliodendroglioma, at least stage 3. So aggressive and fast growing which is the opposite of what the consultant hoped for from what he had seen on the MRI. Really trying to be positive - there are treatment options to slow down growth but ultimately not curable.

OP posts:
triwarrior · 08/11/2018 17:28

My goodness, I'm so sorry the results were not what you hoped. You are in my thoughts.

EdInjury · 08/11/2018 17:43

(((Diege)))
I'm so sorry. You must all be in shock and scared.
I wish that we could take this away. There are lovely kind and caring people here and everyone will do their best to give you support. Keep talking here if it helps.

Lumpy76 · 08/11/2018 17:50

@diege what to say...wishing you’d had better news. Sending thoughts to you and your daughter. Xxx

diege · 08/11/2018 18:09

Thank you 🙏 I'm trying to hold on to glimmers of hope...

  1. He got everything he could see on the MRI out
  1. It's on the frontal lobe so very accessible.
  1. She's 17 and in general good health.
  1. The type of cell that's presenting (olio cells as op posed to a type that starts with an 'a') is easier to treat....

I am avoiding google too...

OP posts:
ItsAndTarts · 08/11/2018 18:18

So sorry but hold on to hope everyone's illness is different and unique your daughter is not a statistic and who knows how well she could do
Praying for you all

foreverblessedbee · 08/11/2018 18:23

Op... i feel for you so much. Really sorry this wasn't the news that was hoped for. I know it is a very different situation, but I want to share with you my experience. My youngest child had a congenital heart defect requiring several open heart surgeries in the first 2 months of life. Although he had many setbacks and complications he survived. At almost every single juncture , when we could have been given news, it was always the worst scenario. Always. He didn't have an easy ride. Complications that we had no idea could even happen and I didn't being him home from hospital till he was 5 months old. But thank God, He is now a very jolly 4 year old. The surgery leaves physical scars, and his complications still affect his life. Emotional scars for me take longer to heal. BUT he has a life, praise God, something that we always hoped for but was at odds with everything the medical profession was telling us at the time. I share this simply to give you hope when it feels hopeless and to say, God is with you. Just in some small way I wanted to encourage you. And if you are in the UK, thank God for the NHS aswell, because you will be bloody amazed at the depth of knowledge, professionalism, compassion and care you will receive during your daughters journey ahead. Wishing you every positive thought I can op. Look after yourself first op, because you will need to be strong to get your family through to the other side. But you will, you can, and take every scrap of support offered. People wouldn't offer to help if they didn't care. We are all rooting for you and your daughter... Praying for you op xxxxxxx

ItsAndTarts · 08/11/2018 18:49

How is your dd doing

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