I'd be v grateful for any voice of experience on my DM's condition/situation as she's climbing the walls with worry.
She was diagnosed Thurs with wet AMD in both eyes. Consultant was v blunt and laconic about the whole thing - said she'd need monthly injections In both eyes (though one is worse than the other), gave her a leaflet and said 'you'll hear something in 6 wks.'
We don't know if that means she'll get the first injections in 6 wks or just an appt letter but the worry is this: even a cursory google suggests that wet AMD can deteriorate in days let alone weeks. At 76, my mum is an avid reader, loves learning languages, does Camino solo annually, relies a lot on her ability to read and get about independently - she is terrified that in the 6+ weeks till treatment her eyes will get irreparably worse.
She's happy to stump up the 1,700 per private injection - she can ill afford it but given the circs she's prepared to do anything to preserve her vision.
Our question is this: if she goes private for the initial 1 or 2 injections to get treatment started ASAP, does that affect her place on the NHS appt list? She simply couldn't afford to continue paying 1,700 a month for treatment.
I can't get advice from either the nhs hospital or private clinic till Monday (same consultant works at both). Would any of you lovely MN'ers give me some advice so I could help ease my mum's mind over the weekend? Thanks for bearing with my slight ramble....