Chronic Fatigue Syndrome - anyone any experience?

[Hattiecat]

I was diagnosed by a non-neurologist in June with Guillain-Barre syndrome, spent 2 weeks in hospital paralysed. have got through the last year with a wing and a prayer finding the fatigue that goes with the illness hard work. finally saw a neurologist 6 months after the original diagnosis who said not sure i have g-b. anyway, long story short saw the same neuro yesterday who thinks i may have chronic fatigue syndrome. i sat there and thought oh he just thinks i'm over tired, got home and googled it and realised its bloody ME!!!! he gave me no guidance apart from to carry on with physio and i should see him in a year?!!! so, was just wondering if anyone has any experience of CFS - i've looked at some sites, but would quite like some first hand experience as i feel i'm starting all over again!!!

Hi Hattiecat - only experience I have with this is that my mum has it. Really she needs to just 'pace' herself. For example if she out for the day or doing something quite hard work then she knows she may be 'laid up' for a couple of days afterwards. She can usually mange it this way but of course sometimes she can wake up and be wiped for no apparent reason. She manages it really well and is 68! Good luck.

hi thanks for that - that's pretty much what i've been doing and it possibly answers some questions that have been nagging me as to why certain things were hapenning...

i was diagnosed with CFS at college after having glandular fever.

Ive had some really crap times - more to the point I never feel i can tell my doctor how i feel and my current partner thinks its all in my head and im lazy -

its really crap

if you ever want to talk i use msn - or drop me an email

emily . benton @ hotmail.com